Understanding coping strategies of mothers living with HIV who care for children living with HIV: a qualitative study in Indonesia

Fauk, Nelsensius Klau; Gesesew, Hailay Abrha; Mwanri, Lillian; Hawke, Karen; Merry, Maria Silvia; Abanit, Gregorius; Ward, Paul

doi:10.1186/s12905-023-02299-y

Cited by 5 publications

(3 citation statements)

References 44 publications

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“…Our findings also highlight strong resilience in the men’s ability to accept their HIV-positive status and find positive meanings in a challenging situation [ 14 ]. This is consistent with the findings of previous studies with other population groups of PLHIV [ 49 , 50 , 51 ], reporting self-acceptance and self-reliance as supporting factors in coping with HIV-related mental health repercussions. The results reveal self-acceptance and finding meanings as enabling factors that led to the change in negative attitudes and behaviours (i.e., sex with sex workers) and the commitment to help other PLHIV (i.e., assisting others in accessing ART).…”

Section: Discussionsupporting

confidence: 93%

Biographical Reinvention: An Asset-Based Approach to Understanding the World of Men Living with HIV in Indonesia

Fauk,

Mwanri,

Gesesew

et al. 2023

IJERPH

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HIV diagnosis and management have often caused disruption to the everyday life and imagined futures of people living with HIV, both at individual and social levels. This disruption has been conceptualised, in a rather dystopian way, as ‘biographical disruption’. This paper explores whether or not biographical disruption of living with HIV encourages men living with HIV (MLHIV; n = 40) in Yogyakarta and Belu, Indonesia, to reinvent their sense of self and future over time using internal and external assets. Our analysis uses the concepts of additive and subtractive resilience strategies, and we show how, rather than having a purely disrupted biography, participants talked about their experiences of ‘biographical reinvention’. Study participants were recruited using the snowball sampling technique, beginning with two HIV clinics as the settings. Data were collected using one-on-one in-depth interviews, and a qualitative framework analysis was used to guide step-by-step data analysis. The findings showed that, despite the disruptions in their everyday lives (i.e., mental health condition, work, activities, social relationships, etc.) following the HIV diagnosis and management, MLHIV in our study managed to utilise their internal assets or traits (i.e., hope, optimism, resilience) and mobilised external resources (i.e., support from families, friends and healthcare professionals) to cope with the disruptions. An interweaving of these internal assets and external resources enabled them to take on new activities and roles (additive resilience strategies) and give up health compromising behaviours (subtractive resilience strategies). These were effective for most MLHIV in our study, not only to cope with the HIV repercussions and improve their physical and mental health conditions, but to think or work on a ‘reinvented’ biography which encompassed resilience, hope and optimism for better health, life and future. The findings indicate the need for HIV interventions and healthcare systems that provide appropriate support for the development and maintenance of internal assets of PLHIV to enable them to cope with the repercussions of HIV and work on a ‘reinvented’ biography.

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Section: Discussionsupporting

confidence: 93%

Biographical Reinvention: An Asset-Based Approach to Understanding the World of Men Living with HIV in Indonesia

Fauk,

Mwanri,

Gesesew

et al. 2023

IJERPH

Self Cite

View full text Add to dashboard Cite

show abstract

“…Our findings also highlight strong resilience in the men's ability to accept their HIVpositive status and find positive meanings in a challenging situation [14]. This is consistent with the findings of previous studies with other population groups of PLHIV [49][50][51], reporting self-acceptance and self-reliance as supporting factors in coping with HIV-related mental health repercussions. The results reveal self-acceptance and finding meanings as enabling factors that led to the change in negative attitudes and behaviours (i.e., sex with sex workers) and the commitment to help other PLHIV (i.e., assisting others in accessing ART).…”

Section: Discussionsupporting

confidence: 90%

Biographical reinvention through additive and subtractive strategies: the experience of men living with HIV in Indonesia

