Perceived needs of caregivers of stroke patients’ receiving out-patient physiotherapy treatment in Lusaka, Zambia

Khondowe, Oswell; Rhoda, Anthea; Mpofu, Ratie

doi:10.4102/sajp.v63i1.122

Cited by 15 publications

(32 citation statements)

References 19 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A home or community-based rehabilitation approach would therefore be more appropriate for the management of these patients. The involvement and training of caregivers in the rehabilitation of the patient would be necessary and beneficial [ 36 ].…”

Section: Discussionmentioning

confidence: 99%

Provision of inpatient rehabilitation and challenges experienced with participation post discharge: quantitative and qualitative inquiry of African stroke patients

Rhoda

Cunningham

Azaria

et al. 2015

BMC Health Serv Res

View full text Add to dashboard Cite

BackgroundThe provision of rehabilitation differs between developed and developing countries, this could impact on the outcomes of post stroke rehabilitation. The aim of this paper is to present provision of in-patient stroke rehabilitation. In addition the challenges experienced by the individuals with participation post discharge are also presented.MethodsQualitative and quantitative research methods were used to collect data. The quantitative data was collected using a retrospective survey of stroke patients admitted to hospitals over a three- to five-year period. Quantitative data was captured on a validated data capture sheet and analysed descriptively. The qualitative data was collected using interviews from a purposively and conveniently selected sample, audio-taped and analysed thematically. The qualitative data was presented within the participation model.ResultsA total of 168 medical folders were reviewed for a South African sample, 139 for a Rwandan sample and 145 for a Tanzanian sample. The mean age ranged from 62.6 (13.78) years in the South African sample to 56.0 (17.4) in the Rwandan sample. While a total of 98 % of South African stroke patients received physiotherapy, only 39.4 % of Rwandan patients received physiotherapy. From the qualitative interviews, it became clear that the stroke patients had participation restrictions. When conceptualised within the Participation Model participation restrictions experienced by the stroke patients were a lack of accomplishment, inability to engage in previous roles and a perception of having health problems.DiscussionWith the exception of Rwanda, stroke patients in the countries studied are admitted to settings early post stroke allowing for implementation of effective acute interventions. The participants were experiencing challenges which included a lack of transport and the physical geographic surroundings in the rural settings not being conducive to wheelchair use.ConclusionStroke patients admitted to hospitals in certain African countries could receive limited in-patient therapeutic interventions. With the exception of barriers in the physical environment, stroke patients in developing countries where resources are limited experience the same participation restrictions as their counterparts in developed countries where resources are more freely available. Rehabilitation interventions in these developing countries should therefore be community-based focussing on intervening in the physical environment.

show abstract

Section: Discussionmentioning

confidence: 99%

Provision of inpatient rehabilitation and challenges experienced with participation post discharge: quantitative and qualitative inquiry of African stroke patients

Rhoda

Cunningham

Azaria

et al. 2015

BMC Health Serv Res

View full text Add to dashboard Cite

show abstract

“…This results in patients receiving minimal therapeutic interventions to assist with recovery due to lack of access to rehabilitation services. In addition, this further strengthens the need for home-based rehabilitation [111,112]. Due to low numbers of rehabilitation personnel and inaccessibility of communities, family caregivers are important among survivors of stroke.…”

Section: Community Management Of Strokementioning

confidence: 89%

Supporting Survivors of Stroke in Low Resource Settings

Kaseke¹,

Mlambo²,

Stewart³

et al. 2020

New Insight Into Cerebrovascular Diseases - An Updated Comprehensive Review

View full text Add to dashboard Cite

Stroke occurs suddenly and has major impact on both the survivor and their caregiver. A third of stroke victims usually die from its direct effects or complications. The survivors usually have functional deficits resulting in the need for caregiver support. The caregivers may have inadequate knowledge of how to care for their affected relatives. The result is high caregiver burden and complications among the survivors. Once a person has stroke, it becomes important that their caregivers and their needs are determined so that they get the necessary support from the health professionals. Education of both the stroke survivors and the caregivers, and follow-up to determine if their needs are being met may be the support required. This is important in low resource settings where the survivors and caregivers may not always afford to go to stroke clinics for support visits and follow-up. Furthermore, stroke will result in reduced quality of life, poor functional outcomes, and poor community reintegration, which are important areas in life. Caregivers who look after the survivor for long periods may suffer burnout and have poor quality of life. Educating both the stroke survivor and their caregiver may result in better quality of life and survival rate.

show abstract

“…The levels of strain associated with the burden of care experienced by informal stroke caregivers in a developing context such as South Africa are thought to be as high as between 43% and 58% Kleineibst 2007;. This burden of care manifests as physical, psychological, social and financial strain Khondowe, Rhoda & Mpofu 2017;Kleineibst 2007;Mthembu et al 2016;Sanuade & Boatemaa 2015;. Factors that influence the extent of the burden of care experienced include caregiver characteristics (e.g.…”

Section: The Burden Of Care Of Informal Caregivers Of Persons With Stroke Within An African Contextmentioning

confidence: 99%

“…This is compounded by a lack of training of the family members who need to fulfil the role of a primary caregiver to the person with stroke and places significant burden on families Kleineibst 2007;). The lack of family training adds to caregiver burden as families experience physical and emotional strain as they are not equipped with the basic handling and mobility skills to optimally assist the person with stroke within their home contexts Mthembu et al 2016;Khondowe et al 2017;Kleineibst 2007;). In South Africa, the trajectory of care is such that most persons with stroke do not receive inpatient rehabilitation as there are few specialised inpatient facilities ).…”

Section: The Burden Of Care Of Informal Caregivers Of Persons With Stroke Within An African Contextmentioning

confidence: 99%

“…Families may not own vehicles and the cost of hiring private transport is often high (Mortey 2017). Public transport is often inaccessible and expensive, especially in instances where persons with stroke are wheelchair users and they are then expected to pay for their seat as well as for the transportation of the wheelchair (Khondowe et al 2017). Kleineibst (2007) reported that within a peri-urban setting in South Africa, the lack of transport meant that family members pushed the persons with stroke to the community health centres (CHCs) in order for them to access the CBR services.…”

Section: The Burden Of Care Of Informal Caregivers Of Persons With Stroke Within An African Contextmentioning

confidence: 99%

See 1 more Smart Citation

Nurses’ perceptions of barriers to collaborative care of communication difficulties and dysphagia in persons with stroke

Bardien

Robbertse

Klop

et al. 2021

Human Functioning, Technology and Health

View full text Add to dashboard Cite

show abstract

Perceived needs of caregivers of stroke patients’ receiving out-patient physiotherapy treatment in Lusaka, Zambia

Cited by 15 publications

References 19 publications

Provision of inpatient rehabilitation and challenges experienced with participation post discharge: quantitative and qualitative inquiry of African stroke patients

Provision of inpatient rehabilitation and challenges experienced with participation post discharge: quantitative and qualitative inquiry of African stroke patients

Supporting Survivors of Stroke in Low Resource Settings

Nurses’ perceptions of barriers to collaborative care of communication difficulties and dysphagia in persons with stroke

Contact Info

Product

Resources

About