Living with learning difficulties: Emma's story

Manners, Paula Jean; Carruthers, Emma

doi:10.1111/j.1468-3156.2006.00392.x

Cited by 3 publications

(3 citation statements)

References 3 publications

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“…1 Emma wrote about her experience in the paired article 'An Experience of living with a learning disability: Emma's story (Manners & Carruthers 2006).…”

Section: The Sessionmentioning

confidence: 99%

“…V. Sinason (2004, personal communication) also argues that the emotional needs of people with learning disability are particularly complex because having a learning disability is a traumatic experience. This paper is concerned with professional feelings of powerlessness in learning disability and describes our work with Emma who has also written about her experience of living with learning difficulties in the paired article (see Manners & Carruthers 2006).…”

Section: Introductionmentioning

confidence: 99%

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Working reflexively in learning disabilities: what Emma taught us

Manners¹,

Russ²

2006

Br J Learning Disab

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Accessible summary• This article is about the feelings of powerlessness that professionals feel to cure learning disability and to answer questions such as 'why do I have a learning disability?' • We describe how Emma showed us through role play what it was like to have learning difficulties. • This article is interesting to people with learning disabilities because they can see how professionals struggle to understand what it is really like to have learning difficulties. SummaryThe theme of powerlessness is relevant to learning disability because learning disability happens to people who do not choose and do not want to be learning disabled. Additionally, although there are many ways in which professionals can make the experience of living with a learning disability easier, we are powerless to cure learning disability, or answer the question asked by one of our clients (Emma) 'why me? (and not you)'.

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“…1 Emma wrote about her experience in the paired article 'An Experience of living with a learning disability: Emma's story (Manners & Carruthers 2006).…”

Section: The Sessionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Working reflexively in learning disabilities: what Emma taught us

Manners¹,

Russ²

2006

Br J Learning Disab

Self Cite

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“…2002, Mansell & Beadle‐Brown 2010). Previous studies have concerned themselves mainly with examining how life is in small group homes for adults with intellectual disabilities and highlight obstacles that prevent such adults from participating in society, such as various forms of victimisation by other citizens and care providers (Manners & Carruthers 2006), powerlessness and dependence on formal and informal carers (Manners et al. 2006).…”

Section: Introductionmentioning

confidence: 99%

The meaning of the lived experiences of adults with intellectual disabilities in a Swedish institutional care setting: a reflective lifeworld approach

Hallrup

2012

Journal of Clinical Nursing

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Understanding the Neurodiversity of Grief: A Systematic Literature Review of Experiences of Grief and Loss in the Context of Neurodevelopmental Disorders

Mair,

Nimbley,

McConachie

et al. 2024

Rev J Autism Dev Disord

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This systematic review explores lived experiences of grief in the context of neurodevelopmental disorders (NDDs), considering mental health impacts and how these experiences are expressed/understood. Reviewing qualitative research and grey literature centred on lived experience, 39 articles were identified through a systematic search of 8 databases and 1 page-ranked search engine. The articles were critically appraised, and results synthesised using thematic analysis and meta-synthesis. Four main themes and an overarching theme, titled Recognise the Unrecognised, emerged: Hidden Grief, Supported and Included, Understanding My Loss, and The Double Taboo of Death and Disability. The results indicate that grief often goes unrecognised in individuals with NDDs, especially following non-death losses. The implications of these findings and recommendations for future research are discussed.

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Living with learning difficulties: Emma's story

Cited by 3 publications

References 3 publications

Working reflexively in learning disabilities: what Emma taught us

Working reflexively in learning disabilities: what Emma taught us

The meaning of the lived experiences of adults with intellectual disabilities in a Swedish institutional care setting: a reflective lifeworld approach

Understanding the Neurodiversity of Grief: A Systematic Literature Review of Experiences of Grief and Loss in the Context of Neurodevelopmental Disorders

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