Abstract:Advocates and scientists have partnered to develop and evaluate programs meant to erase the egregious effects of the different forms of stigma. Enough evidence has been collected to yield lessons about approaches to stigma change. Some of the most insightful of these lessons emerge from unintended consequences of good intentioned approaches, and are the focus of this paper. They include the limited benefits of education especially when compared to contact, beating stigma is more than changing words, beware pit… Show more
“…For those with FND, there is a stigma ascribed to having mental illness as the cause of their symptoms. Stigma is a cognitive framing or worldview that leads to stereotyping, prejudice, and unjust discriminatory acts (26). With stigma, negative evaluations lead to negative emotions.…”
A multidisciplinary expert review of key issues and future directions from the conference “Controversial labels and clinical uncertainties: psychogenic disorders, conversion disorder, and functional symptoms.”On October 9 and 10, 2015, a conference entitled “Controversial labels and clinical uncertainties: psychogenic disorders, conversion disorder, and functional symptoms” was held at the Center for Ethics, Emory University, Atlanta, GA, USA. This conference brought together a select group of 30 distinguished thought leaders and practitioners, including ethicists, researchers, clinicians, humanities scholars, and advocates to discuss the unique challenges and controversies related to the diagnosis, treatment, and stigma for patients with what is currently recognized as functional (“psychogenic”) neurological disorders. Our group of experts explored the conflicts and ethical tensions within health care that must be addressed in order to advance care for these disorders. What follows is a reflection on the conversations between conference attendees outlining key challenges and value conflicts in the diagnosis and treatment of patients with functional disorders. With this report, we aim to provide a roadmap for reducing stigma and improving care for functional neurological disorders (FND). A path forward would involve (1) setting a multifactorial research agenda that equally prioritized access to effective psychotherapy as well as identification of novel biomarkers; (2) empowering patients with FND to be heard and to drive changes in care; and (3) reducing isolation for clinicians by providing formal training and setting up multidisciplinary care teams and support networks.
“…For those with FND, there is a stigma ascribed to having mental illness as the cause of their symptoms. Stigma is a cognitive framing or worldview that leads to stereotyping, prejudice, and unjust discriminatory acts (26). With stigma, negative evaluations lead to negative emotions.…”
A multidisciplinary expert review of key issues and future directions from the conference “Controversial labels and clinical uncertainties: psychogenic disorders, conversion disorder, and functional symptoms.”On October 9 and 10, 2015, a conference entitled “Controversial labels and clinical uncertainties: psychogenic disorders, conversion disorder, and functional symptoms” was held at the Center for Ethics, Emory University, Atlanta, GA, USA. This conference brought together a select group of 30 distinguished thought leaders and practitioners, including ethicists, researchers, clinicians, humanities scholars, and advocates to discuss the unique challenges and controversies related to the diagnosis, treatment, and stigma for patients with what is currently recognized as functional (“psychogenic”) neurological disorders. Our group of experts explored the conflicts and ethical tensions within health care that must be addressed in order to advance care for these disorders. What follows is a reflection on the conversations between conference attendees outlining key challenges and value conflicts in the diagnosis and treatment of patients with functional disorders. With this report, we aim to provide a roadmap for reducing stigma and improving care for functional neurological disorders (FND). A path forward would involve (1) setting a multifactorial research agenda that equally prioritized access to effective psychotherapy as well as identification of novel biomarkers; (2) empowering patients with FND to be heard and to drive changes in care; and (3) reducing isolation for clinicians by providing formal training and setting up multidisciplinary care teams and support networks.
“…Although the research of mental illness stigma has found that elevated anxiety and fear are associated with increased levels of mental illness stigma (e.g., Angermeyer et al, 2010;Corrigan, 2016), research of other types of stigma offers results similar to those of the current study. For example, in his study of empathy and personal distress in the context of HIV/AIDS related stigma, Olapegba (2010) found that higher levels of personal distress led to higher levels of emotional concern, which then led to lower levels of stigma.…”
Section: Mental Illness Stigmasupporting
confidence: 74%
“…beliefs, about mental illness that lead to the public's fear, rejection, avoidance, and discrimination against people who have a mental illness (Corrigan, 2016;Parcesepe & Cabassa, 2013). Similar to other forms of bias and prejudice, such as racism and sexism, the public stigma of mental illness matters because it "sets the context in which individuals in the community respond to the onset of mental health problems, clinicians respond to individuals who come for treatment, and public policy is crafted" (Pescosolido et al, 2010(Pescosolido et al, , p. 1324.…”
Section: Types Of Mental Illness Stigmamentioning
confidence: 99%
“…Wei et al (2012) specifically considered the effects of fear associated with counseling a client who was racially different on a counselor's multicultural counseling self-efficacy. A number of researchers have documented the association of fear and public stigma of mental illness (e.g., Angermeyer et al, 2010;Corrigan, 2016;Parcesepe & Cabassa, 2013). Although Rogers (1987) suggested that counselors identify with a client's fear as a means of developing empathy, it could be that a counselor's own, perhaps unidentified, fear is the greater barrier to empathic response.…”
Section: The Multidimensional Nature Of Empathymentioning
confidence: 99%
“…The literature centered on mental illness stigma has found fairly consistently that increased fear or anxiety is closely related to increases in mental illness stigma (Angermeyer et al, 2010;Corrigan, 2016;Parcesepe & Cabassa, 2013). In the current study, however, increases in personal distress, the factor of empathy associated with anxiety and emotional discomfort, were associated with lower levels of mental illness stigma.…”
Objectives
As the number of people living with dementia increases, reducing stigma has become a policy priority. One way of decreasing stigma is through contact with the stigmatised group. However, the impact of this is difficult to establish due to a lack of validated measures suitable for adolescents. The aim of this study was to develop and validate a level of contact questionnaire designed to assess adolescents' contact with people living with dementia.
Methods
Participants were recruited from five schools in two studies (N = 446 and N = 488) and completed the preliminary 11‐item version of the adolescent level of contact of dementia (ALoCD).
Results
Study 1 explored the factor structure of the ALoCD, revealing two factors ‘direct contact’ and ‘indirect contact’. Study 2 confirmed the structure of the ALoCD and tested for discriminant validity. These two studies resulted in a 9‐item scale that showed adequate internal consistency (α = .89, α = .62) and discriminant validity between those who did and did not live with a person with dementia.
Conclusion
The development of this scale enables assessment of direct (eg, living with a person with dementia) and indirect (watching a TV show about dementia) contact with dementia, and the extent of this contact. This initial validation suggests a psychometrically sound scale but further research should be undertaken to fully explore the properties of the scale.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.