Motivations for Participation in an Online Social Media Community for Diabetes

White, Katherine; Gebremariam, Achamyeleh; Lewis, Dana; Nordgren, Weston; Wedding, James; Pasek, Josh; Garrity, Ashley; Hirschfeld, Emily; Lee, Joyce M.

doi:10.1177/1932296817749611

Cited by 52 publications

(63 citation statements)

References 16 publications

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“…Findings were similar to a national survey of the general population [30] and another specialty DOC study [43]. There were marked differences in participants who weren't sure if they were helped or harmed by the DOC, which warrants further study.…”

Section: Principle Findingssupporting

confidence: 76%

“…There were marked differences in participants who weren't sure if they were helped or harmed by the DOC, which warrants further study. Although additional information about harm was not asked in this study, our findings, and findings of others [43] who explored help and harm in a similar way suggest DOC use is beneficial with low risk. It is important to note that online peer health may not be helpful for all individuals with diabetes [49].…”

Section: Principle Findingssupporting

confidence: 62%

“…However, we found that DOC users found information from their healthcare providers to be more competent and trustworthy than the information found on the DOC. In contrast, a research specific to one type of DOC focused on patient-driven diabetes innovation with membership of mostly individuals with type 1 diabetes found that peers were reported to be more trustworthy than healthcare providers [43]. Perhaps this can be explained by the difference between a general DOC and a specialty DOC or the presence of various types of diabetes in the DOC we studied compared to type 1 only.…”

Section: Principle Findingsmentioning

confidence: 63%

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Perceptions of the Diabetes Online Community’s Credibility, Social Capital, and Help and Harm: Cross-Sectional Comparison Between Baby Boomers and Younger Adults (Preprint)

Litchman¹,

Edelman²

2018

Preprint

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BACKGROUND The use of online health communities such as the diabetes online community (DOC) is growing. Individuals who engage in the DOC are able to interact with peers who have the same medical condition. It is not known if older adults are perceiving the DOC differently compared with younger adults. OBJECTIVE The purpose of this study was to explore and understand how the DOC is perceived in terms of social capital, source credibility, and help and harm. The findings from this study will shed light on how users of different age groups (baby boomers and younger adult counterparts) perceive DOC use. METHODS This study represents a subset of participants from a larger study of DOC users. Baby boomers and younger adults with diabetes were recruited from the DOC to participate in a cross-sectional survey. Demographics, electronic health use (reasons to join the DOC, DOC intensity, DOC engagement, internet social capital, and help or harm from the DOC), source credibility, health-related quality of life, and diabetes self-care data were collected. We examined the differences between baby boomer and younger adult responses. RESULTS The participants included baby boomers (N=76) and younger adult counterparts (N=102). Participants scored their diabetes health care team (mean 33.5 [SD 8]) significantly higher than the DOC (mean 32 [SD 6.4]) with regard to competence (<italic>P</italic><.05) and trustworthiness (diabetes health care team mean 36.3 [SD 7.1]; DOC mean 33.6 [SD 6.2]; <italic>P</italic><.001). High bonding and bridging social capital correlated with high DOC intensity (<italic>r</italic>=.629; <italic>P</italic><.001 and <italic>r</italic>=.676; <italic>P</italic><.001, respectively) and high DOC engagement (<italic>r</italic>=.474; <italic>P</italic><.01 and <italic>r</italic>=.507; <italic>P≤</italic>.01, respectively). The greater majority (69.8%) reported the DOC as being helpful, and 1.8% reported that the DOC had caused minor harm. Baby boomers perceived DOC credibility, social capital, help, and harm similarly to their younger adult counterparts. CONCLUSIONS Baby boomers are using and perceiving the DOC similarly to younger adults. DOC users find the DOC to be credible; however, they scored their health care team higher with regard to competence and trustworthiness. The DOC is beneficial with low risk and may augment current diabetes care.

