Living with Crouzon syndrome: how do young adults with Crouzon syndrome handle their life situation?

Stavropoulos, Dimitrios; Hallberg, Ulrika; Mohlin, Bengt; Hagberg, Catharina

doi:10.1111/j.1365-263x.2010.01079.x

Cited by 21 publications

(27 citation statements)

References 16 publications

(18 reference statements)

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“…A tri-antibiotic paste containing 100 mg Metronidazole, 100 mg Minocycline and 100 mg Ciprofloxacin has been shown to have a sufficient bactericidal efficacy and potency to eradicate bacteria from the infected dentine of root canals (Hoshino et al 1996). Recently, Minocycline has been eliminated from the mixture due to its potential to discolour the tooth (Kim et al 2010) which was further supported by recent work conducted showing similar antimicrobial effects of the tri-antibiotic and bi-antibiotic pastes (Twati et al 2011). …”

Section: Resultsmentioning

confidence: 84%

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Interventions for the endodontic management of non-vital traumatised immature permanent anterior teeth in children and adolescents: a systematic review of the evidence and guidelines of the European Academy of Paediatric Dentistry

Duggal

Tong

Al-Ansary

et al. 2017

Eur Arch Paediatr Dent

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AimThis systematic review was undertaken in order to develop guidelines for the European Academy of Paediatric Dentistry for the management of non-vital permanent anterior teeth with incomplete root development.Methods Three techniques were considered; apexification by single or multiple applications of calcium hydroxide, use of Mineral Trioxide Aggregate (MTA) for the creation of an apical plug followed by obturation of the root canal, and finally a Regenerative Endodontic Technique (RET). Scottish Intercollegiate Guideline Network (SIGN) Guidelines (2008) were used for the synthesis of evidence and grade of recommendation.ResultsVariable levels of evidence were found and generally evidence related to these areas was found to be weak and of low quality. It was not possible to produce evidence-based guidelines based on the strength of evidence that is currently available for the management of non-vital immature permanent incisors.ConclusionsBased on the available evidence the European Academy of Paediatric Dentistry proposes Good Clinical Practice Points as a guideline for the management of such teeth. It is proposed that the long term use of calcium hydroxide in the root canals of immature teeth should be avoided and apexification with calcium hydroxide is no longer advocated. The evidence related to the use of a Regenerative Endodontic Technique is currently extremely weak and therefore this technique should only be used in very limited situations where the prognosis with other techniques is deemed to be extremely poor. The current review supports the use of MTA followed by root canal obturation as the treatment of choice.

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Section: Resultsmentioning

confidence: 84%

“…Level of Evidence = 3.It contributes to an increased brittleness of dentine and decrease in the fracture resistance of the tooth (Twati et al 2011). …”

Section: Resultsmentioning

confidence: 99%

Interventions for the endodontic management of non-vital traumatised immature permanent anterior teeth in children and adolescents: a systematic review of the evidence and guidelines of the European Academy of Paediatric Dentistry

Duggal

Tong

Al-Ansary

et al. 2017

Eur Arch Paediatr Dent

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“…With the continual familial support, physical rehabilitation can be done for the patient to some extent by the surgical advancement techniques,8 but still the support and the confidence instilled in the child would help him to acquire coping strategies to lead a near-normal life 9…”

Section: Discussionmentioning

confidence: 99%

Crouzon syndrome: a social stigma

Pandey

Singh

et al. 2012

BMJ Case Reports

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Crouzon syndrome is a rare genetic disorder caused due to genetic mutations. It is characterised by partial hearing loss, dry eyes, strabismus and underdevelopment of the upper jaw with facial deformities and malocclusion. These facial deformities greatly affect the social and emotional development of the affected child. The present case report highlights the social problems faced by a child suffering with Crouzon syndrome.

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“…24 The successful use of coping strategies reported in a recent qualitative study of young individuals with Crouzon syndrome comes to the same conclusion. 25 The strategies were shown to be crucial for individuals to better handle their life situation and attain higher self-esteem, which also enhanced well-being.…”

Section: S T R a T E G I E S F O R C A R E I N F A C I A L D I S F I mentioning

confidence: 99%

Living with facial disfigurement—strategies for individuals and care management

Bergendal¹,

Ahlborg²,

Knudsen

et al. 2011

Special Care in Dentistry

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Individuals and families affected by craniofacial disorders have expressed dissatisfaction with their experiences in the healthcare system, with day care, and in school situations. To capture their views, focus group encounters were done in a group of young individuals with these disorders and in a group of parents whose children were affected. The aim was to synthesize their attitudes and experiences into improved strategies for parents, teenagers, and professionals in the healthcare system. Their views were compiled into a document that emphasizes the responsibilities of persons with craniofacial disorders and their parents to actively seek information on diagnosis and treatment options and to participate in decisions on therapy. The conclusion was that it is not lack of specific knowledge but rather a lack of implementation of existing recommendations that makes living with facial disfigurement difficult for many individuals and their families.

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Living with Crouzon syndrome: how do young adults with Crouzon syndrome handle their life situation?

Cited by 21 publications

References 16 publications

Interventions for the endodontic management of non-vital traumatised immature permanent anterior teeth in children and adolescents: a systematic review of the evidence and guidelines of the European Academy of Paediatric Dentistry

Interventions for the endodontic management of non-vital traumatised immature permanent anterior teeth in children and adolescents: a systematic review of the evidence and guidelines of the European Academy of Paediatric Dentistry

Crouzon syndrome: a social stigma

Living with facial disfigurement—strategies for individuals and care management

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