Needs, Concerns, Strategies, and Advice of Stroke Caregivers the First 6 Months After Discharge

Background: Stroke is the leading cause of disability in adults, and has a significant impact on individuals, families, and society. Returning home after a stroke represents a challenging experience for patients who struggle to adapt to their new life conditions. Although many studies have been conducted on stroke survivors, few studies have focused on the lived experience of patients at three months after they came home after rehabilitation. Aims: The aim of this study was to describe the experience of stroke survivors three months after being discharged home from rehabilitation hospitals. Method: A phenomenological methodology was used to conduct the study. Participants were enrolled from rehabilitation hospitals in the cities of Rome and Naples. Interviews were conducted at the patients' house and data were analysed with a phenomenological approach Findings: Fifteen stroke survivors were interviewed (mean age 70 years; 12 males). Five themes emerged from the phenomenological analysis of the interviews and the field notes: deeply changed life, vivid memory of the acute phase of the stroke, slowed lives, relief after recovering from stroke, being a burden for family members. Conclusions:The results of this study give an overview of the experience of stroke survivors three months after being discharged home. From a clinical perspective, health care providers need to provide more interventions to help survivors to cope better with life changes and encourage them to adapt to daily life limitations caused by stroke. Also, health care providers should improve support provided to family members of stroke patients.

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“…Other researchers 14,37 have reported similar results, primarily emphasising that patients feared having another stroke.…”

Section: Discussionsupporting

confidence: 63%

The experience of stroke survivors three months after being discharged home: A phenomenological investigation

Simeone

Savini

Cohen

et al. 2014

European Journal of Cardiovascular Nursing

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“…Finances are mainly needed to transport the patient to and from the hospital for physiotherapy. Managing finances, adapting to a special diet, insufficient government funding and transporting the patient were identified in other studies as attributes to the need for additional finances as expressed by caregivers (Low et al 1999, Bakas et al 2002. No financial aid is available in Zambia, neither in the form of a caregiver grant nor a disability grant for the patient.…”

Section: Need For Financial Assistancementioning

confidence: 99%

Perceived needs of caregivers of stroke patients’ receiving out-patient physiotherapy treatment in Lusaka, Zambia

Khondowe

Rhoda

Mpofu

2007

South African Journal of Physiotherapy

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“…544 Thus, HCPs are strongly urged to respond to not only the needs of stroke survivors but also those of family caregivers throughout all phases of the rehabilitation process. 545 …”

Section: Family Caregiver Education and Supportmentioning

confidence: 99%

Comprehensive Overview of Nursing and Interdisciplinary Rehabilitation Care of the Stroke Patient

Miller¹,

Murray²,

Richards³

et al. 2010

Stroke

Self Cite

674

412

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Needs, Concerns, Strategies, and Advice of Stroke Caregivers the First 6 Months After Discharge

Cited by 155 publications

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The experience of stroke survivors three months after being discharged home: A phenomenological investigation

The experience of stroke survivors three months after being discharged home: A phenomenological investigation

Perceived needs of caregivers of stroke patients’ receiving out-patient physiotherapy treatment in Lusaka, Zambia

Comprehensive Overview of Nursing and Interdisciplinary Rehabilitation Care of the Stroke Patient

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