Modern Approaches to the Assessment of the Disorder of Functioning in Disabled Children in Terms of the Quality of Life

Vinyarskaya, I.V.; Terletskaya, R. N.; Chernikov, V.V.; Antonova, E.V.; Алексеева, Е. И.; Фетисова, А. Н.; Басаргина, Е. Н.; Симонова, О.И.; Gorinova, Yu. B.; Savva, N. N.

doi:10.18821/1560-9561-2019-22-3-176-181

Cited by 6 publications

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“…Буковский, Д. Сандберг и др. считают, что качество жизни детей отражается в их образе жизни и качестве здоровья [2]. Этот важный, по мнению авторов, концепт предполагает создание условий для того, чтобы семья имела достойное материальное благосостояние, хорошее жилищное обеспечение, возможности для свободного времени, нормальную окружающую среду, отсутствие антиобщественных явлений и т.д.…”

Section: обсуждение результатовunclassified

Quality of Life During Childhood as a Socio-Psychological Phenomenon

Zakirova

Valeeva²

2022

RJEP

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Relevance. The study of the quality of life is one of the current trends in the field of sociology, psychology, pedagogy, medicine and other sciences. Considering the essence of the quality of life of children, we note that today it is an interdisciplinary concept that characterizes all aspects of a child’s life: the level of intellectual and physical development; the degree of satisfaction of material and social needs; ensuring the safety of life, etc. Thus, the quality of life of children covers their physical, psychological and social health, as well as their perception of their place in society. The aim of the study was to study the quality of life during childhood through the prism of the mental states of children in parents with different levels of satisfaction with marriage. Research methods. In the course of the study, a theoretical analysis of psychological and pedagogical literature was carried out, which made it possible to clarify the depth and relevance of the problem of quality of life during childhood. An empirical study of the mental states of preschoolers and satisfaction with their parents’ marriage was conducted using the testing method. Quantitative and qualitative processing of the results was carried out on the basis of SPPS statistical programs. Results. As a result of empirical research, we have revealed that in families with a low degree of satisfaction with marriage, children, as a rule, have a negative mental state and, accordingly, in families with a high degree of satisfaction with marriage, children, as a rule, have a positive mental state. Unsatisfactory child-parent relationships provoke the emergence of more complex disorders in older age, contribute to the formation of various character accentuations in adolescence and a negative assessment of the quality of their lives, and therefore need adjustment aimed at parents’ awareness of their attitude to children. It is from the period of childhood that the value uniqueness of the child begins to take shape, which is realized in a special cultural and social reality, where childhood and adulthood are differentiated. During this period, children are already beginning to enter the social space, participating in a certain subculture of childhood, showing the acquired skills of socialization, and hence the corresponding quality of life. In the socio-psychological context, the structure of the family and the system of “parents-children” relationships are of great importance. Therefore, in the content of the upbringing of children, the conditions of the child’s development and the quality of his life, there are certain differences between families who are satisfied or not satisfied with their marriage. However, with all the differences in the quality of life of children, their mental states are associated with factors such as instability of marriage, low-income family, drinking in the family, constant conflicts in the family, the presence of people in the family who have offenses, etc. The field of application. The article will be useful for teachers and students of pedagogical universities studying in the areas of “Preschool pedagogy and psychology”, as well as managers and educators of preschool institutions.

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Section: обсуждение результатовunclassified

Quality of Life During Childhood as a Socio-Psychological Phenomenon

Zakirova

Valeeva²

2022

RJEP

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Possibilities of the Health Utilities Index questionnaire in assessing the quality of life of children with disabilities

Vinyarskaya

Terletskaya²,

Chernikov³

et al. 2022

Kazan Med J

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Background. Currently, in the Russian Federation, the criteria for establishing disability do not take into account the assessment of the quality of life, while in developed countries this indicator is a mandatory component of examination programs and evaluation of the effectiveness of treatment and rehabilitation. In Russian pediatrics, research on the development of indicators of the quality of life in children with chronic disabling diseases has begun, this work is a continuation of this direction. Aim. To assess the quality of life of disabled children with various somatic diseases using all the possibilities of the Health Utilities Index questionnaire. Material and methods. A survey of 213 patients aged 5 to 18 years with chronic diseases with the status of a disabled child and their legal representatives was conducted using the Russian version of the international general questionnaire Health Utilities Index. Statistical analysis was performed using the SPSS software package version 26.0. The KruskalWallis test and Dunn's posterior test were used. Results. During the study, multi-attribute utilitarian indices were developed for each group of children, which ranged from 0.670.3 (95% confidence interval 0.550.78) in patients with rheumatological diseases to 0.850.21 (95% confidence interval 0.790.91) in children with heart disease and statistically significantly (p 0.001) were lower than in healthy children (0.90.17; 95% confidence interval 0.870.92). The features of one-attribute utilitarian indices depending on the class of the disease have been established. An analysis of the level and degree of functioning disorders showed that the most common and frequent for children with disabilities in the studied groups were emotional disorders; problems associated with the presence of pain; disability caused by a sense of cognitive deficit. For the first time, to determine the categories of the severity of violations an approach according to a multi-attribute utilitarian index was used. Conclusion. The quality of life in children with disabilities, reduced compared to healthy peers, has nosological features; the most pronounced decrease in the quality of life was noted in children with skin diseases and rheumatological diseases.

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Current Aspects of Autism Prevalence Among Children of Different Age Groups

Terletskaya

Kuzenkova

Vinyarskaya

et al. 2020

RPJ

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Introduction. Knowledge of the prevalence of autism in children is a prerequisite for the organization of medical and social care for this population of patients. Aim: to determine the prevalence of autism among the children of the Russian Federation of different age groups according to official statistics. Materials and methods. An analysis of official data on the incidence and prevalence of disability in autism in children of different age groups (0-4 years, 5-9, 10-14 and 15-17 years) for the period 2016-2018 was carried out. The share of autism in the structure of morbidity and disability caused by mental disorders and behavioral disorders was determined. Results. There has been an increase in cases of autism diagnosis among the child population, extremely significant among adolescents aged 15-17. The age structure of autism cases has changed - the proportion of children aged 0-4, 5-9 and the proportion of adolescents aged 15-17 has significantly decreased. The prevalence of autism-related disability compared to morbidity has not increased as significantly. Its highest rates were among children aged 5-9. Due to the sharp increase in autism cases, the proportion of persons with disabilities among them has decreased several times. The incidence of autism in the structure of morbidity and disability caused by mental disorders and behavioral disorders in children aged 0-17 has increased. Conclusion. The obtained data can be used in the organization of medical and social care for children suffering from autism. The need for special epidemiological studies to determine the true prevalence of autism in children seems relevant.

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Modern Approaches to the Assessment of the Disorder of Functioning in Disabled Children in Terms of the Quality of Life

Cited by 6 publications

References 0 publications

Quality of Life During Childhood as a Socio-Psychological Phenomenon

Quality of Life During Childhood as a Socio-Psychological Phenomenon

Possibilities of the Health Utilities Index questionnaire in assessing the quality of life of children with disabilities

Current Aspects of Autism Prevalence Among Children of Different Age Groups

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