Abstract:BACKGROUND OF THE STUDY: Caregivers play a vital role in continuum care for stroke patients. Involvement of caregivers in stroke care was important. With the advancement of information technology and the rapid growth worldwide in cell-phone use and internet connectivity, additional evidence may be needed in the use of mobile applications to support caregivers in stroke care.
AIM OF THE STUDY: The aims of this review was to identify existing mobile application designed to support family caregivers of peop… Show more
“…Regarding the availability of services for caregivers, the features mentioned by the study participants were comparable to those in previously published reviews ( 17 , 18 ). However, they emphasized the need for a healthcare service directory to connect caregivers with essential assistance, such as ambulance and home care services, as well as the importance of financial support due to significant expenses related to patient wellbeing, which is consistent with the findings of a local study on stroke management mobile applications for informal caregivers ( 49 ).…”
Section: Discussionsupporting
confidence: 78%
“…Numerous non-pharmacological treatment modalities, such as psychoeducational and psychosocial information, and skill-building interventions have been adopted and delivered on various digital platforms (including mobile health applications) to assist and empower stroke caregivers ( 14–17 ). A scoping review of seven articles regarding mHealth apps for family caregivers in preventing recurrent stroke revealed that many apps used video education, exercise reminders, access to stroke-related information, and feedback mechanisms ( 17 ). The studies were conducted in seven countries, namely the United States, Pakistan, the Netherlands, Korea, India, China, and Sweden, and all studies were conducted to test the feasibility of the apps in question ( 17 ).…”
Section: Introductionmentioning
confidence: 99%
“…A scoping review of seven articles regarding mHealth apps for family caregivers in preventing recurrent stroke revealed that many apps used video education, exercise reminders, access to stroke-related information, and feedback mechanisms ( 17 ). The studies were conducted in seven countries, namely the United States, Pakistan, the Netherlands, Korea, India, China, and Sweden, and all studies were conducted to test the feasibility of the apps in question ( 17 ). Another review of 47 apps that were available on the Android and/or iOS platforms and tailored to caregivers during stroke patient recovery revealed that such apps contained features that support caregivers’ wellbeing, role adaptation, and engagement in patient management ( 18 ).…”
IntroductionRecognizing the burden experienced by caregivers of stroke survivors, an intervention using mobile health applications (mHealth apps) has been proposed to support and empower stroke caregivers. This study aimed to assess the acceptability and expectations of healthcare providers, who play a vital role as gatekeepers in the healthcare system, to ensure the effectiveness and sustainability of the intervention.MethodsThis was a concurrent mixed-method study design, with healthcare providers involved in stroke care management in the northeast regions of Malaysia as study participants. The qualitative component of the study was conducted using a phenomenological approach that involved in-depth interviews to explore the acceptability and expectations of healthcare providers regarding the adoption of mHealth apps in the context of stroke caregiving. The study was complemented by quantitative data collected through an online survey using an adjusted version of the technology acceptance model tool.ResultsIn total, 239 participants from diverse backgrounds and professions were enrolled in the study, with 12 in the qualitative component and 227 in the quantitative component. The findings from the quantitative survey showed that over 80% of the participants expressed their intention to use mHealth apps. The qualitative component generated two themes related to the acceptability and expectations of mHealth apps, which were integrated with the quantitative findings. Additionally, in-depth interviews revealed a new theme, namely the key features of mHealth, with three sub-themes: availability of services for caregivers, provision of knowledge skills, and supporting caregivers in managing stroke patients.ConclusionHealthcare providers demonstrated excellent acceptability of this mHealth intervention as part of caregiving assistance, particularly with the inclusion of essential key features. However, future investigations are necessary to establish the feasibility of integrating the mHealth app into the healthcare system and to ensure its long-term sustainability.
