Navigating the landscape of child disability measurement: A review of available data collection instruments

Молодь З Особливими Потребами: Психологічні Аспекти Медико-Соціальної Експертизи

“…Також модель ICF-CY не визнає віктимізацію будь-якого типу як бар'єр середовища для участі мо-лодих людей [11]. Це виключення важливе тому, що немає даних, які дозволили б побачити, що молодь з обмеженими можливостями буде відрізнятися від здорової молоді, яка внаслідок віктимізації стає більш соціально ізольованою, має більше труднощів з підтрим-кою близьких та однолітків, а також має менше шансів брати участь у спортивних та інших суспільних видах діяльності [12]. Молоді люди, які не беруть участь у рекреаційних та інших структурних заходах, частіше мають погану фізичну підготовку, ожиріння та емоційні й поведінкові проблеми.…”

Population profiles associated with severe functioning difficulties and disability among two to four years old children in Mexico

“…7 The Global Burden of Disease measures children's disabilities from 0 to 14 years, estimating that 95 million children (5.1%) live with disabilities, of whom 13 million (0.7%) live with severe disability. 4 Results from the World Health Survey indicate higher disability prevalence in lower income countries as compared to higher income countries. People from the poorest wealth quintile have a higher prevalence of disability.…”

“…5 In addition, there is agreement among experts that measuring disability among children is particularly complicated given the developmental processes that occur at such young age that are inherent to normal child function limitations (e.g., independent washing, dressing). 4 The lack of reliable and representative national and global estimates has contributed to a lack of visibility of the needs of the disabled population and to an absence of evidence for legislation and policy-making. According to the World Health Survey from WHO, around 785 million (15.6%) persons 15-years and older live with disability.…”

“…2 Challenges in producing reliable and comparable disability data are well documented, mostly due to a lack of consistent definitions and indicators along major differences in the study designs and methodologies. 3,4 In general, disability data gathered through censuses and household national surveys has been found to under-enumerate disabled subjects. 5 In addition, there is agreement among experts that measuring disability among children is particularly complicated given the developmental processes that occur at such young age that are inherent to normal child function limitations (e.g., independent washing, dressing).…”

“…15 Our study has some important strengths and limitations. Disability measurement at the population level is challenging due to the lack of consistent definitions and harmonized data collection methodologies, 4 often resulting in bias by low sensitivity and underreporting. 16 In recent years, there has been a call at the global and regional levels for the adoption of a standardized and comparable definition of disability that enables the estimation of population prevalence and disaggregation according to key characteristics.…”