Making work visible in a breast cancer support business

Abstract

Purpose Breast cancer support businesses, retail stores selling mastectomy-related products, are playing an expanding role within healthcare in the USA. As commercial spaces separate from the medical settings where most cancer treatment occurs, these businesses have been largely overlooked in studies of medical care providers and their experiences. The purpose of this paper is to seek to bring to light the meanings and dimensions of the care work provided by breast cancer support staff to newly diagnosed patients. Design/methodology/approach This project employed an ethnographic approach centered on the workers at one breast cancer support business. The first author carried out participant observation over a 20-month period and supplemented the observations with staff member interviews. Findings The analysis of field notes and interviews revealed two themes or purposes as central to the employees’ understanding of their work: defining the organizational setting as a nonmedical space and balancing image enhancement with comforting care. The findings show how values of client-centered care can be enacted in a for-profit healthcare setting. Research limitations/implications This study is limited to one for-profit support business in the southeastern USA. Practical implications Mastectomy supply businesses appear to offer a kind of support that patients may not be finding elsewhere or at the particular time they need it. Thus the study holds relevance for practitioners and health policy makers who are seeking to develop more comprehensive care for surgical patients within the established healthcare system. Originality/value This study gives a detailed picture of breast cancer support work, including the value premises and meanings it holds for support workers.

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“…The article entitled "Making work visible in a cancer support business" (Anderson and Jorgensen, 2019) sheds light on the work that breast cancer support staff perform in the USA. Based on open-ended interviews and observation of staff-customer interaction, store activity and the physical setting, the study illuminates how individuals whose work is located in the nexus of business and medicine negotiate potential contradictions and how this positions them within professional hierarchies.…”