Needs Perceived by Parents of Preterm Infants: Integrating Care Into the Early Discharge Process

Toral-López, Isabel; Fernández‐Alcántara, Manuel; González-Carrión, Pilar; Cruz-Quintana, Francisco; Rivas-Campos, Antonio; Pérez-Marfil, Nieves

doi:10.1016/j.pedn.2015.09.007

Cited by 35 publications

(65 citation statements)

References 31 publications

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“…As Sneath (2009) and Smith et al (2013) stated, mothers do not feel prepared to take on the full care of their child at home (Aydon et al, 2017). As in other studies (Smith et al, 2013), our results point to the need to train mothers in the NICU , the importance of staying in hospital together as a family (Patel et al, 2017) and the participation in early discharge programs at home (Toral-López et al, 2016). These initiatives, developed during the stay in the NICU, allow for learning and practising one's role as a mother (Aagaard et al, 2015).…”

Section: Discussionsupporting

confidence: 56%

“…Consistent with our findings, the loss of "the ideal child" can aggravate the residual guilt that mothers feel (Boykova, 2016), generating attitudes of overprotection or obsessive monitoring of the child's psychomotor development (González-Serrano et al, 2012). A parent-oriented discharge plan for preterm infants in neonatal care reduces the risk of readmission (Ingram et al, 2016), and early discharge home care programs (home supervision by a neonatal nurse) reduce anxiety and stress levels, increasing confidence and reassurance in one's abilities as a mother (Toral-López et al, 2016). While these measures are considered positive, they are not sufficient (Dellenmark-Blom & Wigert, 2014), and thus, mothers demand more social support and specialized healthcare professionals (Franck, McNulty & Alderdice, 2017).…”

Section: Discussionmentioning

confidence: 99%

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Experiences of Mothers of Extremely Preterm Infants after Hospital Discharge

Granero‐Molina

Medina

Fernández‐Sola

et al. 2019

Journal of Pediatric Nursing

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Section: Discussionsupporting

confidence: 56%

Section: Discussionmentioning

confidence: 99%

Experiences of Mothers of Extremely Preterm Infants after Hospital Discharge

Granero‐Molina

Medina

Fernández‐Sola

et al. 2019

Journal of Pediatric Nursing

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“…Prematurity and its complications generate health problems, both short-term and long-term, constituting an important predictor of neonatal morbidity and mortality (1)(2) . Preterm birth increases the risk of adaptation to extrauterine life, which can lead to a number of complications after birth, such as changes in neurological development, motor, cognitive alterations, language delay, behavioral and social problems, poor school performance (3) , as well as readmissions during the first year of life and higher morbidity and mortality rates (4) .…”

Section: Introductionmentioning

confidence: 99%

Associated factors for acute kidney injury in preterm infants

et al. 2019

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Objective: to analyze the prevalence and factors associated with acute kidney injury in preterm newborns. Method: a cross-sectional study based on records data of preterm newborns hospitalized in two neonatal units in northwest Paraná State in 2015. For data analysis, the logistic regression model was used by the stepwise forward method and Fisher's Exact Test. Results: 132 preterm newborns, with a prevalence of 7.5% of acute kidney injury, were hospitalized. Majority of males, extremely preterm and very low birth weight. Associated factors were the use of non-nephrotoxic antibiotics and the presence of mechanical pulmonary ventilation, increasing the chance of developing acute kidney damage by 2.98 and 1.33/day, respectively. Hospitalization days constituted a protection factor. Conclusion: this study was able to identify the prevalence, and outline the variables associated with acute kidney injury in preterm newborns in a particular care situation. RESUMOObjetivo: analisar a prevalência e fatores associados à lesão renal aguda em recém-nascidos prematuros. Método: estudo transversal realizado a partir de dados de prontuários de recémnascidos prematuros internados em duas unidades neonatais do noroeste paranaense em 2015. Para análise dos dados, utilizou-se o modelo de regressão logística pelo método stepwise forward e Teste Exato de Fisher. Resultados: foram internados 132 prematuros, com prevalência de 7,5% de lesão renal aguda. Maioria do sexo masculino, prematuros extremos e com muito baixo peso ao nascer. Os fatores associados foram o uso de antibióticos não nefrotóxicos e a presença de ventilação pulmonar mecânica, aumentando em 2,98 e 1,33/dia a chance do desenvolvimento de lesão renal aguda, respectivamente. Os dias de hospitalização constituíram fator de proteção. Conclusão: este estudo foi capaz de identificar a prevalência e delinear as variáveis associadas à ocorrência de lesão renal aguda em recém-nascidos prematuros numa determinada realidade assistencial. RESUMENObjetivo: analizar la prevalencia y factores asociados a la lesión renal aguda en recién nacidos prematuros. Método: estudio transversal realizado a partir de datos de prontuarios de recién nacidos prematuros internados en 2 unidades neonatales del noroeste del estado de Paraná en 2015. Para el análisis de los datos, se utilizó el modelo de regresión logística por el método stepwise forward y Test Exacto de Fisher. Resultados: fueron internados 132 prematuros, con prevalencia del 7,5% de lesión renal aguda. La mayoría era del sexo masculino, prematuros extremos y con muy bajo peso al nacer. Los factores asociados fueron el uso de antibióticos no nefrotóxicos y la presencia de ventilación pulmonar mecánica, aumentando en 2,98 y 1,33/día la posibilidad del desarrollo de lesión renal aguda, respectivamente. Los días de hospitalización constituyeron un factor de protección. Conclusión: este estudio fue capaz de identificar la prevalencia y delinear las variables asociadas a la ocurrencia de lesión renal aguda en recién nacidos prematuros en un...

