Living with cancer and other chronic conditions: Patients’ perceptions of their healthcare experience

Duthie, Kia; Strohschein, Fay J.; Loiselle, Carmen G.

doi:10.5737/236880762714348

Cited by 17 publications

(18 citation statements)

References 46 publications

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“…But many veterans praised their VA and community providers alike for their dedication to delivering personalized, high‐quality care—and others noted that they preferred the personal attention they received at the VA. This is consistent with literature from outside of VA indicating the importance of patient‐centeredness in health care delivery 37 . In many cases, our veteran respondents’ perceptions appeared to be driven primarily by their experiences with individual clinicians, emphasizing the importance of the therapeutic alliance 38,39 in shaping perceptions of health care institutions.…”

Section: Discussionsupporting

confidence: 86%

Veteran Perspectives on Care Coordination Between Veterans Affairs and Community Providers: A Qualitative Analysis

Miller

Shin

Pugatch

et al. 2020

The Journal of Rural Health

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Objective To investigate veteran perspectives on challenges in care coordination between US Department of Veterans Affairs (VA) clinics and community providers in rural areas. Methods We completed qualitative interviews with a geographically diverse sample of 51 veterans who had used both VA and community health care services. Interviews were audio‐recorded and transcribed verbatim. We used directed content analysis (informed by previous work with VA and community staff) to elucidate findings, while remaining attentive to emergent themes. Results We report results in 5 key domains related to interorganizational care coordination: organizational mechanisms, organizational culture, relational practices, contextual factors, and the role of the Third‐Party Administrators responsible for scheduling and payment for community services. Veterans described successes and challenges in interorganizational coordination across these domains, while also reporting a variety of workarounds and mitigation strategies. Conclusions Veterans living in rural areas face myriad challenges when using health care services both within and outside of VA. In the absence of strong mechanisms for ensuring coordination and communication between health care providers at different institutions, veterans themselves may carry the primary burden for coordinating their care. Our results suggest the utility of both structural and relational approaches to enhancing interorganizational care coordination in these settings.

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Section: Discussionsupporting

confidence: 86%

Veteran Perspectives on Care Coordination Between Veterans Affairs and Community Providers: A Qualitative Analysis

Miller

Shin

Pugatch

et al. 2020

The Journal of Rural Health

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“…Within the literature, across all health states, personalized care was broadly characterized as representing respectful behaviour toward the patient, providing care in a preferred language, healthcare provider (HCP) awareness about the needs of vulnerable populations and delivery of care that considered both social and medical needs ( 25 , 27 , 31 , 33 , 39 , 45 , 50 , 53 – 55 , 57 , 62 , 68 , 69 , 74 , 77 , 79 – 81 , 82 , 85 , 88 , 90 , 94 , 99 , 100 , 102 , 106 – 109 , 111 , 114 , 116 , 118 , 119 , 122 , 124 , 134 , 135 , 136 , 141 , 142 , 147 , 150 , 154 , 156 , 158 , 163 , 165 , 169 , 172 , 174 , 176 , 179 , 184 , 192 , 193 , 195 – 204 , 208 , 209 ). Consistent within the reviewed literature, patients and caregivers identified a preference for care that was holistic, individualized and culturally competent ( 19 , 28 , 53 , 69 , 74 …”

Section: Resultsmentioning

confidence: 99%

Putting the Patient First: A Scoping Review of Patient Desires in Canada

Peckham

Wright²,

Marani³

et al. 2021

hcpol

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Patient-centred care is a key priority for governments, providers and stakeholders, yet little is known about the care preferences of patient groups. We completed a scoping review that yielded 193 articles for analysis. Five health states were used to account for the diversity of possible preferences based on health needs. Five broad themes were identified and expressed differently across the health states, including personalized care, navigation, choice, holistic care and care continuity. Patients' perspectives must be considered to meet the diverse needs of targeted patient groups, which can inform health system planning, quality improvement initiatives and targeting of investments.

