Legislated right for donor-insemination children to know their genetic origin: a study of parental thinking

Lalos, Ann; Gottlieb, Claes; Lalos, Othon

doi:10.1093/humrep/dem063

Cited by 95 publications

(89 citation statements)

References 25 publications

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“…In Sweden, physicians have the main responsibility for assessing the suitability of donors and recipients, including ensuring that recipient couples will tell offspring about their genetic origin. Despite this, a recent Swedish study of parents following DI [6] showed that a majority had not been encouraged by the staff involved in the DI treatment to be open about the donation with their child/ren, but had received unclear and contradictory advice regarding disclosure. In a study from the US [7], physicians were the only group of health professionals who encouraged or supported non-disclosure for couples who conceived using gamete donor treatment.…”

Section: Introductionmentioning

confidence: 99%

Attitudes towards gamete donation among IVF doctors in the Nordic countries—are they in line with national legislation?

Lampic

Svanberg

Sydsjö

2009

J Assist Reprod Genet

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Purpose To compare attitudes towards gamete donation between IVF doctors in the Nordic countries, and to determine whether attitudes are in correspondence with national legislation. Materials and methods A study-specific questionnaire was used to study attitudes of 108 IVF doctors (92% response). Participants constituted 78% of all IVF doctors in Sweden, Denmark and Norway and 15% of IVF doctors in Finland. Results Despite similar legislation regarding offspring right to learn his/her donor's identity, IVF doctors from Norway reported significantly more negative attitudes towards disclosure than did Swedish physicians. A majority from all countries demonstrated positive attitudes towards embryo donation and allowing sperm donation for lesbian couples. Physicians reported strong support for anonymous donation but less support for 'known' donation. Conclusion There are discrepancies between IVF doctors' attitudes towards gamete donation and national legislation in four Nordic countries. Negative attitudes towards disclosure to offspring may counteract legislative intentions.

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Section: Introductionmentioning

confidence: 99%

Attitudes towards gamete donation among IVF doctors in the Nordic countries—are they in line with national legislation?

Lampic

Svanberg

Sydsjö

2009

J Assist Reprod Genet

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“…Ademais, o país promoveu alterações nos métodos de recrutamento, como a recomendação de que caso o doador fosse casado houvesse o consentimento da esposa sobre a decisão. Segundo Lalos et al(2003), os doadores passaram a ser homens na faixa etária de 34 a 40 anos, casados, com filhos, motivados pelo desejo de ajudar casais inférteis que não conseguem conceber. Anteriormente, predominava no perfil de doadores estudantes universitários que utilizavam a doação para financiar os estudos.…”

Section: A Abolição Do Anonimato: Os Direitos Da Criança Concebidaunclassified

“…A principal alegação referida foi "desnecessário" e "receio de ferir a criança". O estudo realizado por Lalos et al (2007), conduzido entre famílias que fizeram uso de doador de sêmen, revelou que 61% falaram ao filho sobre o processo de concepção, mas 61% não abordaram a possibilidade de o doador ser identificado.…”

Section: Considerações Finaisunclassified

Anonimato e segredo na reprodução humana com participação de doador: mudanças em perspectivas

Machin

2016

Saude soc.

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Av. Doutor Arnaldo, 455, 2º andar, Sala 2221. São Paulo, SP, Brasil. CEP 01246-903. ResumoAs tecnologias reprodutivas, ao separar a sexualidade da reprodução, interferiram não somente nas relações entre os sexos, mas também nas relações de filiação, possibilitando o surgimento de configurações familiares decorrentes do acesso a material genético de terceiros (doadores de óvulos, sêmen ou embrião). O segredo e o anonimato que sempre envolveram os doadores de gametas têm sido desafiados. Nos últimos vinte anos, diversos países alteraram sua legislação adotando a identidade aberta do doador de material genético. A possibilidade de conhecer e ter acesso a esta identidade (chegando à maioridade) ou mesmo a busca por meios irmãos pode ser uma realidade em muitos países para crianças nascidas por meio do acesso à tecnologia reprodutiva. O artigo enfatiza a questão do segredo e do anonimato envolvendo o uso de material genético de terceiros em tecnologias reprodutivas. A discussão é explorada por meio do debate ocorrido no Reino Unido relativo à abolição do anonimato e suas implicações sob a perspectiva dos doadores, dos casais demandantes e da criança concebida. O estudo reflete ainda sobre as concepções de família envolvidas nessa discussão. Palavras-chave: Tecnologia Reprodutiva; Doador de Sêmen; Privacidade; Família.1 Agradeço ao suporte recebido do CNPq (Conselho Nacional de Desenvolvimento Científico e Tecnológico) pelo meio de auxílio à pesquisa e bolsa de pós-doutoramento, e ao The Centre for Family Research (Cambridge University) pelo apoio durante o período no qual estive como professora visitante.

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“…Gottlieb et al had not yet told their children about the possibility of ident?jj'ing the donor (Lalos, Gottlieb and Lalos, 2007). And, as reported in Chapter Four, a recent UK study found that, despite the greater encouragement towards disclosure in recent years, less than 8 per cent of egg donation parents and less than 5 per…”

Section: Disclosurementioning

confidence: 99%

“…The research evidence identifies three main reasons for secrecy: first, that couples may view the decision not to disclose as protecting them from negative societal reactions, and preventing their child being considered different from others (Lalos, Gottlieb and Lalos, 2007;Nachtigall et al, 1997); second, that male partners may have concerns that the acknowledgement of infertility would cause their masculinity to come under suspicion (Courtenay, 2000;Glover et al, 1996;Miall, 1996;Nachtigall, Becker and Wozny, 1992); and third, that family relationships (particularly father-child) would be damaged if the child's real genetic identity was revealed (Gottlieb, Lalos and Lindblad, 2000;Lalos, Gottlieb and Lalos, 2007). I found that the users of Repromed express similar concerns.…”

mentioning

confidence: 99%

The Removal Of Donor Anonymity in The UK: The Silencing Of Claims By Would-Be Parents

Turkmendag

Dingwall

Murphy

2008

International Journal of Law, Policy and the Family

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From 1 April 2005, UK law was changed to allow children born through gamete donation to access identifying details of the donor. The decision to abolish donor anonymity was strongly influenced by a discourse that asserted the 'child's right-to-know' their genetic origins. Under the current regulation, if would-be parents want to receive treatment in the UK, they have no option but to use gametes/embryos from identifiable donors. For a majority, this also means that they will be on lengthy waiting lists due to the donor shortage. Interestingly, the voice of would-be parents -those who would be most affected by a contraction in donor supply and would carry the burden of informing children of their origins, should they so choose-were not heard during the donor anonymity debate or thereafter.Adopting a social constructionist approach, this thesis studies removal of donor anonymity as a social problem and examines why would-be parents remained silent during the public debate.There are two major steps taken: first, examining the donor anonymity debate in the public realm through media presentations, and secondly investigating would-be parents' reactions through ethnographic studies: a virtual ethnography study and interviews.

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Legislated right for donor-insemination children to know their genetic origin: a study of parental thinking

Cited by 95 publications

References 25 publications

Attitudes towards gamete donation among IVF doctors in the Nordic countries—are they in line with national legislation?

Attitudes towards gamete donation among IVF doctors in the Nordic countries—are they in line with national legislation?

Anonimato e segredo na reprodução humana com participação de doador: mudanças em perspectivas

The Removal Of Donor Anonymity in The UK: The Silencing Of Claims By Would-Be Parents

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