Living with coeliac disease: survey results from the USA

Abstract

Individuals with coeliac disease in the U.S.A. have a diminished quality of life, especially in the social aspects of life.

Partner Burden: A Common Entity in Celiac Disease

“…An extensive body of the literature has established that CD can be quite burdensome for patients and commonly results in reduced health-related quality of life [8][9][10][11][12][13][14][15][16][17][18][19]. Patient burden is driven not only by the symptoms of CD [20], but also by the social and financial restrictions that result from adherence to a GFD [8].…”

“…Given the varied symptoms, comorbidities, and strict dietary modifications required for treatment, it is not surprising that many patients with CD regard it as a substantial burden on their quality of life. While there are multiple studies looking at the socioeconomic, psychological, and sexual satisfaction-related burden of CD on patients themselves, there have been no studies to date investigating the impact CD has on the partners of patients [10][11][12][13][14][15][16][17][18][19].…”

Psychological morbidity of celiac disease: A review of the literature

“…66 On a GFD, they may be particularly sustained by dietary restrictions and by compromised daily social relationships. 21 Independently of GFD, psychological morbidities in CD may also be secondary to CD associated with autoimmune diseases. For example, Carta et al in 2002 67 showed that the association of CD with thyroid disease can represent a significant risk factor for depression and panic disorders.…”

Perspectives on living with coeliac disease in remission : Daily life experiences, symptoms and well-being

“…Furthermore, people with treated CD, particularly women, experience a lower level of QoL than non-coeliac controls of the same age [9,44,90,91], and it has also been found that women with CD also use annual health care services more often than female controls, due to related mental and behavioural disorders, diseases of the digestive system, and diseases of the musculoskeletal system and connective tissues [92].…”

“…CD affects women to a greater extent than men [114], and studies claim that women, for unknown reasons, are doing worse than men during treatment [42,91]. Hence, although some studies have contributed data in relation to differences between women's and men's experiences of having CD [115] and being treated with GFD [116] as well as the inconveniences and obstacles in connection with the disease [56], few studies have exclusively focused on women's own perspectives of living with the disease.…”