My Child has Cancer: The Costs of Mothers' Experiences of Having a Child with Pediatric Cancer

Fletcher, Paula C.

doi:10.3109/01460862.2010.498698

Cited by 47 publications

(62 citation statements)

References 12 publications

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“…In both scenarios, childhood cancer and autism, families talk about the extensive cost to family resources (e.g. time, emotional and financial) searching for causes and cures (Fletcher, 2010;Kelly & Ganong, 2011). Yet, while similarities exist between identified family experiences, challenging, unpredictable behaviors and difficulties with social relatedness may present greater risk to family occupation.…”

Section: Discussionmentioning

confidence: 99%

Families' Experiences and Occupations Following the Diagnosis of Autism

DeGrace

Hoffman

Hutson

et al. 2014

Journal of Occupational Science

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Section: Discussionmentioning

confidence: 99%

Families' Experiences and Occupations Following the Diagnosis of Autism

DeGrace

Hoffman

Hutson

et al. 2014

Journal of Occupational Science

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“…En cuanto a los sentimientos, los cuidadores familiares de niños con cáncer afrontan un gran impacto en su esfera emocional, lo que desencadena depresión, estrés (Bennett et al, 2013;Choi et al, 2016;Nam et al, 2016), mala calidad de vida, ansiedad (Nóbrega y Pereira, 2011), sobrecarga (Montero-Pardo et al, 2015) y sentimientos adversos como agitación, pérdida, temor, preocupación, incertidumbre, angustia, rabia, dolor, desesperación, miedo y desesperanza (Björk et al, 2015;Comaru y Monteiro, 2008;Fletcher, 2010;Flury et al, 2015;Gelesson et al, 2009;Gibbins et al, 2012;Granek et al, 2014;Vrijmoet-Wiersma et al, 2008;Silva et al, 2011;Taleghani et al, 2012;Wong y Chan, 2006).…”

Section: Insuficiencia Del Rol De Cuidador Del Niño Con Cáncerunclassified

Cuidador familiar del niño con cáncer: un rol en transición

Carreño-Moreno

Díaz

Blanco-Sánchez

2017

Rev. latinoam. bioet

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Convertirse en cuidador familiar de un niño con cáncer implica ejercer un nuevo rol, el cual se construye en la interacción con otros significativos. Objetivo. Integrar los hallazgos derivados de investigación que evidencian que el ser cuidador de un niño con cáncer denota un rol en transición. Materiales y métodos. Revisión integrativa de literatura que incluyó búsqueda sistemática de literatura, lectura crítica de las publicaciones, integración de hallazgos con apoyo en Atlas Ti versión 7 en un proceso de comparación constante; 46 artículos constituyeron el insumo para la revisión. Resultados. El cuidador del niño con cáncer pasa por una transición de su rol, la cual es de tipo salud – enfermedad, que se caracteriza por tener un patrón múltiple, simultáneo y relacionado. Con frecuencia el cuidador presenta insuficiencia de su rol durante la transición, por lo que intervenir sobre el conocimiento y preparación para el ejercicio del rol es clave. Los cuidadores familiares que han recibido apoyo para el ejercicio de su rol, mejoran sus habilidades para resolver problemas y conocimientos acerca del cuidado, lo que impacta en su calidad de vida, estado de ánimo y resultados de salud en su receptor de cuidados. Conclusión. Se requieren intervenciones para mejorar las condiciones de transición en el rol del cuidador de niño con cáncer, preparar al cuidador para ejercer su rol con suficiencia mejora sus resultados y los de su receptor de cuidados.

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“…[1][2][3][4][5][6][7] While much work has been invested in studying the effects of cancer on the child, it is also important to understand the effects of a pediatric cancer diagnosis on individuals close to the children -particularly immediate family members, such as parents and siblings. Previous research has described both costs and benefits of a pediatric cancer diagnosis, although the majority of research is negative in nature.…”

Section: Introductionmentioning

confidence: 99%

“As long as you need me I’m yours.” Caregiving for a pediatric cancer survivor

Molinaro

Fletcher

2016

Clinical Nursing Studies

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A pediatric cancer diagnosis is devastating -to children, as well as their families. Children experience a variety of negative effects, whether physical, cognitive, and/or emotional, and often face continued or newly developed effects l past remission termed late effects. However, it is imperative to note that support persons, or caregivers of survivors of pediatric cancer, are also affected by their caregiver roles as they help their survivors cope with their late effects. This study aimed to understand how caring for pediatric cancer survivors influences facets of caregivers lives. Nine primary support persons of pediatric cancer survivors (as chosen by the survivors they care for) participated in one-on-one, semi-structured interviews, in which they discussed their roles in caring for a pediatric cancer survivor, and how being a support person has affected their lives. A total of four themes emerged from the research, but for the purposes of this paper only the theme "As long as you need me I'm yours" will be discussed. From this theme, two subthemes emerged: (1) "Do their effects affect me?" and (2) "You realize what's important and it sticks with you." Support persons experienced negative emotional and cognitive effects, such as worrying or feelings of anxiety for their survivors, but also admitted to finding silver linings in their experiences. As well, caregivers expressed that they have developed stronger relationships with their survivors and family, in addition to developing newly optimistic outlooks on life. This work provides valuable information for policy makers and health care professionals to ensure that adequate supports and resources are available to caregivers for the multifaceted needs they may have in supporting pediatric cancer survivors.

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My Child has Cancer: The Costs of Mothers' Experiences of Having a Child with Pediatric Cancer

Cited by 47 publications

References 12 publications

Families' Experiences and Occupations Following the Diagnosis of Autism

Families' Experiences and Occupations Following the Diagnosis of Autism

Cuidador familiar del niño con cáncer: un rol en transición

“As long as you need me I’m yours.” Caregiving for a pediatric cancer survivor

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