Living with the long-term consequences 11-13 years after stroke: A phenomenological study

Erikson, Anette; Karlsson, Gunnar; Tham, Kerstin

doi:10.2340/16501977-2161

Cited by 12 publications

(25 citation statements)

References 31 publications

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“…In two recent interview studies [ 16 , 26 ] it was found that in a long-term perspective, stroke was no longer an issue, but had been integrated as a new normality, and other life events were more significant for the experience of participation. In contrast, another interview study [ 46 ] which included participants who were 11–13 years after stroke, concluded that only two out of eleven study participants had successfully adapted to their lives after stroke.…”

Section: Discussionmentioning

confidence: 94%

Long-term participation 7-8 years after stroke: Experiences of people in working-age

2019

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ObjectiveTo enhance the understanding of long-term participation in working-aged people 7–8 years after stroke.MethodsThis study had a qualitative design, using a thematic analysis methodology. Eleven individuals took part in an in depth interview 7–8 years after a first time stroke. They had received care at the Sahlgrenska University Hospital in Gothenburg, and were recruited as a heterogenic sample with respect to age, gender, stroke severity and subtype.ResultsFrom the participants’ experiences four themes emerged: “Returning to work after stroke”; “Working life 7–8 years after stroke”; “Social life 7–8 years after stroke”; and “A state of reorientation in life”. Quotes about experienced participation in everyday life were summarized and presented as “Participation after stroke narratives”. Participants chose to emphasize on work- and social life when describing situations of successful participation. Being included in the wider community and having a sense of purpose, when interacting with others, were factors that these narratives had in common. Participants had gradually become accustomed to a somewhat altered life situation. Some consequences after stroke were still considered frustrating in social or work situations. However, the importance of these issues had reduced and were no longer problematized.ConclusionsParticipants felt content with their everyday life in general, which was a principal and positive result of this study. Reaching a stage of acceptance seemed to be a complex and continuous struggle, and an individual approach in long-term rehabilitation would be valuable to support this personal process. More knowledge about what factors that facilitate participation in people of working-age many years after stroke is needed, so that more people can reach a state of positive identity and participation.

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Section: Discussionmentioning

confidence: 94%

Long-term participation 7-8 years after stroke: Experiences of people in working-age

2019

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“…However, rehabilitation interventions and research in rehabilitation after stroke often focus on the first year of recovery, and there is less knowledge on functioning in everyday life and the needs for rehabilitation and support in the long-term. Nevertheless, studies show that there are persistent long-term consequences after stroke [8][9][10], indicating a need to increase the understanding of how such consequences can be reduced. Furthermore, many people, with persisting declined functioning post stroke, report unmet needs for rehabilitation in many different areas [11][12][13][14][15][16].…”

Section: Introductionmentioning

confidence: 99%

Factors related to met needs for rehabilitation 6 years after stroke

et al. 2020

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Introduction Research on stroke rehabilitation mainly concerns the first year of recovery, and there is a lack of knowledge regarding long-term rehabilitation needs and associated factors. Aim The aim was to explore the perceived needs for rehabilitation services of people six years after stroke and factors associated with having rehabilitation services needs met. Methods The study was a 6-year follow up of a prospective study on the rehabilitation process after stroke. Data on perceived needs for rehabilitation, personal factors, disease specific factors, and patient-reported disability were collected through face-to-face interviews in the participants' homes. Logistic regression models were created to explore associations between having rehabilitation services needs met in 11 problem areas (dependent variable) and the independent variables: involvement in decisions regarding care and treatment, sex, age, sense of coherence, self-defined level of private financing, stroke severity, frequency of social everyday activities, perceived impact of stroke, and life satisfaction. Results The 121 participants had a mean age of 63 years at stroke onset and 58% were men. In all problem areas the majority (53-88%) reported having needs met at six years after stroke, however 47% reported unmet needs regarding fatigue and 45% regarding mobility. A lower perceived impact on participation was found to be associated with having rehabilitation services needs met in seven problem areas: mobility, falls, pain, fatigue, concentration, memory, and sight. The strongest association for having needs met was found for the independent variable, involvement in care and treatment, within the three problem areas mobility, falls, and speaking.

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“…Based on the few existing long-term studies, participation in activities tend to increase during the first 12 months after a stroke and then remain relatively stable [3,16,49], though at a lower level then pre-stroke [18]. The studies that have explored the longterm adaptation process after stroke [22,40,50] describes experiences of initial loss and disruption of the former self, struggles to reclaim activities and identity, and finding meaning through a new and changed life. The importance of supporting appropriate coping strategies throughout this long-term process has been stressed [22].…”

Section: Discussionmentioning

confidence: 99%

Participation in social and leisure activities while re-constructing the self: understanding strategies used by stroke survivors from a long-term perspective

Norlander

Iwarsson

Jönsson

et al. 2021

Disability and Rehabilitation

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Living with the long-term consequences 11-13 years after stroke: A phenomenological study

Cited by 12 publications

References 31 publications

Long-term participation 7-8 years after stroke: Experiences of people in working-age

Long-term participation 7-8 years after stroke: Experiences of people in working-age

Factors related to met needs for rehabilitation 6 years after stroke

Participation in social and leisure activities while re-constructing the self: understanding strategies used by stroke survivors from a long-term perspective

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