Managing the Personal Side of Health: How Patient Expertise Differs from the Expertise of Clinicians

Hartzler, Andrea L.; Pratt, Wanda

doi:10.2196/jmir.1728

Cited by 207 publications

(163 citation statements)

References 53 publications

(68 reference statements)

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“…Oliveira et al (2015) found that 36% of all patients with a chronic condition or their relatives innovated in relation to their needs. These findings are in line with a growing body of literature that indicates that patients are gaining increased medical expertise in relation to their disease (Budych et al 2012;Hartzler and Pratt 2011;Greenhalgh 2009;Thorne et al 2000).…”

Section: Discussionsupporting

confidence: 87%

Are Patients and Relatives the Better Innovators? The Case of Medical Smartphone Applications

Goeldner

Herstatt

2016

SSRN Journal

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Standard-Nutzungsbedingungen:Die Dokumente auf EconStor dürfen zu eigenen wissenschaftlichen Zwecken und zum Privatgebrauch gespeichert und kopiert werden.Sie dürfen die Dokumente nicht für öffentliche oder kommerzielle Zwecke vervielfältigen, öffentlich ausstellen, öffentlich zugänglich machen, vertreiben oder anderweitig nutzen.Sofern die Verfasser die Dokumente unter Open-Content-Lizenzen (insbesondere CC-Lizenzen) zur Verfügung gestellt haben sollten, gelten abweichend von diesen Nutzungsbedingungen die in der dort genannten Lizenz gewährten Nutzungsrechte. www.econstor.eu Our findings show that users develop around 46% of all medical smartphone applications (apps). We analyzed 510,229 user ratings and found that apps designed by patients, relatives, and healthcare professionals are rated significantly better by App Store customers than apps created by professional software companies. Apps developed by patients' relatives achieve significantly more downloads and generate on average three times higher revenues per year. The initial medical smartphone app developments in the early days of the Apple App Store were mainly triggered by healthcare professionals. The interview data shows the extensive medical knowledge of patients and their relatives, particularly those with chronic diseases. Terms of use: Documents inThe overall findings are in line with a current literature stream that indicates that patients are gaining more influence on their treatment, are better informed, and are taking more actions to increase their quality of life. Commercial healthcare companies should take advantage of this and should consider including patients and relatives into their product development.

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Section: Discussionsupporting

confidence: 87%

Are Patients and Relatives the Better Innovators? The Case of Medical Smartphone Applications

Goeldner

Herstatt

2016

SSRN Journal

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“…Tensions due to perceived incompatibility between expertise types and sources can be experienced as cognitive inconsistency (Monge and Contractor 2003), leading consumers to question the legitimacy (Tost 2011) of clinical expertise, especially when compared with their experiential lay expertise (Hartzler and Pratt 2011).…”

Section: Structural Tension 3: Managing a Fragmented And Complex Servmentioning

confidence: 99%

Responsibility and Well-Being: Resource Integration under Responsibilization in Expert Services

Anderson

Spanjol

Jefferies

et al. 2016

Journal of Public Policy & Marketing

121

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Responsibilization, or the shift of functions and risks from providers and producers to consumers, has become an increasingly common policy in service systems and marketplaces (e.g., financial, health, governmental). Because responsibilization is often considered synonymous with consumer agency and well-being, the authors take a transformative service research perspective and draw on resource integration literature to investigate whether responsibilization is truly associated with well-being. The authors focus on expert services, for which responsibilization concerns are particularly salient, and question whether this expanding policy is in the public interest. In the process, they develop a conceptualization of resource integration under responsibilization that includes three levels of actors (consumer, provider, and service system), the identification of structural tensions to resource integration, and three categories of resource-integration practices (access, appropriation, and management) necessary to negotiate responsibilization. The findings have important implications for health care providers, public and institutional policy makers, and other service systems, all of which must pay more active attention to the challenges consumers face in negotiating responsibilization and the resulting well-being outcomes.

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“…Personal health informatics systems for tracking one's personal health variables have been attributed to promoting self-reflection and awareness in self-care (Aarhus et al 2009). Online health communities and forums have been shown to empower patients to learn from each other (Hartzler and Pratt 2011) and provide social-emotional support to patients who may not be able to obtain such support in their offline relationships (Preece 1998). Similarly, Internet-based social networks have been promoted as an effective way for patients to gain emotional support and help from family and friends (Skeels et al 2010;Pols 2012).…”

Section: Introductionmentioning

confidence: 99%

Turning to Peers: Integrating Understanding of the Self, the Condition, and Others’ Experiences in Making Sense of Complex Chronic Conditions

O’Kane

Park

Mentis

et al. 2016

Comput Supported Coop Work

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Abstract. People are increasingly involved in the self-management of their own health, including chronic conditions. With technology advances, the choice of self-management practices, tools, and technologies has never been greater. The studies reported here investigated the information seeking practices of two different chronic health populations in their quest to manage their health conditions. Migraine and diabetes patients and clinicians in the UK and the US were interviewed about their information needs and practices, and representative online communities were explored to inform a qualitative study. We found that people with either chronic condition require personally relevant information and use a broad and varied set of practices and tools to make sense of their specific symptoms, triggers, and treatments. Participants sought out different types of information from varied sources about themselves, their medical condition, and their peers' experiences of the same chronic condition. People with diabetes and migraine expended great effort to validate their personal experiences of their condition and determine whether these experiences were 'normal'. Based on these findings, we discuss the need for future personal health technologies that support people in engaging in meaningful and personalised data collection, information seeking, and information sharing with peers in flexible ways that enable them to better understand their own condition.

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Managing the Personal Side of Health: How Patient Expertise Differs from the Expertise of Clinicians

Cited by 207 publications

References 53 publications

Are Patients and Relatives the Better Innovators? The Case of Medical Smartphone Applications

Are Patients and Relatives the Better Innovators? The Case of Medical Smartphone Applications

Responsibility and Well-Being: Resource Integration under Responsibilization in Expert Services

Turning to Peers: Integrating Understanding of the Self, the Condition, and Others’ Experiences in Making Sense of Complex Chronic Conditions

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