Managing of oral medicines in paediatric oncology: can a handbook and a pharmaceutical counselling intervention for patients and their parents prevent knowledge deficits? A pilot study

Zimmer, J.; Niemann, Dorothee; Seltmann, Kirsten; Fischer, Lars; Christiansen, Holger; Frontini, Roberto; Kieß, Wieland; Neininger, Martina Patrizia; Bertsche, Astrid; Bertsche, Thilo

doi:10.1136/ejhpharm-2015-000716

Cited by 5 publications

(8 citation statements)

References 18 publications

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“…These results are similar to those of previous studies where pharmaceutical counseling significantly decreased deficits in knowledge about OAD management among parents, from 24% to 8%. 1 In contrast, we observed handling of OADs at home “in real life”, both before and after the intervention. We also educated parents on the handling procedures and provided them with materials in different forms.…”

Section: Discussionmentioning

confidence: 78%

“…29 It is assumed that errors in managing medicines are the result of lack of knowledge and that patient/parent education is crucial. 1,30,34 During the intervention we combined education in different forms, not only written and video clips but also practical training. Combining different educational forms gives the best outcomes for successful OAD treatment.…”

Section: Discussionmentioning

confidence: 99%

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Improved home management of oral pediatric anticancer drugs as a result of an intervention comprising practical training, written instructions and movie clips: A pilot study

Edelbi

Eksborg

Ekman

et al. 2022

J Oncol Pharm Pract

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Background Long term treatment of pediatric patients with oral anticancer drugs (OADs) requires the parents/caregivers to prepare the drug at home. The handling procedures in the home setting are, however, not regulated by Swedish law and the parents are often left without guidance on how to handle OADs in a safe way. Aim The aim of this study was to increase understanding of how OADs are handled by parents/caregivers in the home setting before and after an intervention. Methods Parents of pediatric cancer patients were observed and videotaped during their handling of OADs in the home setting before and after the intervention. During the intervention, the parents were provided with written instructions, movie clips and practical training on handling the OADs. Four checklists were used to compare and score the four handling procedures (measuring an oral suspension, cutting tablets, dissolving tablets, and opening capsules) for each parent before and after the intervention. Results The intervention significantly improved the OAD handling procedures among the studied parents. The median score for correct handling was 19% (IQR: 3.6 to 30%) before the intervention and 89.5% (IQR: 71.5 to 94.5%) after the intervention (p < 0.0001). Conclusions An intervention comprising practical training and information presented in different forms improved the handling of OADs at home by parents. There is an urgent need to implement this method in all oncology centers in Sweden, educate HCPs to standardize the presentation of information. There is also a great need to provide parents with age-appropriate oral drug formulations from the local hospital pharmacies in Sweden.

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Section: Discussionmentioning

confidence: 78%

Section: Discussionmentioning

confidence: 99%

Improved home management of oral pediatric anticancer drugs as a result of an intervention comprising practical training, written instructions and movie clips: A pilot study

Edelbi

Eksborg

Ekman

et al. 2022

J Oncol Pharm Pract

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“…O estudo A5 utilizou duas práticas educativas, entre elas, o aconselhamento farmacêutico. A consulta era relizada por um farmacêutico experiente que explicava e orientava os familiares das crianças e adolescentes sobre a terapia com antineoplásicos orais, quanto aos riscos e o gerenciamento seguro dos antineoplásicos (21) .…”

Section: Consulta Clínicaunclassified

“…O estudo A5 também utilizou um manual que possuía 60 páginas, direcionado aos cuidadores de crianças e adolescentes em tratamento com antineoplásicos orais, no qual foram explicados os riscos e o gerenciamento seguro dos medicamentos. O manual foi escrito em linguagem simples e as explicações foram ilustradas por imagens (21) .…”

Section: Produção De Materiais Educativos Impressosunclassified

Prǭticas educativas junto ��s fam��lias de crian��as e adolescentes em quimioterapia antineoplǭsica oral: revisǜo integrativa

