Let There Be Life: An Approach to Worship with Alzheimer's Patients and Their Families

Clayton, Jean

doi:10.1177/002234099104500209

Cited by 5 publications

(3 citation statements)

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“…Over the past decades a number of studies on dementia and spirituality have been published, though mostly in a Christian pastoral context (Richards, 1990;Clayton, 1991;Hellen, 1994;Everett, 1996;Elliot, 1997;Webb, 2001;Stuckey, 2003;Westius & Petersen, 2006). To our knowledge, few scientific studies in relation to dementia and view of life have been published.…”

Section: De Men Tia D E M E N T I Amentioning

confidence: 99%

View of life in persons with dementia

2009

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Objective: To study the view of life in dementia. The view of life of an individual is defined as a conception of reality, a central system of values and a basic emotional attitude. Method: Interviews with persons ( N = 21) with mild to moderate dementia of the Alzheimer’s type. The interview data were interpreted with a phenomenological hermeneutical method. Results: Despite their cognitive deterioration it was possible to understand the view of life of the participants in the frame of their life story. Their view of life seemed to guide them towards selecting mainly emotionally powerful and value-oriented memories. No exceptional characteristics that could be traced to their dementia disease were found in the participants’ views of life. Conclusions: The view of life of the participants with mild to moderate dementia was vital for their life story and was not erased by dementia. Implications: In order to respect people with dementia as persons, caregivers should strive for gaining some knowledge of their view of life.

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Section: De Men Tia D E M E N T I Amentioning

confidence: 99%

View of life in persons with dementia

2009

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“…The scientific premises of this project are supported by the literature; although the capacity of a person living with dementia to express or acknowledge a relationship with God will be eroded progressively by the disease, their connectedness to God or a spiritual realm remains andcan be tapped (Clayton, ; Swinton, ). Furthermore, acts of worship may have the power to reach the deeper memories of people living with dementia and promote a sense of engagement through a connection back to their faith (Clayton, ; Hepburn & Johnson, ; Kevern, ; Swinton, ). In addition, African American adults attend church for emotional support, which improves their emotional well‐being (Rote, Hill, & Ellison, ).…”

Section: Introductionmentioning

confidence: 94%

“…African American adults also often turn to their church and worship services for support when in distress. While churches and their worship services can provide resources and support that allow caregivers and persons living with dementia to remain active members of their community (Clayton, ; Hepburn & Johnson, ; Jing et al, ), many African American churches do not have programs to support the members of their congregation aging‐in‐the‐community or the families and congregants living with dementia.…”

Section: Introductionmentioning

confidence: 99%

Dementia‐friendly faith village worship services to support African American families: Research protocol

Epps

Brewster

Alexander

et al. 2019

Research in Nursing & Health

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African American caregivers for persons living with dementia frequently experience emotional strain, burden, social isolation, and depression. One source of support for them when in distress is their church community. However, many African American churches do not have programs to support families and congregants living with dementia. Dementia often restricts persons living with dementia and their caregivers from attending church. Both become increasingly uncomfortable in church settings due to fear of embarrassment, uncertainty about the behavior of the person living with dementia, and shame. Church attendance and religion has been shown to be beneficial for caregivers and elders living with dementia. However, there is little work exploring how involvement in religious practices together (caregivers and persons living with dementia) might enhance the quality of life for these families. This protocol is written to detail the designing and testing of the feasibility and preliminary efficacy of a dementia‐friendly faith village worship service. In the study, we will examine how dementia‐friendly faith village worship services support the well‐being of caregivers and care recipients in three African American churches through observation, interviews, and surveys. A sample of 30 dyads of African American caregivers and persons living with dementia will be asked to attend six modified worship services together over 6 months. In this study, we hope to demonstrate the significant role of churches in the lives of African American family caregivers and persons living with dementia and show that a faith‐based, family‐oriented approach can promote a greater quality of life for African American families living with dementia.

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Designing Worship Services to Support African-American Persons Living with Dementia

et al. 2020

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Let There Be Life: An Approach to Worship with Alzheimer's Patients and Their Families

Abstract: Describes a novel approach to providing a meaningful worship service for Alzheimer's patients in which greater stress is placed upon familiar scripture, music, prayers, and other right-brain functions, rather than on sermon or homily.

Cited by 5 publications

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View of life in persons with dementia

View of life in persons with dementia

Dementia‐friendly faith village worship services to support African American families: Research protocol

Designing Worship Services to Support African-American Persons Living with Dementia

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