“…Regarding the availability of services for caregivers, the features mentioned by the study participants were comparable to those in previously published reviews ( 17 , 18 ). However, they emphasized the need for a healthcare service directory to connect caregivers with essential assistance, such as ambulance and home care services, as well as the importance of financial support due to significant expenses related to patient wellbeing, which is consistent with the findings of a local study on stroke management mobile applications for informal caregivers ( 49 ).…”
Section: Discussionsupporting
confidence: 78%
“…Numerous non-pharmacological treatment modalities, such as psychoeducational and psychosocial information, and skill-building interventions have been adopted and delivered on various digital platforms (including mobile health applications) to assist and empower stroke caregivers ( 14–17 ). A scoping review of seven articles regarding mHealth apps for family caregivers in preventing recurrent stroke revealed that many apps used video education, exercise reminders, access to stroke-related information, and feedback mechanisms ( 17 ). The studies were conducted in seven countries, namely the United States, Pakistan, the Netherlands, Korea, India, China, and Sweden, and all studies were conducted to test the feasibility of the apps in question ( 17 ).…”
Section: Introductionmentioning
confidence: 99%
“…A scoping review of seven articles regarding mHealth apps for family caregivers in preventing recurrent stroke revealed that many apps used video education, exercise reminders, access to stroke-related information, and feedback mechanisms ( 17 ). The studies were conducted in seven countries, namely the United States, Pakistan, the Netherlands, Korea, India, China, and Sweden, and all studies were conducted to test the feasibility of the apps in question ( 17 ). Another review of 47 apps that were available on the Android and/or iOS platforms and tailored to caregivers during stroke patient recovery revealed that such apps contained features that support caregivers’ wellbeing, role adaptation, and engagement in patient management ( 18 ).…”
IntroductionRecognizing the burden experienced by caregivers of stroke survivors, an intervention using mobile health applications (mHealth apps) has been proposed to support and empower stroke caregivers. This study aimed to assess the acceptability and expectations of healthcare providers, who play a vital role as gatekeepers in the healthcare system, to ensure the effectiveness and sustainability of the intervention.MethodsThis was a concurrent mixed-method study design, with healthcare providers involved in stroke care management in the northeast regions of Malaysia as study participants. The qualitative component of the study was conducted using a phenomenological approach that involved in-depth interviews to explore the acceptability and expectations of healthcare providers regarding the adoption of mHealth apps in the context of stroke caregiving. The study was complemented by quantitative data collected through an online survey using an adjusted version of the technology acceptance model tool.ResultsIn total, 239 participants from diverse backgrounds and professions were enrolled in the study, with 12 in the qualitative component and 227 in the quantitative component. The findings from the quantitative survey showed that over 80% of the participants expressed their intention to use mHealth apps. The qualitative component generated two themes related to the acceptability and expectations of mHealth apps, which were integrated with the quantitative findings. Additionally, in-depth interviews revealed a new theme, namely the key features of mHealth, with three sub-themes: availability of services for caregivers, provision of knowledge skills, and supporting caregivers in managing stroke patients.ConclusionHealthcare providers demonstrated excellent acceptability of this mHealth intervention as part of caregiving assistance, particularly with the inclusion of essential key features. However, future investigations are necessary to establish the feasibility of integrating the mHealth app into the healthcare system and to ensure its long-term sustainability.
“…In general, it should be noted that there are few web-based or digitally available tools. In a review, Firmawati et al identified mobile applications for family caregivers of people with stroke as supportive [94]. Studies have found evidence that mHealth or eHealth tools for family caregivers have an impact on the burden of care [95].…”
Family caregivers take on a variety of tasks when caring for relatives in need of care. Depending on the situation and the intensity of care, they may experience multidimensional burdens, such as physical, psychological, social, or financial stress. The aim of the present study was to identify and appraise self-assessment instruments (SAIs) that capture the dimensions of family caregivers’ burdens and that support family caregivers in easily identifying their caregiving role, activities, burden, and needs. We performed an integrative review with a broad-based strategy. A literature search was conducted on PubMed, Google Scholar, Google, and mobile app stores in March 2020. After screening the records based on the eligibility criteria, we appraised the tools we found for their usefulness for family care and nursing practice. From a total of 2654 hits, 45 suitable SAIs from 274 records were identified and analyzed in this way. Finally, nine SAIs were identified and analyzed in detail based on further criteria such as their psychometric properties, advantages, and disadvantages. They are presented in multi-page vignettes with additional information for healthcare professionals. These SAIs have proven useful in assessing the dimensions of caregiver burden and can be recommended for application in family care and nursing practice.
“…Similarly, there are also a number of mobile applications available to support these ICs. A scoping review found that these apps provide help in three main areas: caregiver support, barriers, and informal caregiver support [ 36 ]. In addition, the mHealth tools for ICs of stroke survivors include several functionalities such as information resources, risk assessment, remote monitoring, data sharing or reminders [ 37 ].…”
Background: There has been an increase in people with disabilities who require continuous care, which often falls to informal carers (ICs). Stroke is one of the conditions where ICs are most needed. Therefore, it is necessary for ICs to improve their caregiving skills and self-care capacity. Telehealth (TH) can facilitate them. The aim of this systematic review is to summarize the evidence of the effects of interventions on ICs of stroke patients. Methods: The search was conducted in Pubmed, Scopus, Web of Science, CINALH, Psychology and Behavioral Sciences Collection, and APA PsycInfo. Key search terms included “stroke”, “informal caregiver” and “telemedicine”. Only randomised clinical trials were included. Results: A total of 2031 articles were found in the databases, 476 were screened and 19 clinical trials met the eligibility criteria. Different TH programmes have evaluated many outcomes related to physical and emotional health. The TH tools included phone, videophone, web-based interventions, and social media. The most investigated outcome was depression; although contradictory results were found, the TH may have helped to prevent an increase in depressive symptoms. There were inconsistent results on the caregiving burden and the preparedness of the IC. However, TH has positive effects on the health of the ICs, reducing the number of unhealthy days, anxiety, task difficulty perception, and improving psychological health. Conclusions: TH may be a useful tool to improve the abilities and health of ICs of SS. No adverse effects have been reported. More quality studies evaluating the effects of telemedicine on the ICs of stroke survivors, as well as the most appropriate doses, are needed.
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