Meaningful involvement of children and young people in health technology development

Wheeler, Gemma; Mills, Nathaniel; Ankeny, Ursula; Howsley, Philippa; Bartlett, Clare; Elphick, Heather; Dimitri, Paul

doi:10.1080/03091902.2022.2089252

Cited by 6 publications

(9 citation statements)

References 17 publications

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“…This study would also open up opportunities for dedicated workshops for engagement with different stakeholders (i.e., UL-deficient children and adolescents across different age groups, parents, service providers, etc.) to explore the various design attributes to develop the scope for device improvement and to understand the context of the use in a more nuanced manner [36].…”

Section: Usability Studymentioning

confidence: 99%

“…Nevertheless, very few studies have tried to capture the opinions of UL-deficient children and adolescents (e.g., [34]). Involving children at the design stage has resulted in products that truly met the children's needs [35], [36]; additionally, the authors suggested that the children's likes and dislikes that were revealed were contrary to the researchers' preconceived ideas about the children and would have remained unknown without their participation. Furthermore, besides involving children and adolescents using UL prostheses, it still is essential to consult with other stakeholders (parents/carers and professionals), as they will have different levels of expertise, motivations, and/or engagement for using these devices [37], [38].…”

Section: Introductionmentioning

confidence: 99%

“…The present study aims to capture the initial stages of novel prosthetic device development that is iterative and systematic to reach a stage at which they can be placed on the market. Involving target users from this early stage is likely to ensure that the design agrees with the users' contexts, views, experiences, and expertise [36], [39].…”

Section: Introductionmentioning

confidence: 99%

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A Novel Respiratory Control and Actuation System for Upper-Limb Prosthesis Users: Clinical Evaluation Study

Nagaraja

Moulic²,

D'souza

et al. 2022

IEEE Access

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The most widely-used active upper-limb (UL) prostheses worldwide are body-powered (BP), which is a two-centuries-old technology. Despite their affordability and functional benefits to users, these devices are prone to poor outcomes for many patients. Additionally, BP devices have witnessed limited improvements compared to their externally-powered counterparts. Literature indicates a strong need for appropriate prosthetic solutions for children and adolescents. Our previous work introduced a first-of-itskind breathing-powered UL prosthesis ("Airbender") that can overcome several limitations of the current BP systems (e.g., restricted operation space, user discomfort caused by the harness to which the cables are attached). Users can regulate their breathing, and this controllable airflow is subsequently used to power a small (purpose-built and optimised) Tesla turbine that can accurately control the opening and closing of the prosthetic hand. The current work explores device usability in children and adolescents with a UL difference (n = 15). Further, we gathered feedback, suggestions and satisfaction levels from the study participants and their parents on breathing as a modality of controlling a prosthetic device. The collected responses and study observations were subjected to qualitative and statistical analysis. This study showcases real-world testing of a breathing-powered prosthesis and proves that UL-deficient children and adolescents can indeed operate the device (i.e., volitionally open or close) with their breathing input. The perceived level of difficulty in opening or closing the device tended to be on the 'easy' side. We report generally favourable feedback obtained from participants and their parents. Additionally, design suggestions and satisfaction levels concerning different device attributes help us involve the key stakeholders in co-creating and proactively developing a robust product development roadmap. This work is aligned with creating a step-change in the potential BP prosthetics options for patients in the future, propelled by a need-led approach.

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Section: Usability Studymentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

A Novel Respiratory Control and Actuation System for Upper-Limb Prosthesis Users: Clinical Evaluation Study

Nagaraja

Moulic²,

D'souza

et al. 2022

IEEE Access

View full text Add to dashboard Cite

show abstract

Section: Usability Studymentioning

confidence: 99%

“…Nevertheless, very few studies have tried to capture the opinions of UL-deficient children and adolescents (e.g., [34]). Involving children at the design stage has resulted in products that truly met the children's needs [35], [36]; additionally, the authors suggested that the children's likes and dislikes that were revealed were contrary to the researchers' preconceived ideas about the children and would VOLUME 10, 2022 have remained unknown without their participation. Furthermore, besides involving children and adolescents using UL prostheses, it still is essential to consult with other stakeholders (parents/carers and professionals), as they will have different levels of expertise, motivations, and/or engagement for using these devices [37], [38].…”

Section: Introductionmentioning

confidence: 99%

A novel respiratory control and actuation system for upper-limb prosthesis users: Clinical evaluation study

Nagaraja¹,

Moulic²,

D'souza³

et al. 2022

Preprint

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<p>The most widely-used active upper-limb (UL) prostheses worldwide are body-powered (BP), which is a two-century-old technology. Despite their affordability and functional benefits to users, these devices are prone to poor outcomes for many patients. Additionally, BP devices have witnessed limited improvements compared to their externally-powered counterparts. Literature indicates a strong need for appropriate prosthetic solutions for children and adolescents. Our previous work introduced a first-of-its-kind breathing-powered UL prosthesis (“Airbender”) that can overcome several limitations of the current BP systems (e.g., restricted operation space, user discomfort caused by the harness to which the cables are attached). Users can regulate their breathing, and this controllable airflow is subsequently used to power a small (purpose-built and optimised) Tesla turbine that can accurately control the opening and closing of the prosthetic hand. The current work explores device usability in children and adolescents with a UL difference (n = 15). Further, we gathered feedback, suggestions, and satisfaction levels from the study participants and their parents on breathing as a modality of controlling a prosthetic device. The collected responses and study observations were subjected to qualitative and statistical analysis. This study showcases real-world testing of a breathing-powered prosthesis and proves that UL-deficient children and adolescents can indeed operate the device (i.e., volitionally open or close) with their breathing input. The perceived level of difficulty in opening or closing the device tended to be on the ‘easy’ side. We report generally favourable feedback obtained from participants and their parents. Additionally, design suggestions and satisfaction levels concerning different device attributes help us involve the key stakeholders in co-creating and proactively developing a robust product development roadmap. This work is aligned with creating a step-change in the potential BP prosthesis options for patients in the future, propelled by a need-led approach. </p>

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Exploring the Darkverse: A Multi-Perspective Analysis of the Negative Societal Impacts of the Metaverse

Dwivedi,

Kshetri,

Hughes

et al. 2023

Inf Syst Front

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The Metaverse has the potential to form the next pervasive computing archetype that can transform many aspects of work and life at a societal level. Despite the many forecasted benefits from the metaverse, its negative outcomes have remained relatively unexplored with the majority of views grounded on logical thoughts derived from prior data points linked with similar technologies, somewhat lacking academic and expert perspective. This study responds to the dark side perspectives through informed and multifaceted narratives provided by invited leading academics and experts from diverse disciplinary backgrounds. The metaverse dark side perspectives covered include: technological and consumer vulnerability, privacy, and diminished reality, human–computer interface, identity theft, invasive advertising, misinformation, propaganda, phishing, financial crimes, terrorist activities, abuse, pornography, social inclusion, mental health, sexual harassment and metaverse-triggered unintended consequences. The paper concludes with a synthesis of common themes, formulating propositions, and presenting implications for practice and policy.

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Meaningful involvement of children and young people in health technology development

Cited by 6 publications

References 17 publications

A Novel Respiratory Control and Actuation System for Upper-Limb Prosthesis Users: Clinical Evaluation Study

A Novel Respiratory Control and Actuation System for Upper-Limb Prosthesis Users: Clinical Evaluation Study

A novel respiratory control and actuation system for upper-limb prosthesis users: Clinical evaluation study

Exploring the Darkverse: A Multi-Perspective Analysis of the Negative Societal Impacts of the Metaverse

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