Long-Term Results of Pediatric Cardiac Surgery in Finland: Education, Employment, Marital Status, and Parenthood

Nieminen, Heta; Sairanen, Heikki; Tikanoja, Tero; Leskinen, Markku; Ekblad, Henrik; Galambosi, Päivi; Jokinen, Eero

doi:10.1542/peds.112.6.1345

Cited by 51 publications

(56 citation statements)

References 25 publications

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“…This is in accordance with a Finnish study (Nieminen et al 2003), but in two other reports the results had been into the opposite direction (Crossland et al 2005;Kamphuis et al 2002). Differences between studies examining employment status may also result out of country-specific prospects of providing jobs to women and men with impairments.…”

Section: Discussionsupporting

confidence: 89%

“…In two of these studies employment of women and men had not been considered separately (Crossland et al 2005;Kamphuis, Vogels et al 2002), although they are differing with respect to part-time and full-time employment. In one study gender was controlled for (Van Rijen et al 2003), but in only one separate analyses for women and men had been performed (Nieminen et al 2003).…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Chances of Employment in a Population of Women and Men after Surgery of Congenital Heart Disease: Gender-Specific Comparisons between Patients and the General Population

Geyer¹,

Norozi²,

Buchhorn³

et al. 2008

SSRN Journal

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Standard-Nutzungsbedingungen:Die Dokumente auf EconStor dürfen zu eigenen wissenschaftlichen Zwecken und zum Privatgebrauch gespeichert und kopiert werden.Sie dürfen die Dokumente nicht für öffentliche oder kommerzielle Zwecke vervielfältigen, öffentlich ausstellen, öffentlich zugänglich machen, vertreiben oder anderweitig nutzen.Sofern die Verfasser die Dokumente unter Open-Content-Lizenzen (insbesondere CC-Lizenzen) zur Verfügung gestellt haben sollten, gelten abweichend von diesen Nutzungsbedingungen die in der dort genannten Lizenz gewährten Nutzungsrechte. Terms of use: Documents in SOEPpapers on Multidisciplinary Panel Data Research at DIW BerlinThis series presents research findings based either directly on data from the German SocioEconomic Panel Study (SOEP) or using SOEP data as part of an internationally comparable data set (e.g. CNEF, ECHP, LIS, LWS, CHER/PACO). SOEP is a truly multidisciplinary household panel study covering a wide range of social and behavioral sciences: economics, sociology, psychology, survey methodology, econometrics and applied statistics, educational science, political science, public health, behavioral genetics, demography, geography, and sport science.The decision to publish a submission in SOEPpapers is made by a board of editors chosen by the DIW Berlin to represent the wide range of disciplines covered by SOEP. There is no external referee process and papers are either accepted or rejected without revision. Papers appear in this series as works in progress and may also appear elsewhere. They often represent preliminary studies and are circulated to encourage discussion. Citation of such a paper should account for its provisional character. A revised version may be requested from the author directly. performed according to a system proposed by the New York Heart Association in order to take subjectively reported impairments into account. Controls (N=1165) consisted of a 10% random sample drawn from the German Socio-Economic Panel. Chances of full-time employment decreased as disease severity increased. Chances of part-time and minor employment were higher in patients than among controls. These general effects were due to male patients, while the employment patterns of women did not differ from the control group.Independently of patient status women were more likely to have lower rates of full-time employment, and the rates of part-time and minor employment were higher.Long-term adaptation to impairments due to congenital heart disease differs between women and men with respect to employment status. While female patients do not differ from the general population, males may lower their engagement in paid work.

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Section: Discussionsupporting

confidence: 89%

Section: Introductionmentioning

confidence: 99%

Chances of Employment in a Population of Women and Men after Surgery of Congenital Heart Disease: Gender-Specific Comparisons between Patients and the General Population

Geyer¹,

Norozi²,

Buchhorn³

et al. 2008

SSRN Journal

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“…Nevertheless, most patients with CHD appear to enjoy a good quality of life as adults [27][28][29][30][31][32] . In a detailed quality of life study from Belgium, 514 adults with CHD were compared to a matched control group from the general population at a median age of 23 years [33] .…”

Section: Adults With Chd-a Growing Population At Risk For Depression?mentioning

confidence: 99%

Depression in adults with congenital heart disease-public health challenge in a rapidly expanding new patient population

