Mental Health Challenges and the Associated Factors in Women Living with HIV Who Have Children Living with HIV in Indonesia: A Qualitative Study

Fauk, Nelsensius Klau; Merry, Maria Silvia; Mwanri, Lillian; Hawke, Karen; Ward, Paul

doi:10.3390/ijerph19116879

Cited by 8 publications

(9 citation statements)

References 38 publications

(77 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…That HIV stigma is a major impediment to ART adherence is well established in the literature [ 9 , 13 , 39 ], as is the fact that HIV stigma in health care is highly prevalent and highly detrimental for PLHIV [ 40 , 41 , 42 , 43 ]. As such, our findings dovetail with previous studies reporting that stigma in any form hinders treatment adherence [ 3 , 11 , 27 , 30 , 31 , 32 , 42 , 44 , 45 , 46 , 47 , 48 , 49 , 50 , 51 , 52 , 53 , 54 , 55 , 56 , 57 , 58 , 59 ]. PLHIV also often experience intersectional stigma or stigmatization due to multiple identities within marginalized groups (e.g., gender or sexual orientation) [ 60 , 61 ].…”

Section: Discussionsupporting

confidence: 91%

Barriers and Facilitators to HIV Treatment Adherence in Indonesia: Perspectives of People Living with HIV and HIV Service Providers

2023

View full text Add to dashboard Cite

HIV treatment adherence in Indonesia is a major challenge. Although previous studies have demonstrated several barriers and facilitators to adherence, studies providing a comprehensive analysis from both PLHIV and HIV service providers’ perspectives are limited, especially in Indonesia. In this qualitative study with 30 people living with HIV on treatment (PLHIV-OT) and 20 HIV service providers (HSPs), we explored, via online interviews, the barriers and facilitators to antiretroviral therapy (ART) adherence using a socioecological approach. Both PLHIV-OT and HSPs reported stigma as a major barrier at each socioecological level, including public stigma at the societal level, stigma in healthcare settings, and self-stigma at the intrapersonal level. Stigma reduction must therefore be prioritized. PLHIV-OT and HSPs also reported support from significant others and HSPs as the foremost facilitators to ART adherence. The enablement of support networks is thus an important key to improved ART adherence. Overall, the societal level and health system barriers to ART adherence should be addressed in order to remove barriers and enhance the facilitators at the subordinate socioecological levels.

show abstract

Section: Discussionsupporting

confidence: 91%

Barriers and Facilitators to HIV Treatment Adherence in Indonesia: Perspectives of People Living with HIV and HIV Service Providers

2023

View full text Add to dashboard Cite

show abstract

“…As part of a larger qualitative study exploring the mental health challenges, the associated factors and coping strategies used by MLHIV (n = 23) who have CLHIV in Yogyakarta, Indonesia [ 43 ], this paper describes strategies employed by these mothers to cope with mental health challenges experienced following their own and their child’s HIV diagnosis. Yogyakarta was selected as: (a) there is a paucity of evidence on the mental health challenges facing MLHIV who have CLHIV and the strategies used to cope with these challenges in the current study setting, and (b) the familiarity and feasibility so as to potentially undertaking the study successfully.…”

Section: Methodsmentioning

confidence: 99%

Understanding coping strategies of mothers living with HIV who care for children living with HIV: a qualitative study in Indonesia

