Linguistic Ratification and Validation of Pediatric Quality of Life Inventory 3.0 Cardiac Module

Chernikov, V.V.; Винярская, И В; Соболева, К. А.; Басаргина, Е. Н.; Zharova, Olga P.

doi:10.15690/vsp.v14i6.1478

Vopr. sovr. pediatr.

2016

DOI: 10.15690/vsp.v14i6.1478

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Linguistic Ratification and Validation of Pediatric Quality of Life Inventory 3.0 Cardiac Module

V.V. Chernikov¹,

И В Винярская²,

К. А. Соболева³

et al.

Abstract: Научный центр здоровья детей, Москва, Российская Федерация In a prospective study it was assessed the reliability of the questionnaire (calculating Cronbach's alpha coefficient), its validityby comparing the responses of patients who had a different ejection fraction (construct validity), and comparing the responses on the scales of PedsQL Cardiac Module questionnaire with the scales of the common PedsQL Generic Core Scale questionnaire (convergent validity). The questionnaire sensitivity was determined by cal… Show more

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Cited by 2 publications

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Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patients

Arakelyan,

Surkov,

Baranov

et al. 2023

Pediatr. farmakol.

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Background. Health Related Quality of Life (HRQL) is a person’s perception of the effect of a disease on physical, social and psychological functioning and wealth. Questionnaires that help assess the HRQL can give a concept of child’s state, identify arcane issues and they are of great importance for a full understanding of how the state of health affects the child. Universal HRQL tools allow to compare results with general parameters, indicators with specific symptoms better reflect clinically significant moments. The most widespread in the Russian Federation was the general PedsQLTM 4.0 questionnaire, widely used in practice to assess HRQL in children with various pathologies. Objective.The aim of the study is to describe the analysis of linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQLTM questionnaire, measuring HRQL, in children with gastrointestinal disorders (GIDs).Materials and methods. The establishment of linguistic accuracy and authenticity of the content was carried out according to international standards. The process included forward translation, scientific assessment and coordination, reverse translation, verification of the reverse translation and interviews with 17 children aged 5–18 years with symptoms of GIDs and 20 parents of children with symptoms of GIDs aged 2–18 years.Results. The Russian version of PedsQLTM module of gastrointestinal symptoms (report from children 5-18 years old, report from parents for children 2–18 years old) was developed without significant difficulties. Eight questions required discussion after the forward translation, one change was made after the reverse translation, and three changes were made after the study of the symptom’s module by patients and parents.Conclusion. A conceptually equivalent version of the of PedsQLTM module of gastrointestinal symptoms in Russian has been developed for children aged 2–18 years. It allows to improve the assessment of HRQL in children with GIDs in the Russian Federation. To assess authenticity and reliability of the Russian version of the module, it’s recommended to conduct further research using a larger sample

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Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patients

Arakelyan,

Surkov,

Baranov

et al. 2023

Pediatr. farmakol.

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Peculiarities of Life Quality in Kids With Defect of Interventricular Septum

Kaladze

Yuschenko

2022

Tavricheskiy Mediko-Biologicheskiy Vestnik

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A ventricular septal defect is the most common congenital heart disease. With the improvement of cardiac surgery, the survival rates of children with heart disease have improved. In addition to clinical and hemodynamic improvement, an important task is to study the perception of the quality of life of children with an interventricular septal defect. The purpose of the study is to compare the quality of life of children with a ventricular septal defect. Materials and methods of the study: a survey was conducted of children with ventricular septal defect 3-17 years old (median age 9 years (Q1-Q3 - 5-12 years), as well as their parents using the Russian-language version of the international tool Pediatric Quality of Life Inventory (PEDsQL) 3.0 Cardiac Module used to assess the quality of life of children with diseases of the cardiovascular system. Results: the quality of life on the “heart problems” scale in children operated on for an interventricular septal defect was significantly lower than in children without surgical defect correction. In patients with FC | and || (n = 14) according to NYHA and Ross, the quality of life was statistically significantly lower on the scales “heart problems”, “anxiety associated with treatment”, “learning problems” than in patients with FC 0 (p <0.05). The quality of life of children with a body mass index below the norm on the “heart problems” scale was significantly lower than in children with a body mass index higher and within the norm (p <0.05). Conclusions: the quality of life of children with a ventricular septal defect may be impaired. Nevertheless, children without operational correction, with normal and above normal levels of physical development, in the absence of heart failure, better perceive the quality of life. In order to provide high-quality care, in addition to a thorough clinical assessment, quality of life should be an important aspect of the comprehensive treatment of heart disease

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Linguistic Ratification and Validation of Pediatric Quality of Life Inventory 3.0 Cardiac Module

Cited by 2 publications

References 7 publications

Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patients

Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patients

Peculiarities of Life Quality in Kids With Defect of Interventricular Septum

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