Living with extended-spectrum β-lactamase: A qualitative study of patient experiences

Being Met as marked – patients’ experiences of being infected with community‐acquired methicillin‐resistant Staphylococcus aureus (MRSA)

“…In contrast, professionals who know how to meet infected patients bring out dignity and security and peace to the patients . This is also in line with research into feelings of being contagious . Van Manen claims that professionals should be more involved in the way that patients experience their lives and not just in medical treatment.…”

Screening for multi-drug-resistant Gram-negative bacteria: what is effective and justifiable?

“…As a consequence, patients form their own strategies to cope with the contagion limiting their social contacts in daily life and they may become overly worried, stressed and even depressed (Rump 2016;Skyman 2010Skyman , 2014. In addition, healthcare providers, family members and society as a whole may also respond to a positive test with unfounded fear and anxiety, leading to discrimination, exclusion and other stigmatizing behaviour (Wiklund et al 2013(Wiklund et al , 2015Skyman 2014). It has been documented that patients in contact isolation tend to receive less care than patients in general care (Saint et al 2003;Evans et al Footnote 5 (continued) for reasons of simplicity-but note that if indeed different considerations apply to VRE, this example further supports our argument for differentiation.…”

Staff experiences of caring for patients with extended-spectrum β-lactamase–producing bacteria: A qualitative study

“…The lack of knowledge concerns not only hygiene routines, but also the meaning and possible consequences of antibiotic resistance. 9,[18][19][20][21] Previous studies have examined the experiences of staff caring for patients with other antibiotic-resistant bacteria besides ESBL and other infectious diseases. Patients in isolation receive fewer visits from staff because of the effort required to don protective clothing for every visit.…”

“…8 Suffering from an infection caused by ESBL-producing intestinal bacteria, or knowing that one is an uninfected asymptomatic carrier, can be emotionally stressful for the individual, affecting both everyday life and expectations for the future. 9 In studies involving carriers of antibiotic-resistant bacteria, patients have described discrimination and stigmatization from health care professionals owing to their infection. There are descriptions of how patients perceived health care personnel as ignorant and also disrespectful when administering treatment.…”

“…There are descriptions of how patients perceived health care personnel as ignorant and also disrespectful when administering treatment. [9][10][11][12] Furthermore, isolated patients received fewer visits from staff than patients in nonisolation rooms, with the attendant risk of a lower standard of care. [10][11][12][13][14] In addition, patients sometimes do not know why they are isolated and why staff use protective equipment.…”