Pauliks¹

2013

WJC

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There is a growing population of adults with congenital heart disease (CHD) due to improved survival beyond childhood. It has been suggested that adults with CHD may be at increased risk for mental health problems, particularly depression. The reported incidence of depression in CHD varies from 9% to 30%. This review examines the evidence for a higher depression rate in CHD vs general population. Possible explanations are offered from a variety of disease models, ranging from brain injury to the psychoanalytical approach. Risk factors for an abnormal emotional adjustment and depression include early exposure to stress from illness and medical interventions in infancy, separation from the parents during hospitalizations and brain organic syndromes. Later in life, patients often have to cope with physical limitations. Recent improvements in care may be protective. Current patients may benefit from an earlier age at first surgical intervention, fewer reoperations and inclusion to the mainstream schooling, among other factors. At this point, there is little systematic knowledge about evidence-based therapeutic interventions for depression in adults with CHD. Health care providers of patients with CHD should be aware of mental health challenges and may take a more proactive approach to identifying patients at risk for depression.

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“…These trends have led to an increasing interest in the investigation of long-term psychological functioning, social aspects, perceived health status and quality of life of adult CHD survivors [3]. A number of studies have focused on employment and education, with most suggesting a negative impact imposed by CHD, albeit to varying degrees [4][5][6][7][8][9][10].…”

Section: Introductionmentioning

confidence: 99%

“…In 2003, Nieminen et al compared data about psychosocial factors, including employment and educational level, in 2896 operated ACHD patients who answered a mailed questionnaire, with general Finnish population data and found no significant differences in educational and employment level [10]. All the other studies reported varying degrees of disadvantages for employment and/or educational achievements for ACHD patients, especially those with more complex disease.…”

mentioning

confidence: 99%

Congenital Heart Disease has no Negative Impact on Educational Achievements and Employment among Maltese Adult Patients under Clinical Follow-Up

Caruana¹,

Grech²

2016

ICFJ

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Background: Most children born with congenital heart disease (CHD) nowadays survive into adulthood. The aim of this study was to investigate the potential impact of CHD on educational achievements and employment in Maltese adult patients.Methods: A bespoke self-reporting questionnaire based on the 2008 European Health Interview Survey (EHIS 2008) was distributed to 162 consecutive Maltese adult congenital heart disease (ACHD) patients at time of hospital follow-up for the 1-year period May 2013-May 2014. Education and employment in the ACHD cohort were compared with those from 372 randomly-selected age- and sex-matched EHIS 2008 responders (general population cohort). Chi-squared and Fisher Exact tests were used for categorical variables, and Mann-Whitney U test was applied to numerical variables.Results: There were 125 ACHD responders (65 males, mean age 30.64±12.80 years). Nineteen patients had mild CHD, 85 had moderate lesions and 21 had severe disease. Patients with moderate/severe CHD had undergone significantly more cardiac procedures (mean 1.79; 95% CI 1.56,2.02) compared to patients with mild disease (mean 0.68; 95% CI 0.40,0.96) (p<0.001). There were no significant differences in educational achievements, employment rate or working patterns between the 2 cohorts, but significantly more ACHD patients had higher-skilled occupations (82.1%) compared to the general population (67.5%; p=0.01), with this difference being restricted to male subjects. There were no significant differences in education and employment upon comparison of patients with mild and moderate/severe disease.Conclusions: This study suggests that, in Malta, ACHD has no negative impact on educational achievements and employment.

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Long-Term Results of Pediatric Cardiac Surgery in Finland: Education, Employment, Marital Status, and Parenthood

Abstract: Our results confirm that in addition to high survival rate, the long-term psychosocial outcome of patients with surgically treated congenital heart defects is good if they do not have any additional syndromes that cause mental retardation.

Cited by 51 publications

References 25 publications

Chances of Employment in a Population of Women and Men after Surgery of Congenital Heart Disease: Gender-Specific Comparisons between Patients and the General Population

Chances of Employment in a Population of Women and Men after Surgery of Congenital Heart Disease: Gender-Specific Comparisons between Patients and the General Population

Depression in adults with congenital heart disease-public health challenge in a rapidly expanding new patient population

Congenital Heart Disease has no Negative Impact on Educational Achievements and Employment among Maltese Adult Patients under Clinical Follow-Up

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