Mobile health in adults with congenital heart disease: current use and future needs

Schuuring, Mark J.; Backx, A.P.C.M.; Zwart, Ronald; Veelenturf, A.H.M.; Robbers‐Visser, Daniëlle; Groenink, Maarten; Abu‐Hanna, Ameen; Bruining, Nico; Schijven, Marlies P.; Mulder, Barbara J.M.; Bouma, Berto J.

doi:10.1007/s12471-016-0901-z

Cited by 26 publications

(19 citation statements)

References 20 publications

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“…Despite its potential, difficulties in implementation prevent mHealth solutions to be fully embedded in real-world settings (15). A recent study on the readiness of patients with congenital heart disease to adopt mHealth in their care shows the majority to be willing to use mHealth (16). However, only a small portion used mHealth in their care.…”

Section: Introductionmentioning

confidence: 99%

Toward Integration of mHealth in Primary Care in the Netherlands: A Qualitative Analysis of Stakeholder Perspectives

Bally

Cesuroğlu

2020

Front. Public Health

101

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Background: There is a growing need to structurally change the way chronic illness care is organized as health systems struggle to meet the demand for chronic care. mHealth technologies can alter traditional approaches to health care provision by stimulating self-management of chronically ill patients. The aim of this study was to understand the complex environment related to the introduction of mHealth solutions into primary care for chronic disease management while considering health system functioning and stakeholder views.Methods: A transdisciplinary approach was used informed by the Interactive Learning and Action (ILA) methodology. Exploratory interviews (n = 5) were held with representatives of stakeholder groups to identify and position key stakeholders. Subsequently, professionals and chronically ill patients were consulted separately to elaborate on the barriers and facilitators in integration, using semi-structured interviews (n = 17) and a focus group (n = 6). Follow-up interviews (n = 5) were conducted to discuss initial findings of the stakeholder analysis.Results: Most stakeholders, in particular primary care practitioners and patients, seem to have a supporting or mixed attitude toward integration of mHealth. On the other hand, several powerful stakeholders, including primary care information system developers and medical specialists are likely to show resistance or a lack of initiative toward mHealth integration. Main barriers to mHealth integration were a lack of interoperability with existing information systems; difficulties in financing mHealth implementation; and limited readiness in general practices to change. Potential enablers of integration included co-design of mHealth solutions and incentives for pioneers.Conclusion: Stakeholders acknowledge the benefits of integrating mHealth in primary care. However, important barriers perceived by end-users prevent them to fully adopt and use mHealth. This study shows that the complexity of introducing mHealth into primary care calls for strategies encouraging collaboration between multiple stakeholders to enhance successful implementation.

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Section: Introductionmentioning

confidence: 99%

Toward Integration of mHealth in Primary Care in the Netherlands: A Qualitative Analysis of Stakeholder Perspectives

Bally

Cesuroğlu

2020

Front. Public Health

101

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“…Many grown up congenital heart disease (GUCH) patient are lifelong affected by cardiac events, particularly arrhythmias and heart failure [1][2][3][4][5]. Despite lifelong surveillance these patients often deteriorate, which we often notice too late, leading to emergency care presentations, hospitalizations and death.…”

Section: Introductionmentioning

confidence: 99%

“…A questionnaire study was performed amongst GUCH patients in order to determine whether these patients were using mHealth, and whether they were interested in starting to use mHealth. Interestingly, only a small minority of GUCH patients used mHealth, and the large majority was willing to start using it [1]. Because of this urgent need to improve clinical outcome, the appealing technique of mHealth, and proven motivation of patients a research study on application of mHealth in GUCH patients was warranted.…”

Section: Introductionmentioning

confidence: 99%

A successful crowdfunding project for eHealth research on grown-up congenital heart disease patients

