Life altering effects on children when a family member has an acquired brain injury; a qualitative exploration of child and family perceptions

Dawes, Kate; Carlino, Ashley; Berg, Maayken van den; Killington, Maggie

doi:10.1080/09638288.2020.1766582

Cited by 9 publications

(4 citation statements)

References 30 publications

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“…This justified the development of SAFIR © to support families of ABI persons from the early phase of hospitalization. These results follow the recommendations of previous studies in other countries regarding additional support for families of persons with ABI (Dawes et al, 2020; Kreutzer et al, 2015).…”

Section: Discussionsupporting

confidence: 91%

“…To support family functioning adjustment and promote mental health of family members by involving and considering families is thus highly recommended (Dharma, 2021; Moriarty et al, 2018; Rasmussen et al, 2020). This family support from health care professionals (HCPs) should be provided as early as possible, throughout the entire hospital stay, and beyond (Dawes et al, 2020; de Goumoëns et al, 2019; Kreutzer et al, 2015). This recommended practice has not yet been implemented and family support intervention to fill this gap is urgently needed.…”

mentioning

confidence: 99%

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The Development of an Early Intervention for Supporting Families of Persons With Acquired Brain Injuries: The SAFIR^© Intervention

et al. 2021

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Families of persons with acquired brain injuries need to be supported from the early phase of hospitalization. To date, no known early family intervention is available for this population. Using the Medical Research Council Framework, we developed a new intervention based on the Calgary Assessment and Intervention Models that includes the family preferences, clinician’s expertise, and the contextual resources. This paper aims to describe the complete development process including a scoping review, an assessment of families and clinicians’ needs, an evaluation of the contextual resources, and an adaptation of the theoretical framework. Using a systemic perspective, we tailored the new intervention to involve the stakeholder’s preferences. The result is an early family intervention named SAFIR©, led by a clinical nurse specialist, including five core components and structured around three phases and a follow-up. The next steps will be focused on assessment of the clinical feasibility of this new intervention.

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Section: Discussionsupporting

confidence: 91%

mentioning

confidence: 99%

The Development of an Early Intervention for Supporting Families of Persons With Acquired Brain Injuries: The SAFIR^© Intervention

et al. 2021

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“…Domestic research and the creation of interactive toys started late, but there is no shortage of excellent and valuable cases, such as the design and development of “Chicken Run,” the creation of the “Bears,” and the development and launch of “Dr. Lele.” Although interactive children's toys have emerged, innovation and systematization are not enough [ 14 ]. The actual promotion to the enterprise into the market for sale is still minimal.…”

Section: Related Workmentioning

confidence: 99%

Research on the Design of Interactive Children’s Vocal Enlightenment Toys Based on Audiovisual Association Experience

Bai

2022

Occupational Therapy International

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This paper examines the characteristics and current situation of children’s vocal enlightenment toy design, studies how to design children’s verbal enlightenment toys based on audiovisual associative experience, and develops appropriate optimization strategies and approaches. This paper analyzes the theoretical basis involved in design practice, summarizes the generation and concept of audiovisual association and the significance of associative experience for children’s vocal enlightenment, explores the application and characteristics of interaction design in children’s toys, and summarizes the creation of interactive toys. The triggered form of associative experience is determined according to the physical and mental development characteristics, interaction behavior, and experimental research of children at this stage. By summarizing the typical design elements of existing children’s interactive toys with good sales and reputation and designing a questionnaire, the Kano model was used to obtain the design element priorities to guide design practice. We used audiovisual association as an entry point to writing a sound and picture interactive program through processing and the Arduino platform to develop the interactive toys. “Sound fun” is an interactive toy that extracts the characteristics of children’s voices to correspond to the changes of picture elements and can provide real-time feedback of dynamic pictures through the user’s voice to achieve the purpose of triggering a synesthetic experience. Interaction design applied to toy design is a new direction in terms of traditional toy design, which enhances the interactivity of toys and enhances the user’s sense of experience and participation in the use of toys; it can improve the affinity and fun of toys.

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“…Families also reported feeling empowered and grateful when they were able to learn and understand about their loved ones' difficulties. This act of learning and supporting the family is echoed in other qualitative studies, where ongoing education and training of CCD, behaviour, and general coping strategies allow the family to function and thrive following the TBI (Holloway et al 2019;Grayson et al 2020;Dawes et al 2022). Despite the actions of resilience felt by the family members, they also acknowledged the extreme burden and relentless nature of caring for someone following a TBI.…”

Section: The Load the Family Carriesmentioning

confidence: 94%

An exploration of families’ lived experiences of attention-related communication difficulties following traumatic brain injury

VanSolkema,

McCann,

Dixon

et al. 2024

Brain Impairment

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Background. To explore families' experiences of living with someone who has attention and communication difficulties following a traumatic brain injury (TBI). Attention-related communication difficulties are common following TBI, but to date there is limited research into the effects on the family with respect to this cognitive communication difficulty. Methods. Recruitment of family members was completed through TBI community rehabilitation services. Inclusion criteria were that the family member needed to be living with an individual who had sustained a moderate to severe TBI at least 6 months prior to the study and that they had self-reported attention and communication difficulties. A semi-structured interview was completed. Qualitative interview data underwent reflexive thematic analysis with an inductive approach. Results. Eleven family members (including wives, mothers, a father, and a daughter) were interviewed. Two themes were generated that explored the lived experiences of the family. The first, adjustment to the new normal, outlines the changes and adaptations the families made to live with and support their loved one's attention and communication difficulties. The second theme, the load the family carries, reviews the two polarities of facilitation and support along with the burden the family endures following the injury. Conclusion. The themes outline how attention-related communication difficulties following TBI bring additional burden and challenges for families for years following the injury. Families report adapting their social lives and learning to implement specific strategies to improve their person's ability to interact and participate in conversations. Clinical implications are discussed.

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Life altering effects on children when a family member has an acquired brain injury; a qualitative exploration of child and family perceptions

Cited by 9 publications

References 30 publications

The Development of an Early Intervention for Supporting Families of Persons With Acquired Brain Injuries: The SAFIR^© Intervention

The Development of an Early Intervention for Supporting Families of Persons With Acquired Brain Injuries: The SAFIR^© Intervention

Research on the Design of Interactive Children’s Vocal Enlightenment Toys Based on Audiovisual Association Experience

An exploration of families’ lived experiences of attention-related communication difficulties following traumatic brain injury

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Life altering effects on children when a family member has an acquired brain injury; a qualitative exploration of child and family perceptions

Cited by 9 publications

References 30 publications

The Development of an Early Intervention for Supporting Families of Persons With Acquired Brain Injuries: The SAFIR© Intervention

The Development of an Early Intervention for Supporting Families of Persons With Acquired Brain Injuries: The SAFIR© Intervention

Research on the Design of Interactive Children’s Vocal Enlightenment Toys Based on Audiovisual Association Experience

An exploration of families’ lived experiences of attention-related communication difficulties following traumatic brain injury

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Product

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The Development of an Early Intervention for Supporting Families of Persons With Acquired Brain Injuries: The SAFIR^© Intervention

The Development of an Early Intervention for Supporting Families of Persons With Acquired Brain Injuries: The SAFIR^© Intervention