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“…As Nezlek and Kuppens (2008) A key area in relation to the impact on practice arising from all six themes was that there is a vital need to deliver emotional support to both mothers and fathers. Indeed, parents have identified that the support tailored towards the emotional aspects of their experience is essential (Toral-López et al, 2016). In view of the depth of emotion verbalised about their experience and their baby, the first two themes highlighted that it is clearly imperative to minimise parent's feelings of exclusion and increase participation supported by Wigert, Johansson, Berg, and Helstrom (2006) and to encourage bonding as early as possible.…”

Section: Discussionmentioning

confidence: 99%

Understanding parents’ emotional experiences for neonatal education: A narrative, interpretive approach

Petty

Jarvis

2019

Journal of Clinical Nursing

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Aims and objectives To explore the emotional experiences of parents who have had premature babies to inform and educate neonatal nurses and health professionals in this field. Background Parents find the neonatal unit a daunting and unfamiliar place leading to anxiety, uncertainty and fear about the future of their baby. Parents have significant emotional needs in relation to assisting them to cope with their neonatal experience. In line with a family‐centred approach to neonatal education, it is essential to teach health professionals about the emotional impact of neonatal care based on an appreciation of the parent experience. Design A narrative‐based, interpretive approach was undertaken in line with constructivist learning theory. Methods Twenty narrative interviews took place, with a total of 23 parents of premature babies. Following core story creation to create coherent stories from the raw transcripts, thematic analysis of the narrative constructs using the principles of Braun and Clarke's, International Journal of Qualitative Studies on Health and Well‐Being, 2014, 9, 1, framework was undertaken. The study methods were compliant with the consolidated criteria for reporting qualitative research (COREQ). Findings Thematic analysis revealed key themes relating to the following: parents’ emotions through the whole neonatal experience, feelings towards the baby, the environment, the staff and the transitions through the different phases of neonatal care. Both negative and positive experiences were reported. Conclusion Understanding the emotional experience from the parent's perspective, following birth of their premature baby, informs empathic, family‐centred teaching and learning within the neonatal education arena. Relevance to clinical practice Students and health professionals alike can learn what is important in the delivery of care that addresses the emotional needs of parents and families. Educators can use narratives and key messages from parents, both negative and positive, to teach family‐centred principles to nurses and health professionals as a core component of a narrative curricula and potentially to enhance empathy.

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Needs Perceived by Parents of Preterm Infants: Integrating Care Into the Early Discharge Process

Cited by 35 publications

References 31 publications

Experiences of Mothers of Extremely Preterm Infants after Hospital Discharge

Experiences of Mothers of Extremely Preterm Infants after Hospital Discharge

Associated factors for acute kidney injury in preterm infants

Understanding parents’ emotional experiences for neonatal education: A narrative, interpretive approach

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