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“…The strength of the relationship between the participant and their Pivot Nurse, as indicated in other literature (Duthie, 2014), could skew the sample towards a subset of survivors who seek out an ongoing therapeutic relationship, making the findings around reassurance-seeking possibly misrepresentative. Additionally, one participant was in remission from both a first primary non-ovarian cancer and a second primary ovarian cancer, but perceived the latter as a recurrence of the former.…”

Section: Strengths and Limitationsmentioning

confidence: 99%

Fear of cancer recurrence: A study of the experience of survivors of ovarian cancer

Kyriacou¹,

Black²,

Drummond³

et al. 2017

CONJ

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236 INTRODUCTION Ovarian cancer is the deadliest of the gynecological cancers and has an average two-year recurrence rate of 50-75% (Ferrell et al., 2005;Ferrell, Smith, Ervin, Itano, & Melancon, 2003;Cannistra 2004;Karlan, Markman, & Eifel, 2005). Not surprisingly, given this high recurrence rate, fear of cancer recurrence (FCR) is a common and important concern reported by women diagnosed with ovarian cancer (Ozga, et al., 2015). FCR is defined as "fear that cancer could return or progress in the same place or in another part of the body" (Simard, Savard & Ivers, 2010;Vickberg, 2003). Unmanaged FCR can lead to anxiety, depression and change in quality of life, all leading to higher emotional, psychological and physical dysfunction (Ozga et al., 2015;Simard et al., 2013). Most studies that previously evaluated the evolution of FCR were conducted in breast cancer patients. To address the significant psychological concern associated with a diagnosis of ovarian cancer, there is a need to better understand the experience of FCR in women diagnosed with this disease (Ozga et al., 2015).Ovarian cancer is generally diagnosed at an advanced stage due to a lack of a screening tool, resulting in a five-year survival rate of 10-45% (Surveillance, Epidemiology and End Results Program, n.d.). According to the National Institutes of Health, a survivor is defined as "anyone who has ever been diagnosed with cancer and is living today" (NIH Senior Health, 2015). To date, only one recent systematic review on FCR in ovarian cancer survivor population has been conducted (Ozga et al., 2015). The results of that review (total of fifteen studies, three qualitative and nine quantitative) reported that FCR is an ovarian cancer-specific symptom and its importance is largely a reflection of the high recurrence rate. Due to the various methods of assessing presence of FCR, the reported prevalence range of 22-80% is broad. Furthermore, FCR levels are similar in participants regardless if they were diagnosed at an early or advanced stage. Presence of FCR was also associated with psychosocial health concerns such as hopelessness, anxiety in the context of death and dying and uncertainty surrounding health status. The poor prognosis for ovarian cancer survivors may explain the paucity of research focusing on the survivorship of these women and, consequently, the examination of their psychosocial needs remains in its infancy (Lockwood-Rayermann, 2006).Due to the high recurrence rate, the period of remission is brief and is, thus, frequently overlooked as a topic for research, making this the first study to qualitatively explore FCR in ovarian cancer survivors in this timeframe. Specifically, the purpose of this study was to better understand fear of cancer (FCR) through the experience of ovarian and fallopian tube cancer survivors. METHODS DesignThe study used a descriptive qualitative design to obtain a comprehensive description of participants' experiences in their own words (Sandelowski, 2000). Participants and RecruitmentParticipants were r...

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Living with cancer and other chronic conditions: Patients’ perceptions of their healthcare experience

Abstract: ABSTRACT

Cited by 17 publications

References 46 publications

Veteran Perspectives on Care Coordination Between Veterans Affairs and Community Providers: A Qualitative Analysis

Veteran Perspectives on Care Coordination Between Veterans Affairs and Community Providers: A Qualitative Analysis

Putting the Patient First: A Scoping Review of Patient Desires in Canada

Fear of cancer recurrence: A study of the experience of survivors of ovarian cancer

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