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Section: Principle Findingssupporting

confidence: 76%

Section: Principle Findingssupporting

confidence: 62%

Section: Principle Findingsmentioning

confidence: 63%

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Perceptions of the Diabetes Online Community’s Credibility, Social Capital, and Help and Harm: Cross-Sectional Comparison Between Baby Boomers and Younger Adults (Preprint)

Litchman¹,

Edelman²

2018

Preprint

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“…In this study, we measured the characteristics of exchange of social support among patients with diabetes in online diabetes groups, with a focus on high-risk and critical groups. The online behavior scale for populations with diabetes [17][18][19][20][21][22][23] was adapted to a Chinese population of online-group users through a pretest. The overall alpha coefficient value of the data is 0.978, the alpha coefficient value of the social support part is 0.908, and the KMO value (Kaiser-Meyer-Olkin value) is 0.944.…”

Section: Recruitmentmentioning

confidence: 99%

Social Support and User Characteristics in Online Diabetes Communities: An In-Depth Survey of a Large-Scale Chinese Population

Liang

Fan

2020

IJERPH

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Objective: To determine the characteristics of members of online diabetes communities as well as those factors affecting the provision and acceptance of social support. Methods: A cross-sectional STAR questionnaire survey was conducted among patients with diabetes who were members of online diabetes groups. Univariate and multivariate binary logistic regression analysis were adopted to explore the relative analysis of providing and accepting social support compared with the characteristics of members in virtual diabetics' groups. Results: A total of 1297 respondents were collected. The map distribution of patients in China was mainly located in the Guangdong, Jiangsu, Shandong, Henan, and Hebei provinces. As for their demographic characteristics, respondents had diabetes or prediabetes and were between the ages of 21 and 50 years (Median age was 35.0 (interquartile range from 28.0 to 44.0)). Most respondents were married and lived in cities. The education level of patients was mainly distributed throughout junior high, technical secondary, high school, junior college, and undergraduate levels. Age, marital status, and education level varied by gender, and the total score of the patients aged 41 to 50 for social support had a statistical significance between male and female. In addition, when group members were in junior high school or below, or were undergraduate students, their total social support scores varied by gender. Binary logistic regression showed that in 21 independent variables the total score and the total score grade of relationship intensity in the online group and reorganize of age were significant. The patients' social support acceptance of the map of respondents score grading of relationship intensity in the online group was 5.420 times higher than that of the lower score grading of relationship intensity in the group. At the same time, the patients' social support acceptance of the patients at the age of less than or equal to 31 years old was 19.608 times higher than that of group members aged more than 31 years old. Conclusion: Age and education background of the patients affects scores of social supports between males and females. The higher the total score and the score grade of relationship intensity in the online group, the higher the patients' social support acceptance. The younger patients had a better utilization of social support.

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“…Um grupo de pesquisa, situado nos Estados Unidos (Pew Research Center, 2017), reportou que 25% das pessoas que utilizam a internet são portadores ou possuem algum parente com alguma condição crônica de saúde. Com o auxílio das redes sociais e mídias digitais, eles buscam por pessoas -que têm a mesma condição de saúde ou similare grupos para a troca de informações e experiências sobre a doença e tratamento (Brownstein, Brownstein, Willians, 2009;Frost, 2011;Bousso et al, 2014;Lin, Zhang, Li, 2016), fazendo desses espaços virtuais importantes para os usuários, porque recebem suporte social e emocional (Greene et al, 2014;Matusitz, 2014;Pew Research Center, 2017;White et al, 2018).…”

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Compreendendo a relação de adolescentes, em cuidados paliativos, com o ciberespaço

