Lived experience of vulnerability from a <scp>G</scp>ypsy <scp>R</scp>oma <scp>T</scp>raveller perspective

Heaslip, Vanessa; Hean, Sarah; Parker, Jonathan

doi:10.1111/jocn.13223

Cited by 16 publications

(28 citation statements)

References 44 publications

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“…It is important to note that whilst the term GRT is used in this paper, they are not a homogenous community but comprise many different groups of Gypsies and Travellers each with distinct cultural identities (for further exploration, see Heaslip et al . ). Historically, Gypsy Roma Travellers were largely nomadic, travelling from place to place working in agriculture on farms following the seasons.…”

Section: Background: What Is Already Known Regarding Vulnerability?mentioning

confidence: 97%

“…Vulnerability within a healthcare setting, for example, can be linked to the loss of power and control over one's body during illness and is influenced by the power, prestige and position differentials between patient and medicine and healthcare practitioners (Parker et al . , Heaslip ). There are long‐term health implications of vulnerability (Table ), both physiological and psychological, arising from these experiences (Rogers ).…”

Section: Introductionmentioning

confidence: 99%

“…Leroux et al . () and Heaslip () have addressed this shortfall, both utilising a descriptive phenomenological approach, Leroux in context of psychotherapy and Heaslip with Gypsy Roma Travellers.…”

Section: Introductionmentioning

confidence: 99%

“…It however does not fully discount the etic in favour of an emic approach instead promotes a combination of the two. The etemic approach has been developed through research with Gypsy Roma Travellers (Heaslip , Heaslip et al . ).…”

Section: Introductionmentioning

confidence: 99%

“…The etemic approach has been developed through research with Gypsy Roma Travellers (Heaslip , Heaslip et al . ). This etemic approach contributes to a wider understanding of the phenomenon of vulnerability and can be used by nurses, health‐ and social care practitioners to develop a better conception of it and, therefore, to improve their practices with vulnerable patients.…”

Section: Introductionmentioning

confidence: 99%

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The etemic model of Gypsy Roma Traveller community vulnerability: is it time to rethink our understanding of vulnerability?

Heaslip

Hean

Parker

2017

Journal of Clinical Nursing

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Aim: To present a new etemic model of vulnerability.Background: Despite vulnerability being identified as a core consequence of health and health experiences there has been little research exploring the meaning of vulnerability as a concept. Yet being vulnerable is known to have dire physical/mental health consequences. It is therefore a fundamental issue for nurses to address. To date, the meaning of the term vulnerability has been influenced by the work of Spiers (2000Spiers ( , 2005. Spiers identified two aspects of vulnerability; the etic (external judgment of another persons' vulnerability and the emic (internal lived experience of vulnerability). This approach has led to a plethora of research which has explored the etic (external judgment) of vulnerability and rendered the internal lived (or emic) experience invisible. Consequences of this, for marginalised communities such as Gypsy Roma Travellers include a lack of culturally sensitive services compounding health inequalities. Design: Position paperMethod: Drawing upon a qualitative phenomenological research study exploring the lived experience of vulnerability from a Gypsy Roma Travelling community (published previously), this paper presents a new model of vulnerability. This etemic model of vulnerability values both external and internal dimensions of vulnerability and argues for a fusion of these two opposing perspectives. Conclusion and relevance to clinical practice:If nurses and other health and social care professionals wish to develop practice that is successful in engaging with Gypsy Roma Travellers then there is a need to both understand and respect their community. This can be achieved through an etemic approach to understanding their vulnerability achieved by eliciting lived experience alongside the appreciation of epidemiological studies. Doing so would enable the development and delivery of culturally sensitive services facilitating health access to this community. Only then, will their poor health status be successfully addressed.Keywords: Vulnerable, Gypsy, Romany, Irish Traveller, indigenous, marginalised, patient voice, mental health, nursing, healthcare. Summary Statement:What does this paper contribute to the wider global clinical community? The concept of vulnerability, whilst a crucial aspect of nurses' professional practice has had little examination to date. This paper provides a critical examination of vulnerability providing a timely contribution to ongoing debates regarding vulnerability.

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Section: Background: What Is Already Known Regarding Vulnerability?mentioning

confidence: 97%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

The etemic model of Gypsy Roma Traveller community vulnerability: is it time to rethink our understanding of vulnerability?

Heaslip

Hean

Parker

2017

Journal of Clinical Nursing

Self Cite

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Depicting communities of Romani studies: on the who, when and where of Roma related scientific publications

Ioannoni¹,

Vitale²,

Costa³

et al. 2020

Scientometrics

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Contemporary research on Roma from diverse disciplines has grown strongly during the last years. This is the first bibliometric study on the field of Romani studies considering the period 1997-2018 with the aims of mapping scholar's disciplines and analyzing localiza-tion and their thematic contributions. The world evolution of Roma research topics and their citation impacts has been analyzed using a Network Analysis approach. The Scopus database was used to retrieve bibliographic records on Gypsy and Roma research. The bib-liometric analysis of scholarly endeavour identifies three principal clusters: 'History and Culture', 'Education', and 'Discrimination and Policy'. Results shows that scholars became more attentive to Roma issues as it became an important topic in public debate. Informed by this analysis, questions are raised about how to strengthen connectivity, collaborative research and knowledge exchange beyond national and disciplinary borders. In the term citation map among the most followed themes by number of normalized average quotations , the topics of 'Discrimination and Policy' analysis undeniably emerges. In the current historical moment characterised by rising ethno-nationalism and racism we intend that this paper informs further research that will deepen our understanding of the contributions of different social science disciplines with regards to epistemology, methodology and impact.

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Taking stock of Roma health policies in Spain: Lessons for health governance

2018

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Roma health inequities are a wicked problem. Despite concerted efforts to reduce them under the Decade of Roma Inclusion initiative, the health gap between Roma and non-Roma populations in Europe persists. To address this problem, the European Commission devised the National Roma Integration Strategies (NRIS). This paper provides a critical assessment of the implementation of the NRIS' health strand (NRIS-H) in Spain and proposes an evaluation tool to monitor Roma health policies - the Roma Health Integration Policy Index (RHIPEX). It also makes recommendations to promote Roma health governance. To achieve these goals, four community forums, 33 stakeholder interviews and a scoping review were conducted. Results show that the NRIS-H implementation is hindered by lack of political commitment and poor resource allocation. This has a negative impact on Roma's entitlement to healthcare and on their participation in decision-making processes, jeopardising the elimination of the barriers that undermine their access to healthcare and potentially contributing to reproduce inequalities. These unintended effects point out the need to rethink Roma health governance by strengthening intersectional and intersectoral policies, enabling transformative Roma participation in policymaking and guaranteeing shared socio-political responsibility and accountability.

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Lived experience of vulnerability from a Gypsy Roma Traveller perspective

Cited by 16 publications

References 44 publications

The etemic model of Gypsy Roma Traveller community vulnerability: is it time to rethink our understanding of vulnerability?

The etemic model of Gypsy Roma Traveller community vulnerability: is it time to rethink our understanding of vulnerability?

Depicting communities of Romani studies: on the who, when and where of Roma related scientific publications

Taking stock of Roma health policies in Spain: Lessons for health governance

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