Mobile and Web-Based Apps That Support Self-Management and Transition in Young People With Chronic Illness: Systematic Review

Pérez, Yisselle Ilene Virella; Medlow, Sharon; Ho, Jane; Steinbeck, Katharine

doi:10.2196/13579

Cited by 58 publications

(49 citation statements)

References 40 publications

(128 reference statements)

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“…The use of health technologies by CYP to manage LTCs is increasing with many studies describing their development, acceptability and use by CYP 45 53–61 ; effectiveness 53 62–64 ; and compliance by CYP. 41 57 However, there is limited literature on the concerns that CYP may have when (or before) using a health technology for self-managing their LTC, and no review has specifically explored these concerns.…”

Section: Discussionmentioning

confidence: 99%

Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review

et al. 2020

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BackgroundThe use of patient-facing health technologies to manage long-term conditions is increasing; however, children and young people may have particular concerns or needs before deciding to use different health technologies.AimsTo identify children and young people’s reported concerns or needs in relation to using health technologies to self-manage long-term conditions.MethodsA scoping review was conducted. We searched MEDLINE, PsycINFO and CINAHL in February 2019. Searches were limited to papers published between January 2008 and February 2019. We included any health technology used to manage long-term conditions. A thematic synthesis of the data from the included studies was undertaken. We engaged children with long-term conditions (and parents) to support review design, interpretation of findings and development of recommendations.ResultsThirty-eight journal articles were included, describing concerns or needs expressed by n=970 children and/or young people aged 5–18 years. Most included studies were undertaken in high-income countries with children aged 11 years and older. Studies examined concerns with mobile applications (n=14), internet (n=9), social media (n=3), interactive online treatment programmes (n=3), telehealth (n=1), devices (n=3) or a combination (n=5). Children and young people’s main concerns were labelling and identity; accessibility; privacy and reliability; and trustworthiness of information.DiscussionThis review highlights important concerns that children and young people may have before using technology to self-manage their long-term condition. In future, research should involve children and young people throughout the development of technology, from identifying their unmet needs through to design and evaluation of interventions.

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Section: Discussionmentioning

confidence: 99%

Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review

et al. 2020

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“…Despite the potential of the use of technology in increasing adherence outcomes during the transition period, research on its use remains limited [ 50 , 51 ] but is likely to grow given the current rise of telemedicine and telehealth interventions. The few studies that have addressed this topic have yielded mixed findings [ 50 ], and published materials frequently describe the methods rather than yet being able to share actual study results [ 52 – 55 ].…”

Section: Interventions In Adherencementioning

confidence: 99%

“…The few studies that have addressed this topic have yielded mixed findings [ 50 ], and published materials frequently describe the methods rather than yet being able to share actual study results [ 52 – 55 ]. Two very recent comprehensive reviews concluded that, although adolescents and young adults were receptive to the technology, efficacy data were lacking [ 51 , 56 ]. Given the potential (although not yet realized) benefit of technological advances, we review some of the relevant studies here.…”

Section: Interventions In Adherencementioning

confidence: 99%

Adherence to Medication During Transition to Adult Services

et al. 2020

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The transition from childhood and adolescence to adulthood is often tumultuous. For individuals with a chronic medical condition, this progression also includes a gradual transition to independence in healthcare management as well as a transfer in care location at some set point. As adolescents navigate these sometimes challenging processes, there is a significant risk for a decline in adequate health behaviors, which can have dire consequences. One of the most vital components of the transfer to adult care is medication adherence. Poor medication adherence puts patients at risk for worse outcomes, with the most profound being increased mortality for many conditions. In recent years, acknowledgment of the need to create evidencebased methods to aid patients during the transition period has been growing. This paper seeks to provide an overview of current research and recommendations for interventions to increase adherence to medication regimens during this period.

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“…They are cost-effective, convenient, easily accessible, personalizable, and can be operated without professional health care assistance [ 26 , 27 ]. mHealth-based approaches have become very popular in chronic health care management and include, among other things, automated text reminders, frequent and accurate symptom monitoring, daily reminders for medication use, follow-up of food intake, education, tips, support, and condition tracking [ 25 , 28 , 29 ]. As such, technological interventions have the potential to contribute to managing gastrointestinal health conditions such as CD [ 30 ].…”

Section: Introductionmentioning

confidence: 99%

Mobile Application for Promoting Gluten-Free Diet Self-Management in Adolescents with Celiac Disease: Proof-of-Concept Study

Meyer

Naveh

2021

Nutrients

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Celiac disease (CD) is a chronic disease treated by maintaining and managing a lifelong restrictive gluten-free diet. The purpose of this study was to develop a mobile application, Plan My C-Day, to promote self-management skills among youth with CD during adolescence—a time when decreased adherence often occurs—and examine its usability among adolescents with CD. Plan My C-Day contains three simulations of activities involving eating out and actions to take when preparing for these events. It was developed and pilot tested by 13 adolescents with CD. Application use and user perception data were collected and analyzed. Participants chose 160 actions within the simulations. For over 75% of participants, the time to complete the simulation decreased from the first to the third (last) simulation by an average of 50%. The average reported usability perception was 3.71 on a scale of 1 to 5, with system ease of use and ease of learning obtaining the highest scores. This study demonstrated that the Plan My C-Day mobile application’s self-management content, features, and functions operated well and that the simulations were easy to understand and complete. Further development will include the option to add self-created activities and adaptation to different languages and cultures.

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Mobile and Web-Based Apps That Support Self-Management and Transition in Young People With Chronic Illness: Systematic Review

Cited by 58 publications

References 40 publications

Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review

Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review

Adherence to Medication During Transition to Adult Services

Mobile Application for Promoting Gluten-Free Diet Self-Management in Adolescents with Celiac Disease: Proof-of-Concept Study

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