Borghi¹

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DEDICATÓRIA Aos que se foramAos que estão Aos que chegaram E aos que chegarão... Muito amor, gratidão e saudade! AGRADECIMENTOS Agradeço a Deus, por estar sempre ao meu lado em todas minhas conquistas e por sempre ter estendido sua mão após meus tropeços (e não foram poucos).Gostaria de agradecer aos adolescentes e seus familiares que não só aceitaram participar desta pesquisa, mas me ajudaram a construí-la com toda a atenção e dedicação.Sempre me perguntavam sobre meu trabalho e também quando eu precisava de alguma informação me respondiam prontamente -pelas redes sociais, plataformas virtuais de mensagens instantâneas e até nos corredores do hospital... Vocês são sensacionais! Este trabalho não é só meu, mas nosso! Muito Obrigada! Agora, meu "muito obrigada" vai para a Prof.ª Dr.ª Regina Szylit que me acolheu e acreditou em meu potencial. Você sempre foi meu espelho de pesquisadora, professoraagora titular -, profissional, enfermeira, mãe e mulher!!! Agradeço aos meus pais por terem me dado todo o suporte durante minha trajetória acadêmica e por todos os momentos de minha vida -sem vocês eu não seria nada, nada mesmo! Obrigada por tudo, até pelas broncas! Saibam que vocês me ensinaram a acreditar em mim e a nunca desistir quando alguma dificuldade aparecesse. Hoje, a mulher e a profissional que me tornei foi devido a vocês... Obrigada!!! À Giovanna, minha irmã, minha ídola, minha companheira, obrigada por sempre ter me apoiado em minhas escolhas, me ajudado e me xingado -quando eu precisava! Você sempre foi e será a mais compreensível, a mais atenciosa e a mulher/pessoa/mãe que sempre vou tentar ser (sim, sou a caçula e sempre vou querer ser igual à você). Obrigada também por você ter me dado o Mathias como sobrinho e o Henrique como meu "quase" irmão. Aos meus avós, Walter, Maria, Guilhermino e Elva, que estão orgulhosos e muito felizes, onde quer que estejam... Saudades. Às minhas madrinhas Nanci e Zaíra e padrinhos, Nelson e Odir, aos meus tios Edson, Edena, Manuel, Lilian, Paula e Ricardo e aos meus queridos primos, Manueli, Obrigada, por sempre terem se importado. Agradeço à Thaís, minha amiga desde sempre, que nunca me largou e que aos menores gestos me fez ter certeza da importância em tê-la em minha vida... Obrigada por você ser assim, a melhor amiga que alguém pode ter! Às minhas "educandinhas", em especial à Priscilla, Juliana, Gabriela, Renata, Ayodele, Muriel, Tabata, Nabyrie, Nely, por serem minhas amigas e companheiras sempre. Sem o apoio de vocês e os convites para nos vermos -mesmo não sendo concretizados na maioria das vezes -nada disso teria acontecido. Obrigada por vocês serem quem são e desculpe-me por ter sido tão ausente. Por falar em educandinhas, não posso esquecer de meus professores e às irmãs, do Educandário São Paulo da Cruz por terem me educado para a vida, cultivando o valor, em um ambiente de amor! Às minhas amigas, companheiras indispensáveis, Lívia, Thaís, Danusa, Tamiris e Tabata RF, obrigada pela força, torcida e por vocês sempre estarem ao meu lado, sem vocês eu não seria na...

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Motivations for Participation in an Online Social Media Community for Diabetes

Abstract: Our findings suggest that patients with diabetes and their caregivers use social media for many health-related purposes including medical recommendations and technical support for medical devices and systems as well as emotional support.

Cited by 52 publications

References 16 publications

Perceptions of the Diabetes Online Community’s Credibility, Social Capital, and Help and Harm: Cross-Sectional Comparison Between Baby Boomers and Younger Adults (Preprint)

Perceptions of the Diabetes Online Community’s Credibility, Social Capital, and Help and Harm: Cross-Sectional Comparison Between Baby Boomers and Younger Adults (Preprint)

Social Support and User Characteristics in Online Diabetes Communities: An In-Depth Survey of a Large-Scale Chinese Population

Compreendendo a relação de adolescentes, em cuidados paliativos, com o ciberespaço

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