Longitudinal examination of family efficacy following pediatric stem cell transplant

Tillery, Rachel; Joffe, Naomi E.; Mara, Constance A.; Davies, Stella M.; Pai, Ahna L. H.

doi:10.1002/pon.4741

Cited by 11 publications

(8 citation statements)

References 39 publications

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“…In the study by Chen et al (2018), participants reported the highest family resilience within the first year since a parent was diagnosed with cancer. In some studies, parents' distress was found to be highest and the children's resilience was found to be lowest in the early months after diagnosis of pediatric illness (Mu et al, 2015;Peterson et al, 2020); however, in another study, parental stress and child psychological resources showed no significant association with family resilience in the first year following the diagnosis of pediatric chronic illness (Tillery et al, 2018). Therefore, it is plausible that a family's ability to persevere in the aftermath of adversity is more stable than an individual's resilience.…”

Section: Discussionmentioning

confidence: 94%

Family Resilience and Its Association with Psychosocial Adjustment of Children with Chronic Illness: A Latent Profile Analysis

Dong

Pan

et al. 2021

Journal of Pediatric Nursing

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Purpose: The purpose of this study was to investigate the characteristics of family resilience in a sample of Chinese families with children diagnosed with chronic illness using Latent Profile Analysis (LPA). In particular, we examined the association of family resilience profiles with the psychosocial adjustment of children, and identified the socio-demographic correlates of these latent profiles. Design and methods: A cross-sectional study was conducted at comprehensive hospitals and children hospitals in three cities (Hangzhou, Ningbo and Wenzhou) of Zhejiang province, China. Parents (n = 277) of children diagnosed with a chronic illness completed a socio-demographic questionnaire, the Chinese version of the family resilience assessment scale, and the Strengths and Difficulties Questionnaire. Results: A three-class solution was found to demonstrate the best fit [low family resilience (74.7%), moderate family resilience (14.1%), and high family resilience (11.2%)]. One-way ANOVA revealed significant differences between the three groups with respect to peer relationship problems and pro-social behaviors of children. On multinomial logistic regression analysis, the type of childhood chronic disease, time since diagnosis, family monthly income, medical insurance, and parents employment status significantly predicted the profile membership. Conclusion: Inadequate family resilience was found to be a common phenomenon in families with children affected by chronic illness. Family resilience profiles were associated with psychological adjustment of children. Practice implication: Our findings may help inform tailored family-strength based interventions to promote better psychosocial adjustment of children with chronic illness.

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Section: Discussionmentioning

confidence: 94%

Family Resilience and Its Association with Psychosocial Adjustment of Children with Chronic Illness: A Latent Profile Analysis

Dong

Pan

et al. 2021

Journal of Pediatric Nursing

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“…Family is a central aspect in pediatric oncology (Avoine-Blondin et al, 2018; Erker et al, 2018; Tillery, Joffe, Mara, Davies, & Pai, 2018). Pediatric oncology nursing practice is grounded in the philosophy of family-centered care, according to which the pediatric patient is cared for in the context of the family (Tillery et al, 2018; Toruner & Altay, 2018). Factors such as family coping, family history with the symptoms, family resources, and family well-being are relevant influencing factors on children with cancer.…”

Section: Analysis Of the Tous In The Context Of Pediatric Oncology Numentioning

confidence: 99%

The Theory of Unpleasant Symptoms in Pediatric Oncology Nursing: A Conceptual and Empirical Fit?