Koole

Kauw

Winter

et al. 2018

International Journal of Cardiology

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a b s t r a c tBackground: Scarce data on crowdfunding report a maximal funding of €10.000,-, and state that research is needed to attract attention of larger granting organizations. The aims of this project were 1) to fund an eHealth study in grown-up congenital heart disease (GUCH) patients 2) to contemplate on critical success factors. Methods: After peer review of the Dutch Heart Foundation a project was published at a donation platform, which was open for donations during a predetermined period of two months. Copywriters were hired to create an easy-to-understand message to donors. A video teaser was created with a motivated patient, and rewards were available. The crowdfunding targeted €25.000 and the Dutch Heart Foundation doubled the donations to €50.000, and return of donations were guaranteed in case this was not met. Results: Initially, donations came from the investigators' private inner circle. In total, 44 potential donors were contacted, but refused to donate originally. Multiple (social) media campaigns were published to promote the project, and an offline mailing was sent to contributors to the Dutch Heart Foundation. During the project support emerged, resulting in extra donations and public awareness. In the lasts three weeks, after sufficient private donations, five major donors decided to support the project. The project became a big success: the predetermined target was exceeded and a total of €74.450,was raised. Conclusion: Innovative crowdfunding gave the opportunity to start eHealth research in GUCH patients. Critical success factors include support of a professional organization, support of stakeholders, and easy-to-understand messages.

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“…Current mHealth apps can be categorised in terms of individual prevention disease [14][15][16][17][18][19][20][21][22][23], personal health safety [24], improving health [25,], improving well-being [26][27][28][29], and giving advice on response to treatment [30]. Evidently, many of available mHealths apps on the market are not grounded in theory.…”

Section: Resultsmentioning

confidence: 99%

“…Thus, mHealth technology is an alternative for cost effective health support. The review of this study also discover that mHealth researchers and publishers have focused more on individual prevention diseases (Table 1) such as selfmanagement for diabetes [14,15], gout [16], chronic obstructive pulmonary disease [17], bipolar disorders [18] and bowel disease [19], stroke [20,21] heart disease [22] and flu [23]. Article [23] presented HHeal, an app which integrates flu risk information and flu preventive behaviors, which provide a personal flu risk bar that arises when a user is near someone with flu-like symptoms and drops when the user finishes one of the suggested flu-preventive behaviors.…”

Section: Trends Of Mhealth Appsmentioning

confidence: 86%

A Survey on Trend, Opportunities and Challenges of mHealth Apps

Jusoh

2017

Int. J. Interact. Mob. Technol.

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Abstract-Advancement of mobile technologies such as smartphones and PC tablets has given a great impact on healthcare systems. The mobile technology offers innovative approaches to addressing complex health concerns. Many mobile health applications (mHealth apps) are currently available on marketplaces. These apps are designed to facilitate various health issues and problems, and are intended to be used outside clinics. However, very little research has been conducted to address trend, opportunities, and challenging issues of the apps. The purpose of this study is to investigate the current state of mHealth. A literature survey was conducted. Major findings of this study include, smartphones will be the major platform for mHealth apps, the number of published software is much higher than published scientific research, current mHealth apps lacking in grounded based theory and evaluation, and security and usability issues are still vulnerable. The findings suggest that involvement of all healthcare stakeholders is critical to the success of mHealth apps.Keywords-mHealth apps; mobile computing; smartphoness IntroductionMobile technology has changed and will continue to change the life of millions of people around the globe. It is a technology which allows a computing device not to be connected to any fixed physical link. Examples of mobile computing devices are smartphones, laptops, tablets, e-book readers, cameras, and so on; the most powerful and attractive one is smartphones. It incorporates all aspects of computing application and wireless communications.Nearly 85% of the world population will have access to 3G wireless coverage, with the half of the population living in areas with 4G networks in year 2017 [1]. The growth of smartphones has far-reaching implications for eHealth [2]. The word eHealth was defined in [3] as "a relation to health services delivery such as healthcare, health system, health sector or health industry which suggests that eHealth refer more to services and systems rather than to the health of people". Smartphones have become a common device in healthcare settings; leading to rapid growth in the development of mHealth apps [4].

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Mobile health in adults with congenital heart disease: current use and future needs

Cited by 26 publications

References 20 publications

Toward Integration of mHealth in Primary Care in the Netherlands: A Qualitative Analysis of Stakeholder Perspectives

Toward Integration of mHealth in Primary Care in the Netherlands: A Qualitative Analysis of Stakeholder Perspectives

A successful crowdfunding project for eHealth research on grown-up congenital heart disease patients

A Survey on Trend, Opportunities and Challenges of mHealth Apps

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