«Living with rheumatoid arthritis» in an indigenous qom population in Argentina. A qualitative study

Quintana, Rosana; Fernández, Sofía Berlanga; Orzuza, Stella Maris; Silvestre, Adriana; Bensi, Ana; Goñi, Mario; Gómez‐Iglesias, Patricia; Mathern, Nora; García-Bianco, Vanina; Honeri, Andrés; Pons-Éstel, Bernardo A; Valdata, Marcela; Peláez‐Ballestas, Ingris

doi:10.1016/j.reumae.2020.04.006

Cited by 5 publications

(11 citation statements)

References 28 publications

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“…43 The coexistence of several chronic conditions involving systemic inflammatory processes and deterioration in functional capacities leads to a greater impact on the quality of life and greater demand of health services, to which many populations in Latin America have no universal access. Indeed, the results of this analysis identified several clusters with partial or no access to medical care coinciding with greater comorbidity (clusters 1, 10,11). The association between RMD severity and comorbidities as biological interactions is clear, but it is important to correlate these at a social level, since not having access to timely diagnoses or specialised care increases the possibility of greater comorbidity and complications.…”

Section: Discussionmentioning

confidence: 91%

“… 8 24 40 46 Indigenous communities are among the most vulnerable groups and, due to the conditions described above, their inclusion into the healthcare system is complex. 11 46 47 …”

Section: Discussionmentioning

confidence: 99%

“…In addition, the interpretation of these symptoms may be one of the causes of delay in seeking specialised care. 11 The relationship between ethnicity and health outcomes seems to be influenced by acculturation, that is, when one ethnic group is forced to adopt the beliefs and practices of another, the members develop negative health behaviours as coping mechanisms. 45 Health systems in Latin America are diverse and complex.…”

Section: Discussionmentioning

confidence: 99%

“…Epidemiological studies have documented a prevalence of RMD between 23% and 46.5% in Latin America, with more aggressive presentations (higher morbidity and mortality) among Indigenous populations. Genetic predisposition to systemic lupus erythematosus has also been identified among Indigenous groups,8 as well as a high prevalence of rheumatoid arthritis (RA) among Indigenous Mayan groups of Yucatan, Mexico9 and the Qom of Argentina 10 11…”

Section: Introductionmentioning

confidence: 99%

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Inequity and vulnerability in Latin American Indigenous and non-Indigenous populations with rheumatic diseases: a syndemic approach

Granados¹,

Gastélum-Strozzi

Álvarez-Nemegyei

et al. 2023

BMJ Open

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Syndemics are a framework that documents health inequities and vulnerabilities in populations with rheumatic diseases. Compared with other approaches, syndemics are able to conjunctly consider epidemiological, biological, sociodemographic and economic factors, and their interactions.ObjectiveTo estimate health inequity and vulnerability among Indigenous and non-Indigenous populations with rheumatic and musculoskeletal diseases (RMD) in Latin America using the syndemic approach.DesignThis is a secondary analysis of a previously published large-scale study on the prevalence of RMD.SettingStudies carried out in five Latin American countries (Argentina, Colombia, Ecuador, Mexico and Venezuela). Health inequity and vulnerability in RMD were identified through a syndemic approach using network and cluster analysis.ParticipantsA total of 44 560 individuals were studied: 29.78% self-identified as Indigenous, 60.92% were female, the mean age was 43.25 years. Twenty clusters were identified in the Indigenous population and 17 in the non-Indigenous population.ResultsThe variables associated with RMD among Indigenous populations were rurality, public health system, high joint biomechanical stress, greater pain, disability and alcoholism; and among non-Indigenous people they were being a woman, urban origin, older age, private health system, joint biomechanical stress, greater pain and disability. We identified different health inequities among patients with RMD (ie, lower educational attainment, more comorbidities), associated with factors such as Indigenous self-identification and rural residence.ConclusionsA syndemic approach enables us to identify health inequities in RMD, as shown by higher prevalence of comorbidities, disability and socioeconomic factors like lower educational attainment. These inequities exist for the overall population of patients with RMD, although it is more evident in Indigenous groups with added layers of vulnerability.