Silva-Rodrigues

Hinds

Nascimento

2019

J Pediatr Oncol Nurs

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Symptom management knowledge is a priority for pediatric oncology nursing research. Theories and models can frame the studies of symptoms experienced during childhood cancer. This article describes and analyzes the middle-range theory, theory of unpleasant symptoms (TOUS), for its conceptual and empirical fit with pediatric oncology nursing based on its current use in adult oncology research and its limited use to date in pediatric oncology. Searches in PubMed and CINAHL databases using the keywords theory of unpleasant symptoms and cancer and covering the time period 2000 to 2017 yielded 103 abstracts for review. Twenty published reports met eligibility criteria for review; only one included pediatric oncology patients. No study to date has tested all the components of the TOUS in pediatrics. The TOUS component of performance appears to be underaddressed across completed studies that instead include a focus on patient-reported quality of life rather than on perceived behavioral or performance indicators concurrent with the subjective symptom reports. Additionally, the influence of family, essential in pediatric oncology, is absent in the majority of studies guided by the TOUS. The TOUS is a structurally complicated framework that would be a conceptual fit for pediatric oncology if family influence and perceived function were included. Studies across this population and guided by the TOUS are needed, although testing all the theorized linkages in the TOUS would likely require a large sample size of patients and, thereby, multisite approaches given that cancer is a rare disease in childhood.

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“…A study by Peterson et al [34] in Project 2 of caregiver self-efficacy provides further support for the premise about the impact of parents' personal resources on children's responses to treatments. Although other researchers (e.g., [35][36][37]) have studied general self-efficacy among parents of pediatric cancer patients and its relationship to overall distress, Peterson et al focused on a specific kind of caregiver self-efficacy-the expectation or confidence that the caregiver can effectively cope with and succeed at specific treatment-related tasks [38]. They examined the personal resources associated with differences in caregiver self-efficacy and the effects of parents' self-efficacy on children's responses to cancer treatments.…”

Section: Premise Two: Parent Resources Influence Children's Responsesmentioning

confidence: 99%

Understanding differences in the long-term psychosocial adjustment of pediatric cancer patients and their parents: an individual differences resources model

Harper

Albrecht

Trentacosta

et al. 2019

Translational Behavioral Medicine

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The experience of childhood cancer is a major life stressor for children and their parents. There is substantial variability among pediatric cancer patients and their parents in their ability to cope with the cancer. Although other models typically focus on the psychological resources families use to broadly cope with a diagnosis of pediatric cancer, we present a model that focuses specifically how parents and children cope with the stress of invasive and often painful treatment episodes. Our resources model is further distinct with its focus on individual differences in personal (e.g., personality traits) and social (e.g., social support) resources and the role these differences may play in psychosocial adjustment of families confronting pediatric cancer. We use findings from the broader pediatric cancer research literature and our own 15-year program of research on individual differences in psychological resources and parents and children's responses to treatment episodes to provide empirical support for our model. Support was found for the six premises of the model: (a) parent resources influence their longer-term psychosocial adjustment, (b) parent resources influence children's responses to treatment episodes, (c) parent resources indirectly influence their longer-term psychosocial adjustment through their responses to treatment episodes, (d) children's personal resources influence how parent responses to treatment episodes, (e) children's resources influence their longer-term psychosocial adjustment, and (f) children's resources indirectly influence their longer-term psychosocial adjustment through their responses to treatment episodes. Understanding how the availability of resources influences parents and children confronting cancer provides a foundation for future research on individual differences in resources and offers other avenues through which clinicians can assess and treat families at risk for poor psychosocial adjustment during treatment and in their life beyond cancer treatments.

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Longitudinal examination of family efficacy following pediatric stem cell transplant

Abstract: Most families perceive themselves as resilient following pSCT. Social relationships and support are critical in maintaining a family's sense of efficacy during the arduous pSCT course.

Cited by 11 publications

References 39 publications

Family Resilience and Its Association with Psychosocial Adjustment of Children with Chronic Illness: A Latent Profile Analysis

Family Resilience and Its Association with Psychosocial Adjustment of Children with Chronic Illness: A Latent Profile Analysis

The Theory of Unpleasant Symptoms in Pediatric Oncology Nursing: A Conceptual and Empirical Fit?

Understanding differences in the long-term psychosocial adjustment of pediatric cancer patients and their parents: an individual differences resources model

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