The meaning of the lived experiences of adults with intellectual disabilities in a Swedish institutional care setting: a reflective lifeworld approach

Hallrup, Leena Berlin

doi:10.1111/j.1365-2702.2012.04208.x

Cited by 4 publications

(3 citation statements)

References 14 publications

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“…The results also showed that there are positive benefits to housing and hospitality services for people with intellectual disabilities and autism spectrum disorders, which positively affect their psyche, as confirmed by the families during the interview. These results support what was indicated by study by Hallrup (2014) of daily caring for people with disabilities when they join a housing and hospitality centre. This was indicated by the quantitative results.…”

Section: Discussionsupporting

confidence: 90%

“…The results of the study by Hallrup (2014) indicate the need to pay attention to what adults with intellectual disabilities say about their daily lives when they live in a permanent residential care environment. The current study notes the lack of interest in the previous studies in nutritional programmes and physical activity as aspects of housing and hospitality services for people with intellectual disabilities and autism spectrum disorders.…”

Section: Literature Reviewmentioning

confidence: 99%

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Housing and Hospitality Services for People with Intellectual Disabilities and Autism Spectrum Disorders in Saudi Arabia

Alharthi,

Bagadood

2024

Journal of Disability Research

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This study aims to examine the reality of housing and hospitality services for people with intellectual disabilities and autism spectrum disorders, and to identify the positive and negative aspects of these services from the perspective of their families and caregivers. The study implemented a mixed-methods approach and an explanatory sequential design. The questionnaire and the semi-structured interviews were used for data collection. The results showed that housing and hospitality experience is closely linked to the provision of materials, practice, and the sharing of experiences. The results also indicate positive changes in the care provided to people with intellectual disabilities and autism spectrum disorders, including weekly reports and nutritional programmes. However, some negative changes in progress levels, intervention types, and dissatisfaction among people with intellectual disabilities and autism spectrum disorders also emerged. Based on these findings, this study proposes several recommendations, the most important of which are the need to provide the necessary tools and resources for each category of disability, and to conduct intensive training courses for special needs caregivers to increase their effectiveness.

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Section: Discussionsupporting

confidence: 90%

Section: Literature Reviewmentioning

confidence: 99%

Housing and Hospitality Services for People with Intellectual Disabilities and Autism Spectrum Disorders in Saudi Arabia

Alharthi,

Bagadood

2024

Journal of Disability Research

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“…Residents were also infantilized and characterized as individuals who are unable to make decisions that are in their best interests. The actions of the habilitation technicians revealed a cultural ambivalence toward residents' desires and interests and their having to live in a restricted life space (Hallrup, 2012).…”

Section: Discussionmentioning

confidence: 99%

“No! You can’t have it”: Problematizing choice in institutionalized adults with intellectual disabilities

Johnson

Bagatell

2018

J Intellect Disabil

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Institutionalized adults with profound intellectual disabilities (ID) face significant challenges to having their choice-making cultivated and supported. Based on observational and interview data from an institutional ethnographic study, this article explores how choice-making during mealtimes is acknowledged and problematized by staff. First, we suggest that Foucauldian problematization offers a lens through which to better understand how mealtime intervention plans passed down over time become embodied restrictive practices. Second, we provide examples and analyses of mealtime negotiations between staff and residents. Analyses revealed staff infantilize and misrepresent residents' choice-making during meals as manipulation; additionally, analyses suggest that past experiences of staff with residents and historical meal plans color how they acknowledge and interpret residents' choices. Our argument is an attempt to move forward discussions concerning the implementation of quality habilitation services by highlighting the ways contemporary institutional systems perpetuate misrepresentations of nonverbal behaviors in adults with profound ID.

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Beyond custodial care: Mediating choice and participation for adults with intellectual disabilities

Johnson

Bagatell

2017

Journal of Occupational Science

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The meaning of the lived experiences of adults with intellectual disabilities in a Swedish institutional care setting: a reflective lifeworld approach

Cited by 4 publications

References 14 publications

Housing and Hospitality Services for People with Intellectual Disabilities and Autism Spectrum Disorders in Saudi Arabia

Housing and Hospitality Services for People with Intellectual Disabilities and Autism Spectrum Disorders in Saudi Arabia

“No! You can’t have it”: Problematizing choice in institutionalized adults with intellectual disabilities

Beyond custodial care: Mediating choice and participation for adults with intellectual disabilities

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