The therapeutic journey of families of children with respiratory diseases in the public health service

Abstract

This study's purpose was to identify the therapeutic journey of families seeking health care for their children with respiratory diseases. This qualitative study had the participation of parents of children younger than five years old who were hospitalized with respiratory diseases. Path mapping was used as an instrument to collect data, which was analyzed through thematic analysis. The findings indicate that families sought the health services as soon as they perceived symptoms and had access to medical care, however such care was not decisive in resolving their health issues. Even though the families returned to the service at least another three times, the children had to be hospitalized. The attributes of primary health care were not observed in the public health services, while therapeutic encounters had no practical success. El itinerario terapéutico de las familias de los niños con enfermedades respiratorias en el sistema de salud públicaEl estudio tuvo como objetivo identificar el itinerario terapéutico de las familias que buscan cuidar de su hijo con la enfermedad respiratoria. Esta es una investigación con un enfoque cualitativo, con la participación de las familias con niños menores de cinco años de edad, hospitalizados con enfermedades respiratorias. Fue utilizado como un instrumento de producción de los datos el mapa hablado, con una analice temática de los datos. Los resultados indican que las familias buscan un servicio de salud así que perciben los síntomas y que tenían acceso a la atención médica, pero con poca resolución. Se observó que volverán al servicio durante al menos tres veces, y aun así terminó con la hospitalización.Los atributos de la atención primaria no fueron observados en los servicios de salud pública, ni el encuentro tuvo un éxito práctico.Descriptores: Cuidado del Niño; Atención Primaria de Salud; Enfermedades Respiratorias.

Experiences from families of children with cerebral paralysis in context of social vulnerability

“…The fatigue provoked in the family by this disarticulation is emphasized in literature as function of low resilience in the system (21)(22) . Moreover, the social vulnerability brings, many times, a stigma, a negative connotation for the society, associated to laziness and dependence.…”

Longitudinality in childcare provided through Family Health Strategy

“…The isolated analysis of this item can demonstrate that there is weakness of the ESF in regards to the satisfaction of some families of children in relation to the service. A study (19) with the objective of identifying the therapeutic itinerary of families of children with respiratory diseases, indicated that the longitudinality attribute has not been established in an effi cient way, because in many cases, when seeking care in the ESF, the children's parents did not fi nd the medical unit and were referred to other health services where the professionals were unaware of the clinical history of the child. Thus, the level of dissatisfaction of children's parents in relation to the service grew.…”

O acesso e a dificuldade na resolutividade do cuidado da criança na atenção primária à saúde

“…(13) This finding is also similar with the study cited, among other similar results, the (de) humanization of care, demonstrated by the presence of people at dawn waiting for being cared. (14) Thus, instead of adopting the practice of risk classification, with the choice of an appropriate methodology for this, one of the units adopts the conduct called assessment. This practice should not be taken as care, since this is a device with the principle of managing new ways of doing care in any space and time to work with the use of conversation technology providing sensitive listening, ensuring universal access and giving a positive response with agility to services and users.…”