Franco

Silva

Góes

et al. 2021

R. Enferm. Cent. O. Min.

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Objetivo: Analisar, nas produ��es cient��ficas, as prǭticas educativas empregadas para orienta��ǜo dos familiares e cuidadores de crian��as e adolescentes com cǽncer quanto ao tratamento quimioterǭpico antineoplǭsicos orais. MǸtodo: Revisǜo integrativa da literatura dispon��vel nas bases de dados LILACS via BVS, SCIELO, CINAHL, PUBMED e EMBASE, realizada no mǦs de setembro de 2020. Foram inclu��dos artigos originais que abordassem a temǭtica. Exclu��ram-se aqueles que focavam prǭticas educativas direcionadas a profissionais, pacientes adultos e outros tipos de quimioterapia. Resultados: A amostra foi constitu��da de cinco artigos internacionais. As evidǦncias foram agrupadas de acordo com o tipo de prǭtica educativa: consulta cl��nica, orienta��es em grupo com dinǽmicas, programa de manuten��ǜo domiciliar e produ��ǜo de materiais educativos impressos. Considera��es Finais: A educa��ǜo em saǧde Ǹ essencial no preparo de familiares de crian��as e adolescentes em quimioterapia antineoplǭsica oral e a equipe de enfermagem deve desenvolver treinamentos e orienta��es que promovam um cuidado integral, seguro e resolutivo.

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“…Aktuelle Studien [46] lassen die Schlussfolgerung zu, dass auch Kinder und Jugendliche selbst verstärkt Verantwortung für ihre eigene Arzneimitteltherapie übernehmen sollten. Die Kombination aus Schulungs-und Trainingseinheiten sowie bedarfsgerechter Arzneimittelinformation zeigte sich in [58] als effektiv, um Anwendungsfehlern von Patienten und Eltern im Bereich der pädiatrischen Hämatoonkologie vorzubeugen. Die genannten Konzepte können bspw.…”

Section: Arzneimittelanwendung -Eltern Bereits Stationär In Die Arzneunclassified

Interdisziplinäre Konzepte von Pädiatrie und Klinischer Pharmazie zur Optimierung der Antikonvulsivatherapie

et al. 2017

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Expertise in a variety of fields is required for the diagnostic process of epilepsies in children and adolescents as well as for their treatment with anticonvulsants. Patients benefit in the process from the cooperation of different health care professionals. It is of critical importance for risks to be minimised and for the efficacy shown in controlled clinical trials to be maintained in routine conditions. In the first instance, drug prescription procedures, including the choice of anticonvulsants and combinations of drugs and dosing, have to be considered. The administration of drugs has, of course, also to be taken into account. Only if patients are given their anticonvulsants appropriately, the intended success of the therapy can be accomplished. Strategies aimed at improving drug administration have to be directed not only at nurses but also at parents, children and adolescents themselves, as well as caregivers in schools and children's day-care facilities. By providing theoretical teaching, practical training, and routinely including pharmacists in the therapeutic team, drug-related problems that may result in limited effectiveness and increased risks are prevented. As a result, drug (therapy) safety is not only qualitatively improved, but the degree of participation and quality of life of patients and families is improved as well.

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Managing of oral medicines in paediatric oncology: can a handbook and a pharmaceutical counselling intervention for patients and their parents prevent knowledge deficits? A pilot study

Cited by 5 publications

References 18 publications

Improved home management of oral pediatric anticancer drugs as a result of an intervention comprising practical training, written instructions and movie clips: A pilot study

Improved home management of oral pediatric anticancer drugs as a result of an intervention comprising practical training, written instructions and movie clips: A pilot study

Prǭticas educativas junto ��s fam��lias de crian��as e adolescentes em quimioterapia antineoplǭsica oral: revisǜo integrativa

Interdisziplinäre Konzepte von Pädiatrie und Klinischer Pharmazie zur Optimierung der Antikonvulsivatherapie

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