Making public concerns tangible: An empirical study of German and UK citizens’ perception of data protection and data security

Pleger, Lyn Ellen; Guirguis, Katharina; Mertes, Alexander

doi:10.1016/j.chb.2021.106830

Cited by 20 publications

(7 citation statements)

References 60 publications

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“…Interestingly, concerns regarding data security were lower in The Netherlands compared to the UK and Australia. Based on existing literature this may be due to differences in interpretation and understanding of the term ‘data security’, as a result of differences in education level and familiarity with the terminology [ 36 , 37 ]. These findings suggest that it is important to involve patients from various demographics at the design stage when determining how to measure remote digital health outcomes in care or clinical trials.…”

Section: Discussionmentioning

confidence: 99%

Patient perspectives on digital healthcare technology in care and clinical trials for motor neuron disease: an international survey

et al. 2022

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Introduction To capture the patient’s attitude toward remote monitoring of motor neuron disease (MND) in care and clinical trials, and their concerns and preferences regarding the use of digital technology. Methods We performed an international multi-centre survey study in three MND clinics in The Netherlands, the United Kingdom, and Australia. The survey was co-developed by investigators and patients with MND, and sent to patients by e-mail or postal-mail. The main topics included: patients’ attitude towards remote care, participating in decentralized clinical trials, and preferences for and concerns with digital technology use. Results In total, 332 patients with MND participated. A majority of patients indicated they would be happy to self-monitor their health from home (69%), be remotely monitored by a multidisciplinary care team (75%), and would be willing to participate in clinical trials from home (65%). Patients considered respiratory function and muscle strength most valuable for home-monitoring. The majority of patients considered the use of at least three devices/apps (75%) once a week (61%) to be acceptable for home-monitoring. Fifteen percent of patients indicated they would not wish to perform home-measurements; reporting concerns about the burden and distress of home-monitoring, privacy and data security. Conclusion Most patients with MND exhibited a positive attitude toward the use of digital technology in both care and clinical trial settings. A subgroup of patients reported concerns with home-monitoring, which should be addressed in order to improve widespread adoption of remote digital technology in clinical MND care.

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Section: Discussionmentioning

confidence: 99%

Patient perspectives on digital healthcare technology in care and clinical trials for motor neuron disease: an international survey

et al. 2022

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“…Being aware that personal data are collected online allows people to recognize the role of such data in personalization processes. People are often uncertain about such processes (Auxier et al, 2019; Kang et al, 2015; Pleger et al, 2021). Existing research shows that people are not sure about the meaning of concepts such as “data protection” and “data security” (Pleger et al, 2021), about how personal data are collected and how they can be protected (Boerman et al, 2021; Kang et al, 2015), and that they often report a lack of understanding about what companies do with the collected data (Auxier et al, 2019).…”

Section: People's Awareness Of Personal Data Collection Onlinementioning

confidence: 99%

“…People are often uncertain about such processes (Auxier et al, 2019; Kang et al, 2015; Pleger et al, 2021). Existing research shows that people are not sure about the meaning of concepts such as “data protection” and “data security” (Pleger et al, 2021), about how personal data are collected and how they can be protected (Boerman et al, 2021; Kang et al, 2015), and that they often report a lack of understanding about what companies do with the collected data (Auxier et al, 2019). Additionally, people feel that they have little control over how their personal information is used (Auxier et al, 2019), feeling resigned to the fact that if they want to continue using online services there is nothing they can do against their data being collected (Hargittai and Marwick, 2016; Lutz et al, 2020).…”

Section: People's Awareness Of Personal Data Collection Onlinementioning

confidence: 99%

The importance of algorithm skills for informed Internet use

Gruber

Hargittai

2023

Big Data & Society

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Using the Internet means encountering algorithmic processes that influence what information a user sees or hears. Existing research has shown that people's algorithm skills vary considerably, that they develop individual theories to explain these processes, and that their online behavior can reflect these understandings. Yet, there is little research on how algorithm skills enable people to use algorithms to their own benefit and to avoid harms they may elicit. To fill this gap in the literature, we explore the extent to which people understand how the online systems and services they use may be influenced by personal data that algorithms know about them, and whether users change their behavior based on this understanding. Analyzing 83 in-depth interviews from five countries about people's experiences with researching and searching for products and services online, we show how being aware of personal data collection helps people understand algorithmic processes. However, this does not necessarily enable users to influence algorithmic output, because currently, options that help users control the level of customization they encounter online are limited. Besides the empirical contributions, we discuss research design implications based on the diversity of the sample and our findings for studying algorithm skills.

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“…In terms of online privacy norms, social media users observe their peers protecting their own or other people’s privacy (e.g., by limiting visibility or the audience for posts), which signals the desirability of privacy protection (Lewis et al, 2008; Utz & Krämer, 2009). Besides peers as sources of normative information, individuals are exposed to news media that cover the shortcomings of data protection of social media services, and large-scale data breaches (Pleger et al, 2021). A comprehensive content analysis of German press coverage in 2014–2015 showed that across different news media, coverage of privacy is associated with a consensus that the level of privacy protection in digital technologies is generally low (von Pape et al, 2017), which may promote the normative belief that protecting one’s personal information is desirable.…”

Section: The Explanatory Value Of Norms For Personal Privacy Regulationmentioning

confidence: 99%

How Subjective Norms Relate to Personal Privacy Regulation in Social Media: A Cross-National Approach

Neubaum

Metzger

Krämer

et al. 2023

Social Media + Society

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The growing body of research on privacy documents cross-cultural differences in the way people manage their privacy in social media. Yet, cultural values do not provide a consistent account for these differences. Drawing on communication privacy management theory, this work argues that different governmental approaches of privacy regulation shape users' subjective norms in the form of perceived rules about how to manage personal and collective boundaries. These subjective privacy norms may better explain cross-national differences in people's online privacy behavior. We conducted a survey (N = 1,060) among Facebook users in two countries in which privacy regulation policies vary significantly: the United States and Germany. While US users self-disclose more than German users do, they also take more measures to protect their privacy on Facebook. US users perceive stronger norms to protect themselves than German users. These findings inform communication privacy management theory and the influence of privacy rules within and across national borders.

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Making public concerns tangible: An empirical study of German and UK citizens’ perception of data protection and data security

Cited by 20 publications

References 60 publications

Patient perspectives on digital healthcare technology in care and clinical trials for motor neuron disease: an international survey

Patient perspectives on digital healthcare technology in care and clinical trials for motor neuron disease: an international survey

The importance of algorithm skills for informed Internet use

How Subjective Norms Relate to Personal Privacy Regulation in Social Media: A Cross-National Approach

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