Linking urban families to community resources in the context of pediatric primary care

Garg, Arvin; Sarkar, Sonia; Marino, Mark; Onie, Rebecca; Solomon, Barry S.

doi:10.1016/j.pec.2009.10.011

Cited by 66 publications

(91 citation statements)

References 17 publications

(13 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…45 Similarly, these families may benefit from referrals to private charities, non-profit agencies, or parent support groups that may exist outside the walls of the health system. 46 Should such referrals prove to be of value for families of CMC, there may be policy implications within evolving payment models. Indeed, as payment schemes move away from fee-for-service and toward pay- for-performance programs like accountable care organizations and patient-centered medical homes, services, referrals, and programs that reduce hardship and improve health may prove cost-effective and worthy of coverage.…”

Section: Discussionmentioning

confidence: 99%

Financial and Social Hardships in Families of Children with Medical Complexity

Thomson

Shah

Simmons

et al. 2016

The Journal of Pediatrics

114

View full text Add to dashboard Cite

Objective To describe hardships experienced by families of children with medical complexity (CMC) and compare them with those experienced by families of children with asthma. Study design We assessed hardships in a cohort of 167 families of CMC. Surveys assessed socio-demographics and hardships (e.g., financial: inability to pay bills; social: limited help from family/friends). CMC cohort hardships were compared with those of an established cohort of children hospitalized with asthma using multivariable logistic regression. Results CMC had diagnoses in a median of 5 different complex chronic condition categories (most common neurologic/neuromuscular) and the majority (74%) were dependent on technology. Over 80% of families of CMC reported experiencing ≥1 hardship; 68% with financial and 46% with social hardship. Despite higher SES than asthma families, families of CMC often experienced more hardships. For example, families of CMC were significantly more likely to report failure to pay rent/mortgage (aOR 2.6, 95% CI: 1.6, 4.3) and the expectation of little to no help from family/friends (aOR 3.2, 95% CI: 2.1, 5.1). Conclusions Families of CMC frequently report financial and social hardships, often at rates higher than asthma families who were generally of lower SES. Identifying and acting upon hardships may be an important addition to the care of CMC.

show abstract

Section: Discussionmentioning

confidence: 99%

Financial and Social Hardships in Families of Children with Medical Complexity

Thomson

Shah

Simmons

et al. 2016

The Journal of Pediatrics

114

View full text Add to dashboard Cite

show abstract

“…Paradoxically, these conditions are listed as the most frequent cause of hospitalization. Pediatric protocols emphasize the importance of providing care to children within the family and community context, using its resources to promote health in routine ambulatory care (4) . Primary Health Care (PHC) actions are important to preventing children from being affected by respiratory diseases through increasing coverage and ensuring the population access to services, and through delivering decisive ambulatory care to avoid hospitalization and its harmful consequences to children and their families.…”

Section: Respiratory Diseases Are Considered Ambulatorymentioning

confidence: 99%

The therapeutic journey of families of children with respiratory diseases in the public health service

Oliveira

Collet

Mello

et al. 2012

Rev. Latino-Am. Enfermagem

View full text Add to dashboard Cite

This study's purpose was to identify the therapeutic journey of families seeking health care for their children with respiratory diseases. This qualitative study had the participation of parents of children younger than five years old who were hospitalized with respiratory diseases. Path mapping was used as an instrument to collect data, which was analyzed through thematic analysis. The findings indicate that families sought the health services as soon as they perceived symptoms and had access to medical care, however such care was not decisive in resolving their health issues. Even though the families returned to the service at least another three times, the children had to be hospitalized. The attributes of primary health care were not observed in the public health services, while therapeutic encounters had no practical success. El itinerario terapéutico de las familias de los niños con enfermedades respiratorias en el sistema de salud públicaEl estudio tuvo como objetivo identificar el itinerario terapéutico de las familias que buscan cuidar de su hijo con la enfermedad respiratoria. Esta es una investigación con un enfoque cualitativo, con la participación de las familias con niños menores de cinco años de edad, hospitalizados con enfermedades respiratorias. Fue utilizado como un instrumento de producción de los datos el mapa hablado, con una analice temática de los datos. Los resultados indican que las familias buscan un servicio de salud así que perciben los síntomas y que tenían acceso a la atención médica, pero con poca resolución. Se observó que volverán al servicio durante al menos tres veces, y aun así terminó con la hospitalización.Los atributos de la atención primaria no fueron observados en los servicios de salud pública, ni el encuentro tuvo un éxito práctico.Descriptores: Cuidado del Niño; Atención Primaria de Salud; Enfermedades Respiratorias.

show abstract

“…Advocates (generally, trained college students supervised by a site coordinator) meet with families and access a comprehensive, locally modified resource directory to provide needed referrals to community agencies and public benefits. [68][69][70] Providers can prescribe food, heat, and other basic resources; patients can also approach the advocates and request services directly. The Health Leads' Web site provides more information on the model and potential applications for one's own clinical setting (Table 2).…”

Section: Health Leads and Other Community Connectionsmentioning

confidence: 99%

Determinants of Health and Pediatric Primary Care Practices

Beck

Tschudy²,

Coker

et al. 2016

Pediatrics

View full text Add to dashboard Cite

More than 20% of children nationally live in poverty. Pediatric primary care practices are critical points-of-contact for these patients and their families. Practices must consider risks that are rooted in poverty as they determine how to best deliver family-centered care and move toward action on the social determinants of health. The Practice-Level Care Delivery Subgroup of the Academic Pediatric Association's Task Force on Poverty has developed a roadmap for pediatric providers and practices to use as they adopt clinical practice redesign strategies aimed at mitigating poverty's negative impact on child health and well-being. The present article describes how care structures and processes can be altered in ways that align with the needs of families living in poverty. Attention is paid to both facilitators of and barriers to successful redesign strategies. We also illustrate how such a roadmap can be adapted by practices depending on the degree of patient need and the availability of practice resources devoted to intervening on the social determinants of health. In addition, ways in which practices can advocate for families in their communities and nationally are identified. Finally, given the relative dearth of evidence for many poverty-focused interventions in primary care, areas that would benefit from more in-depth study are considered. Such a focus is especially relevant as practices consider how they can best help families mitigate the impact of povertyrelated risks in ways that promote long-term health and well-being for children.abstract

show abstract

Linking urban families to community resources in the context of pediatric primary care

Cited by 66 publications

References 17 publications

Financial and Social Hardships in Families of Children with Medical Complexity

Financial and Social Hardships in Families of Children with Medical Complexity

The therapeutic journey of families of children with respiratory diseases in the public health service

Determinants of Health and Pediatric Primary Care Practices

Contact Info

Product

Resources

About