Participation in social and leisure activities while re-constructing the self: understanding strategies used by stroke survivors from a long-term perspective

Norlander, Anna; Iwarsson, Susanne; Jönsson, Ann-Cathrin; Lindgren, Arne; Lexell, Eva Månsson

doi:10.1080/09638288.2021.1900418

Cited by 18 publications

(22 citation statements)

References 47 publications

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“…In this study, practising ‘ well-being and fitness ’ such as eating well or undertaking exercise was a mechanism for improving health and ability, subsequently facilitating a return to activities, including those of a physical nature such as golf or the gym. Optimising physical and cognitive capacity, for example through exercise or skills training has been recognized before as a strategy for engagement in valued social and leisure activities post-stroke [ 28 ]. Other facilitators for engagement identified in this study have also been acknowledged previously such as self-management techniques including a positive attitude to stroke recovery, determination, persistence, self-belief and motivation to participate [ 15 , 22 , 24 , 28 ].…”

Section: Discussionmentioning

confidence: 99%

“…Optimising physical and cognitive capacity, for example through exercise or skills training has been recognized before as a strategy for engagement in valued social and leisure activities post-stroke [ 28 ]. Other facilitators for engagement identified in this study have also been acknowledged previously such as self-management techniques including a positive attitude to stroke recovery, determination, persistence, self-belief and motivation to participate [ 15 , 22 , 24 , 28 ].…”

Section: Discussionmentioning

confidence: 99%

“…More importantly, for any intervention designed to promote engagement in social and leisure activities, we should also consider patients without existing ability and support in place. Lastly, it should be noted that re-engagement in social and leisure activities after stroke is a long-term process, subject to changes in life situation and health that may require various types of support during different stages of recovery and adaptation [ 28 ].…”

Section: Discussionmentioning

confidence: 99%

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Returning to Leisure Activity Post-Stroke: Barriers and Facilitators to Engagement

Harrison

Thetford

Reeves

et al. 2022

IJERPH

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Objectives: To identify barriers and facilitators to engagement when returning to, or participating in, leisure activity post-stroke or Transient Ischemic Attack (TIA). Design: Sequential explanatory, mixed methods study. Setting: 21 hospital sites across England, Wales and Northern Ireland. Participants: Adults with a clinical diagnosis of first/recurrent stroke or TIA. Patients approaching end of life were excluded. Participants were recruited as in-patients or at first clinic appointment and a baseline questionnaire was completed. A 6-month follow-up questionnaire was sent to participants for self-completion. Open-text questions were asked about barriers and facilitators when returning to, or participating in, leisure activity. Responses were thematically analysed and explored by participant characteristics, including type of leisure activity undertaken. Characteristics also included measures of socioeconomic deprivation, mood, fatigue and disability. Results: 2000 participants returned a 6-month follow-up questionnaire (78% stroke, 22% TIA); 1045 participants responded to a question on barriers and 820 on facilitators. Twelve themes were identified and the proportion of responses were reported (%). Barriers: physical difficulties (69%), lower energy levels (17%), loss of independence (11%), psychological difficulties (10%), hidden disabilities (7%), and delay or lack of healthcare provision (3%). Facilitators: family support (35%), healthcare support (27%), well-being and fitness (22%), friendship support (20%), self-management (19%), and returning to normality (9%). ‘Physical difficulties’ was the most reported barrier across all participant characteristics and activity types. Family support was the most reported facilitator except for those with greater disability, where it was healthcare support and those without fatigue where it was well-being and exercise. Conclusions: Physical difficulties and lack of energy are problematic for stroke and TIA survivors who want to return to or participate in leisure activity. Healthcare support alone cannot overcome all practical and emotional issues related to leisure activity engagement. Family support and improving well-being are important facilitators and future research should explore these mechanisms further.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Returning to Leisure Activity Post-Stroke: Barriers and Facilitators to Engagement

Harrison

Thetford

Reeves

et al. 2022

IJERPH

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“…Therefore, aiming to emphasise social reintegration as a long-term goal, 44 several studies highlight the need to consider other underinvestigated factors, such as the influence of the primary caregiver and the family environment 36 ; environmental factors such as climate and daylight hours 33 ; or the impact of treatments focusing on health education 45 and the person-centred model. 2…”

Section: Introductionmentioning

confidence: 99%

Multidimensional analysis of sedentary behaviour and participation in Spanish stroke survivors (Part&Sed-Stroke): a protocol for a longitudinal multicentre study