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Section: Discussionmentioning

confidence: 91%

“… 8 24 40 46 Indigenous communities are among the most vulnerable groups and, due to the conditions described above, their inclusion into the healthcare system is complex. 11 46 47 …”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Inequity and vulnerability in Latin American Indigenous and non-Indigenous populations with rheumatic diseases: a syndemic approach

Granados¹,

Gastélum-Strozzi

Álvarez-Nemegyei

et al. 2023

BMJ Open

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“…En la comunidad Qom se estudió el impacto de la AR, sobre todo al limitar la realización de actividades cotidianas, sean domésticas o laborales. Además, se detectó la compleja relación entre la comunidad y el sistema de salud local 7 .…”

Section: Introductionunclassified

Experiencia sobre el proceso de salud-enfermedad-atención en pacientes con artritis reumatoidea pertenecientes a la comunidad Wichí de Misión Chaqueña “El Algarrobal”, Salta

Quintana¹,

Lombardo²,

Juárez³

et al. 2022

Rev. Argent. Reumatol.

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Introducción: se ha reportado que la prevalencia de artritis reumatoidea (AR) en la comunidad Wichí representa la más alta informada por el Grupo Latinoamericano para el Estudio de las Enfermedades Reumáticas en los Pueblos Originarios (GLADERPO). El objetivo de este estudio fue describir la experiencia sobre el proceso de salud- enfermedad-atención de pacientes con AR de la comunidad Wichí de Misión Chaqueña “El Algarrobal”, Salta. Materiales y métodos: estudio narrativo. Diseño de corte etnográfico. Se realizaron entrevistas semiestructuradas y observaciones registradas. Se utilizaron guías de entrevistas y observación. Los aspectos incluidos fueron: concepción del proceso salud-enfermedad, percepción de la AR en la vida diaria, el acceso al sistema de salud, utilización de recursos tradicionales y de medicina tradicional.

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Experiencia sobre la implementación de estrategias educativas digitales en pacientes con artritis reumatoidea de la comunidad qom durante la pandemia

Quintana,

Fernandez,

Bensi

et al. 2023

Rev Fac Cs Méd UNR

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Introducción: Durante la Pandemia secundaria a la Enfermedad respiratoria del Coronavirus (COVID-19), la atención de enfermedades crónicas se ha visto relegada. El Grupo Latinoamericano de Enfermedades Reumáticas en Pueblos Originarios (GLADERPO) y el Centro de Estudios Aplicados a Problemáticas Socioculturales (CEAPROS), han trabajado con los pacientes con artritis reumatoidea (AR) residentes en la ciudad de Rosario y Presidencia Roque Sáenz Peña (PRSP) desde hace varios años, implementando diferentes estrategias educativas. Objetivo: Describir la experiencia sobre el diseño e implementación de material audiovisual bilingüe utilizando dos redes sociales, destinado para pacientes con AR viviendo en Rosario y PRSP. Materiales y Métodos: Estudio cualitativo. Se utilizaron dos redes sociales (Facebook y WhatsApp) para la distribución de material audiovisual bilingüe, diseñado de manera conjunta con representantes de la comunidad qom. Los tópicos fueron el impacto del COVID-19 en pacientes con AR. Resultados: Un total de 40 pacientes participaron en este estudio a través de la participación en la difusión de los videos. Se repitieron en dos oportunidades debido a la falta de participación. La participación fue menor al 50%. Discusión: Las estrategias educativas digitales no son siempre útiles en poblaciones con diversidad sociocultural. Las desigualdades siempre han existido y la pandemia las ha profundizado.

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«Living with rheumatoid arthritis» in an indigenous qom population in Argentina. A qualitative study

Cited by 5 publications

References 28 publications

Inequity and vulnerability in Latin American Indigenous and non-Indigenous populations with rheumatic diseases: a syndemic approach

Inequity and vulnerability in Latin American Indigenous and non-Indigenous populations with rheumatic diseases: a syndemic approach

Experiencia sobre el proceso de salud-enfermedad-atención en pacientes con artritis reumatoidea pertenecientes a la comunidad Wichí de Misión Chaqueña “El Algarrobal”, Salta

Experiencia sobre la implementación de estrategias educativas digitales en pacientes con artritis reumatoidea de la comunidad qom durante la pandemia

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