et al. 2023

Self Cite

View full text Add to dashboard Cite

HIV infection and its sequelae continue to be a significant challenge among women and their families in developing countries despite the progress that has been made in the prevention and treatment of HIV. This paper describes the strategies employed by mothers with HIV to cope with the various challenges experienced following their own and their children’s HIV diagnosis. This paper uses previously unpublished data collected for a study that sought to explore the mental health challenges and coping strategies of mothers living with HIV (MLHIV) (n = 23) who have children living with HIV (CLHIV). Data collection was conducted using in-depth interviews, and participants were recruited using the snowball sampling technique. The concept of meaning-making was used to guide the conceptualisation, analysis, and discussion of the findings. Our analysis showed that meaning-making such as the awareness of how important mothers were to their children/CLHIV and families and religious meaning were used by participants to cope with HIV-related and mental health challenges they faced. The meaning of mother-child relationship which was supported and maintained through the provision of time, attention and fulfillment of CLHIV’s needs were also coping strategies employed by these women. Additional coping strategies used were to link their CLHIV to groups and activities of CLHIV. The connections made through these links enabled their children to know other CLHIV, build relationships, and share experiences. These findings are useful evidence that can inform policies and practices and indicate the need for the development of intervention programs that address the needs of MLHIV and their families to cope with HIV-related challenges of their children. Future large-scale studies involving MLHIV who have CLHIV are recommended to have a comprehensive understanding of strategies they employ to cope with HIV-related challenging circumstances and mental health issues that they continue to face.

show abstract

“…The findings reflect the unpreparedness of the healthcare system in the study setting to get PLHIV informed about both the healthcare service delivery, especially ART service during the pandemic, and the correct information about the COVID-19 pandemic's mandatory lockdown guidelines. In other words, the current findings indicate less approachability of ART service or scarcity of the dissemination of healthcare-related information for PLHIV and other community members during the COVID-19 pandemic, which influenced their access to the service [44][45][46][47][48]. Approachability or well-known information about healthcare services within communities is an important healthcare service dimension that determines the accessibility of the services [44,45].…”

Section: Discussionmentioning

confidence: 71%

Barriers to access to antiretroviral therapy by people living with HIV in Indonesia during the COVID-19 pandemic: A qualitative study

Fauk

Gesesew

Seran³

et al. 2023

Preprint

Self Cite

View full text Add to dashboard Cite

Background: The coronavirus disease (COVID-19) pandemic has a significant influence on access to healthcare services. This study aimed to understand the views and experiences of people living with HIV (PLHIV) about barriers to their access to antiretroviral therapy (ART) service in Belu district, Indonesia, during the COVID-19 pandemic. Methods: This qualitative inquiry employed in-depth interviews to collect data from 21 participants who were recruited using a snowball sampling technique. Data analysis was guided by a thematic framework analysis. Results: The findings showed that fear of contracting COVID-19 was a barrier that impeded access to ART service by the participants. Such fear was influenced by their awareness of their vulnerability to the infection, the possibility of unavoidable physical contact in public transport during a travelling to HIV clinic and the widespread COVID-19 infection in healthcare facilities. Lockdowns, COVID-19 restrictions and lack of information about the provision of ART service during the pandemic were also barriers that impeded their access to the service. Other barriers included the mandatory regulation for travellers to provide their COVID-19 vaccine certificate, financial difficulty, long-distance travel to the HIV clinic and a lack of public transport. Conclusions: The findings indicate the need for dissemination of information about the provision of ART service during the pandemic and the benefits of COVID-19 vaccination for the health of PLHIV. The findings also indicate the need for new strategies to bring ART service closer to PLHIV during the pandemic such as a community-based delivery system. Future large-scale studies exploring views and experiences of PLHIV about barriers to their access to ART service during the COVID-19 pandemic and new intervention strategies are recommended.

show abstract

Mental Health Challenges and the Associated Factors in Women Living with HIV Who Have Children Living with HIV in Indonesia: A Qualitative Study

Cited by 8 publications

References 38 publications

Barriers and Facilitators to HIV Treatment Adherence in Indonesia: Perspectives of People Living with HIV and HIV Service Providers

Barriers and Facilitators to HIV Treatment Adherence in Indonesia: Perspectives of People Living with HIV and HIV Service Providers

Understanding coping strategies of mothers living with HIV who care for children living with HIV: a qualitative study in Indonesia

Barriers to access to antiretroviral therapy by people living with HIV in Indonesia during the COVID-19 pandemic: A qualitative study

Contact Info

Product

Resources

About