Diego-Alonso

Alegre-Ayala²,

Buesa-Estéllez³

et al. 2023

BMJ Open

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IntroductionStroke survivors usually experience long-lasting functional, emotional and social consequences that might contribute to sedentary behaviour and participation restrictions, which are important targets to address during rehabilitation. However, the trajectory and inter-relationship between these factors are unknown.Methods and analysisPart&Sed is a research project based on an observational study design with 6 and 12 months of follow-ups in stroke survivors. In addition, a qualitative analysis of the impact of the stroke on the stroke survivor, validation of the Satisfaction with Daily Occupation-Occupational Balance assessment tool and analysis of the reliability of the Fitbit Inspire 2 activity tracker wristband will be carried out. Participants will be chronic stroke survivors with independent walking capacity. Sociodemographic and clinical data, physical activity, ambulation, sleep, quality of life, anxiety and depression, community participation, and occupational satisfaction and balance, as well as data provided by the activity tracker wristband, will be collected. In addition, if the participant has a primary caregiver, the caregiver will also be monitored. A minimum of 130 participants will be recruited to conduct a random-effects multiple regression model. Mixed models for repeated measures will assess the variation over time of the different variables associated with participation and sedentary behaviour. Psychometric properties (eg, internal consistency, construct validity, test–retest reliability) of the Satisfaction with Daily Occupation-Occupational Balance will be determined. Additionally, intraclass correlation coefficients and minimum detectable change will be calculated to assess intrasubject reliability of physical activity and sleep parameters recorded by the Fitbit Inspire 2. The qualitative analysis process will be carried out using the analysis proposed by Giorgi.Ethics and disseminationThe study received ethical approval from the Spanish Regional Ethics Committee ‘Comité de Ética de la Investigación de la Comunidad de Aragón’ (PI21/333). The results will be made available via peer-reviewed publications, international conferences and official channels.

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“…People's choices of activities depend on many things, such as their physical and physiological make-up, their level of physical fitness, their environment, and their family and social background. According to Norlander et al, (2021) compensatory theory of leisure, leisure is viewed in relation to work; leisure stems from and is influenced by work, in the sense that leisure is used to compensate for the strains or demands of work. It is hypothesized that high school teachers who are confined to the classroom during the working day will choose to engage in recreational activities during their free time, which is in direct contrast to the work environment.…”

Section: Introductionmentioning

confidence: 99%

Participation in Recreational Activities and Stress Management Relationship Among High School Teachers in Lopez Jaena

Nisnisan

Adlawan

2022

Am. J. Arts Hum. Sci.

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The study aimed to determine the relationship between participation in recreational activities and stress management among high school teachers in Lopez Jaena during SY 2018–2019. The study used an evaluative-inferential research design that used quantitative and qualitative descriptive-correlational approaches to interpret the data. There were 119 respondents, with 34 males and 85 females. The instruments were adopted from those made by Prof. Henry C. Daut’s SPEAR 174 class in 1994 for participation in recreational activities and by Della Franklin in 2008 for managing stress. The study found that most of the respondents were young adults or middle-aged females; the majority were Cebuano; married; most were regular or permanent employees, with salary income ranging from ₱10, 001.00 to ₱20, 000.00. Almost all the respondents participated in one recreational activity. The relationship between the variables showed that daily schedule is related to monthly income; money involvement in recreation is related to age; cost of money is related to sex; venue/place is related to ethnicity; off-campus is related to the tenure of work and monthly income; recreation activities are related to age, and involvement in recreation is related to age. It was also found that the correlation between moderating variables and stress management revealed a highly significant relationship with ethnicity. It was concluded that the correlation between recreational activities and stress management revealed that the cost of participating in recreational activities is highly correlated with stress management. Results from this study suggest that policymakers create ideas and plan programs to engage teachers in recreational activities to lessen work-related stress. The school administration should also provide a recreational activity center that will cater to the recreational activities needed for the development of recreation among schoolteachers. Future researchers should conduct similar studies using a broader scope.

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Participation in social and leisure activities while re-constructing the self: understanding strategies used by stroke survivors from a long-term perspective

Abstract: Lexell (2021): Participation in social and leisure activities while re-constructing the self: understanding strategies used by stroke survivors from a long-term perspective, Disability and Rehabilitation,

Cited by 18 publications

References 47 publications

Returning to Leisure Activity Post-Stroke: Barriers and Facilitators to Engagement

Returning to Leisure Activity Post-Stroke: Barriers and Facilitators to Engagement

Multidimensional analysis of sedentary behaviour and participation in Spanish stroke survivors (Part&Sed-Stroke): a protocol for a longitudinal multicentre study

Participation in Recreational Activities and Stress Management Relationship Among High School Teachers in Lopez Jaena

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