Fauk¹,

Mwanri²,

Gesesew³

et al. 2023

Preprint

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HIV diagnosis and management have often caused disruptions to the everyday life and imagined futures of people living with HIV, both at individual and social levels. This has been conceptualised, in a rather dystopian way, as ‘biographical disruption’. This paper attempts to re-cast data from interviews with 40 men living with HIV (MLHIV) in Yogyakarta and Belu, Indonesia, in a slightly more positive light. Our analysis uses the concepts of additive and subtractive resilience strategies and we show how, rather than having a purely disrupted biography, participants talked about their experiences of ‘biographical reinvention'. Study participants were recruited using the snowball sampling technique, starting from two HIV clinics in the settings. Data were collected using one-on-one in-depth interviews, and a qualitative framework analysis was used to guide step-by-step data analysis. The findings showed that despite the disruptions in their everyday life (i.e., mental health condition, work, activities, social relationships, etc.) following the HIV diagnosis and management, MLHIV in our study managed to utilise their internal assets or traits (i.e., hope, optimism, resilience) and mobilised external resources (i.e., support from families, friends and healthcare professionals) to cope with the disruptions. An interweaving of these internal assets and external resources enabled them to take on new activities and roles (additive resilience strategies) and give up health compromising behaviours (subtractive resilience strategies). These were effective for most MLHIV in our study not only to cope with the HIV repercussions and improve their physical and mental health conditions, but to think or work on a ‘reinvented’ biography which encompassed resilience, hope and optimism for better health, life and future. The findings indicate the need for HIV interventions and healthcare systems that provide appropriate support for the development and maintenance of internal assets of PLHIV to enable them to cope with the repercussions of HIV and work on a ‘reinvented’ biography.

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“…Participants expressed anxiety and worry about unintentionally infecting their children or spouse with HIV, which intensified their fear of the future (Appiah et al, 2019 ). According to Fauk et al ( 2023 ), parents diagnosed with HIV often have a profound concern about being the source of infection for their children, who may be living with the same disease. However, during hospital visits, clinicians play a crucial role in providing clinical support and imparting instructions to enhance patients’ understanding of the disease transition methods and enable them to lead everyday lives with their families (Belyeu et al, 2018 ).…”

Section: Discussionmentioning

confidence: 99%

The effect of HIV on patients’ lives: a phenomenological qualitative study

Alzahrani,

Almarwani

2024

International Journal of Qualitative Studies on Health and Well

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Introduction Human immunodeficiency virus (HIV) infection poses a significant threat to the immune system, compromising the body’s ability to combat diseases and infections. The Ministry of Health in Saudi Arabia reported an HIV incidence rate of 3 cases per 10,000 individuals. This study aimed to gain insight into the lived experience of Saudi patients living with HIV. Methods Employing a qualitative phenomenological approach, this study conducted in-depth interviews with 16 HIV patients (10 men, 6 women) between January 2023 and May 2023. Results Thematic data analysis highlighted three overarching themes and four subthemes. “Fear of the Future” encompassed subthemes including the fear of infecting a family member, fear of marriage, fear of employment recruitment, and fear of scandals. “Hopelessness” reflected the profound emotional state experienced by patients. “Overcoming Adversity” captured the resilience and strength demonstrated by individuals facing the challenges of living with HIV. Conclusion Saudi patients diagnosed with HIV encounter numerous obstacles in their daily lives. The fear of the future, including concerns such as infecting family members, marriage prospects, employment opportunities, and potential social repercussions, significantly impacts their overall well-being. By understanding the lived experience of HIV patients in Saudi Arabia, healthcare providers and policymakers can better support and enhance the quality of life for this population.

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Understanding coping strategies of mothers living with HIV who care for children living with HIV: a qualitative study in Indonesia

Cited by 5 publications

References 44 publications

Biographical Reinvention: An Asset-Based Approach to Understanding the World of Men Living with HIV in Indonesia

Biographical Reinvention: An Asset-Based Approach to Understanding the World of Men Living with HIV in Indonesia

Biographical reinvention through additive and subtractive strategies: the experience of men living with HIV in Indonesia

The effect of HIV on patients’ lives: a phenomenological qualitative study

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