Narrative(,) citizenship and dementia: The personal and the political

Baldwin, Clive

doi:10.1016/j.jaging.2007.04.002

Cited by 98 publications

(104 citation statements)

References 24 publications

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“…Echoing Baldwin's (2008) narrative citizenship and the notion that we know of ourselves and others from within inter-related social and physical spaces and places, our findings illustrate the complexity of everyday relationships and attachments to, with and between people and place. For some participants, familiarity with people and places can help in coping with changes and transitions.…”

Section: People and Placementioning

confidence: 66%

Narrative citizenship, resilience and inclusion with dementia: On the inside or on the outside of physical and social places

Clarke

Bailey

2016

Dementia

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There has been little research that addresses the importance of place in enabling resilience and citizenship -most to date focussing on these as a characteristic of the individual. This paper reports on findings from a qualitative study that aimed to explore the everyday experiences of living with dementia within rural and semi-urban communities. Data collection included a sequence of four research diaries and interviews with 13 families living at home with dementia and interviews with service providers and commissioners (a total of 57 diaries, 69 interviews with people living with dementia and 6 interviews with service providers and commissioners). Key themes identified included: Others Knowing and Responding; Socially Withdrawing and Feeling Excluded; Sustaining and Changing Activities;Belonging and Estrangement from Place; Engaging Services and Supports.The study found that familiarity with people and place can be supportive, and these factors support a narrative citizenship in which people can tell a story of inclusion and feeling on the inside. However, this familiarity with place may also create a social barrier and a sense of estrangement, or being on the outside. Narrative citizenship allows us to explore how people with dementia position themselves in relation to others and in so doing, negotiate their own and other's understandings of dementia. It also allows for people to tell stories about themselves in relation to their sense of belonging in a social and physical place, which augment the personal and political approaches to citizenship and thus offers an approach that enhances individualised yet collective understandings of living with dementia.

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Section: People and Placementioning

confidence: 66%

Narrative citizenship, resilience and inclusion with dementia: On the inside or on the outside of physical and social places

Clarke

Bailey

2016

Dementia

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“…: 46). Baldwin's (2008) work on the narrative dispossession of people with dementia also has features in common with Fricker's concept of testimonial injustice; the stories of individual people with dementia are disbelieved and discounted because they are judged incompetent by virtue of their diagnosis.…”

Section: Epistemic Injustice and Dementiamentioning

confidence: 99%

Challenging representations of dementia in contemporary Western fiction film. From epistemic injustice to social participation

Capstick¹,

Chatwin²,

Ludwin³

2015

Popularizing Dementia

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“…(See also Brannelly, 2011aBrannelly, , 2011b. Baldwin (2008) draws attention to yet another aspect of citizenship as practice, that of narrative citizenship. Citizenship practice has also been conceptualized by Nedlund and Nordh (2015) who draw on elements of policy narratives to reveal the important aspect of power in order to participate and influence the shaping of policies, the crafting of citizens and the space in which citizenship is continuously practiced.…”

mentioning

confidence: 99%

“…They contribute to the literature by drawing attention to the practices of social citizenship across the everyday while simultaneously exploring innovative research processes that are congruent with a citizenship lens. Dupuis et al draw on narrative citizenship (Baldwin, 2008) to outline a community-based, critical arts-based research approach for creating alternative narratives of dementia that transcend the dominant ''tragedy'' discourse with its underlying assumptions of loss and deterioration. Wiersma et al discuss a participatory-action research project that lead to unexpected questions around the inclusion of care-partners in self-management programs in relation to ideas of citizenship, empowerment and community.…”

mentioning

confidence: 99%