Measures and Methods for Symptom and Symptom Cluster Assessment in Adolescents and Young Adults with Cancer

Linder, Lauri; Ameringer, Suzanne; Baggott, Christina; Erickson, Jeanne M.; Macpherson, Catherine Fiona; Rodgers, Cheryl; Stegenga, Kristin

doi:10.1016/j.soncn.2015.05.002

Cited by 19 publications

(15 citation statements)

References 54 publications

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“…We decided that the MSAS 10–18 would be more appropriate than the adult version for the younger AYAs we anticipated recruiting. Adapting existing instruments to the AYA population is recommended to meet the urgent need for research in this population (Linder et al, ).…”

Section: Methodsmentioning

confidence: 99%

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Symptoms and Symptom Clusters Identified by Adolescents and Young Adults With Cancer Using a Symptom Heuristics App

Ameringer

Erickson

Macpherson

et al. 2015

Research in Nursing & Health

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Adolescents and young adults (AYAs) with cancer experience multiple distressing symptoms during treatment. Because the typical approach to symptom assessment does not easily reflect the symptom experience of individuals, alternative approaches to enhancing communication between the patient and provider are needed. We developed an iPad-based application that uses a heuristic approach to explore AYAs' cancer symptom experiences. In this mixed-methods descriptive study, 72 AYAs (13-29 years old) with cancer receiving myelosuppressive chemotherapy used the Computerized Symptom Capture Tool (C-SCAT) to create images of the symptoms and symptom clusters they experienced from a list of 30 symptoms. They answered open-ended questions within the C-SCAT about the causes of their symptoms and symptom clusters. The images generated through the C-SCAT and accompanying free-text data were analyzed using descriptive, content, and visual analyses. Most participants (n = 70) reported multiple symptoms (M = 8.14). The most frequently reported symptoms were nausea (65.3%), feeling drowsy (55.6%), lack of appetite (55.6%), and lack of energy (55.6%). Forty-six grouped their symptoms into one or more clusters. The most common symptom cluster was nausea/eating problems/appetite problems. Nausea was most frequently named as the priority symptom in a cluster and as a cause of other symptoms. Although common threads were present in the symptoms experienced by AYAs, the graphic images revealed unique perspectives and a range of complexity of symptom relationships, clusters, and causes. Results highlight the need for a tailored approach to symptom management based on how the AYA with cancer perceives his or her symptom experience.

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Section: Methodsmentioning

confidence: 99%

“…However, for young adults and for AYAs as a group, cancer symptom research is lacking. More informative approaches to understanding symptoms and symptom clusters from the perspective of AYAs are needed (Linder et al, ; Zebrack, ).…”

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confidence: 99%

Symptoms and Symptom Clusters Identified by Adolescents and Young Adults With Cancer Using a Symptom Heuristics App

Ameringer

Erickson

Macpherson

et al. 2015

Research in Nursing & Health

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“…Los estudios longitudinales que utilizan el enfoque de determinación de patrones de síntomas dentro de un clúster son necesarios para identificar severidad y cambios en los grupos de síntomas con el tiempo (59). Por otro lado, se debe establecer un consenso en torno a las metodologías estadísticas empleadas (2,22,31,60).…”

Section: Discussionunclassified

“…De otra parte, Barsevick (30) y Linder et al (31) indican que se deben explorar los grupos de síntomas a partir de abordajes cualitativos, y basados en grupos definidos empíricamente.…”

Section: Kirkova Et Al (28) Y Xiaounclassified

Los grupos de síntomas en personas con cáncer: una revisión integrativa

González¹

2017

Aquichan

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Objetivo: explorar el estado actual de desarrollo investigativo del área temática de grupos de síntomas en adultos con cáncer. Método: revisión integrativa de producción científica generada entre 2001 y 2016. Se incluyeron 61 artículos por su aporte en la comprensión del área temática. Resultados: el estudio de los grupos de síntomas en personas con cáncer se consolida como un área temática novedosa, pertinente y necesaria para la investigación y práctica de enfermería en oncología, con tendencias y retos que incluyen: (1) El desarrollo de marcos conceptuales que aporten a la fundamentación, atributos y efectos (2) La determinación de métodos y formas de crearlos y clasificarlos (3) La generación de estudios con poblaciones específicas por tipos de cáncer y tratamiento y la consolidación de intervenciones de enfermería. Conclusiones: los pacientes con cáncer experimentan múltiples síntomas de forma simultánea durante las distintas fases de la enfermedad. Es incipiente el estudio de este fenómeno, los retos para la enfermería se centran en la generación de respuestas que alivien la carga de los grupos de síntomas y mejoren la calidad de vida de estos pacientes. Es necesario validar escalas de carga del síntoma y explorar los grupos de síntomas incluyendo variables clínicas ligadas a los tratamientos oncológicos.

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“…In this study, cancerrelated symptoms were evaluated. In general, AYAs experience multiple individual symptoms related to their diagnosis and treatment (Ameringer et al, 2015;Corey et al, 2008;Linder et al, 2015) and experience more symptoms when compared to older adults (Sanford et al, 2014).…”

Section: Conceptual Frameworkmentioning

confidence: 99%

Predictors of Quality of Life in Young Adults Diagnosed With Cancer

McKie

Laiyemo

2020

Clin Nurs Res

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A cross-section correlational study was conducted to evaluate the overall quality of life in young adults (AYAs) diagnosed with cancer, and the impact of health-related and non-health-related factors on their quality of life. Fifty-six AYA cancer survivors were recruited to elicit the impact of biological function (cancer type and comorbidity), symptoms, functional status, general perception of health status, gender, and characteristics of the environment on quality of life. Participants experienced higher than average quality of life. Symptoms, functional status, and general perception of health status were significant predictors of quality of life in this group of AYAs diagnosed with cancer. In delivering quality cancer care, nurses must be able to thoroughly assess symptom status, AYA cancer survivors’ perception of their health status, and functioning in order to implement supportive measures to help improve their quality of life.

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Measures and Methods for Symptom and Symptom Cluster Assessment in Adolescents and Young Adults with Cancer

Cited by 19 publications

References 54 publications

Symptoms and Symptom Clusters Identified by Adolescents and Young Adults With Cancer Using a Symptom Heuristics App

Symptoms and Symptom Clusters Identified by Adolescents and Young Adults With Cancer Using a Symptom Heuristics App

Los grupos de síntomas en personas con cáncer: una revisión integrativa

Predictors of Quality of Life in Young Adults Diagnosed With Cancer

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