Legal But Not Always Allowed

Baumrucker, Steven J.; Stolick, Matt; Carter, Gregory T.; Mingle, Paige; Oertli, Karrie A.; Morris, Gerald M.

doi:10.1177/1049909111412540

Cited by 8 publications

(8 citation statements)

References 1 publication

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Many of them focus on the refusal 69,79,83–85 or the withdrawal of mechanical ventilation. 28,39,84,86–95 But patients also express suicidal thoughts, 54,62,77,78 the desire for assisted suicide 1,31,96–100 or the request for euthanasia, 1,61,100,101 and the desire for voluntary stopping of eating and drinking, 51,54,97,102 for palliative sedation 100,103,104 and for not being resuscitated. 15,64,88,105 The proportion of PALS who have ever thought of (assisted) suicide or euthanasia is indicated with different rates in the studies.…”

Section: Resultsmentioning

confidence: 99%

“…117 According to another case study, the chaplain’s perspective focuses more on the patient’s beliefs about life and death, his or her understanding of suffering and what that means for his or her spirituality. 96…”

Section: Resultsmentioning

confidence: 99%

“…117 According to another case study, the chaplain's perspective focuses more on the patient's beliefs about life and death, his or her understanding of suffering and what that means for his or her spirituality. 96 Carefully assessing the stability of a patient's wish to die is denoted as an important issue by Murray and Butow 36 since there is evidence that some PALS change their mind during their disease trajectory. Therefore, according to Dreyer et al, 94 the patient's final decision to terminate IV is proven repeatedly after requesting discontinuation to ensure its durability.…”

Section: Publicationsmentioning

confidence: 99%

“…In some cases, PALS' wishes (expressed directly or in advance) regarding treatment options or their wishes to die are ignored. 13,51,54,64,105,109 Some authors, for example, report that the desire to stop eating and drinking has been disregarded, 102 an original plan to refuse non-IV (NIV) or long-term IV has not been accepted, 110,111 a request for assisted dying under the Death with Dignity Act in Oregon has been denied by a church-sponsored nursing home 96 or a will not to be resuscitated has not been respected. 15,36,38,64,105 Veronese et al 69 report that some patients who decided against IV change their mind and agree during an emergency situation because they are only offered the alternative of dying without being informed about the potentials of palliative care.…”

Section: Ignoring or Disregarding Patient's Wishesmentioning

confidence: 99%

See 3 more Smart Citations

Talking about the end of life: communication patterns in amyotrophic lateral sclerosis – a scoping review

et al. 2022

View full text Add to dashboard Cite

Amyotrophic lateral sclerosis (ALS) leads to death on average 2–4 years after the onset of symptoms. Although many people with the disease decide in favour of life-sustaining measures, some consider hastening death. The objectives of this review are to provide an insight into the following questions: (1) How do people with amyotrophic lateral sclerosis (PALS), their families and health care professionals (HCPs) communicate about life-sustaining and life-shortening options? (2) What are the challenges for all involved in decision making and communication about this topic? To answer these questions, we searched eight databases for publications in English and German on end-of-life issues of PALS. We included texts published between 2008 and 2018, and updated our search to May 2020. Sources were analysed in MAXQDA using deductively and inductively generated codes. After the final analysis, 123 full texts were included in this review. We identified a wide range of communicative challenges and six different and, in part, opposite communication patterns: avoiding or delaying communication on end-of-life issues, openly considering dying and actively seeking assistance, ignoring or disregarding patients’ wishes, discussing and respecting the patients’ wishes, engaging in advance care planning and avoiding or delaying advance care planning. The literature reveals a very heterogeneous response to end-of-life issues in ALS, despite several good-practice suggestions, examples and guidelines. We derive a strong need for harmonization and quality assurance concerning communication with PALS. Avoiding or delaying communication, decision making and planning, as well as ignoring or disregarding the patient’s will by HCP can be judged as a violation of the ethical principles of autonomy and non-maleficence.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Publicationsmentioning

confidence: 99%

Section: Ignoring or Disregarding Patient's Wishesmentioning

confidence: 99%

See 2 more Smart Citations

Talking about the end of life: communication patterns in amyotrophic lateral sclerosis – a scoping review

et al. 2022

View full text Add to dashboard Cite

show abstract

“…Most often, arguments in favour of euthanasia were grounded in rights-based language; for example, the 'right to die', the 'right to self-determination', 48 or the 'right to die with dignity'. 49 A number of authors argued that upholding an individual's right to die fosters human flourishing and in turn, facilitates a dignified and autonomous death. 21,48,50,51 These arguments can be summarized by the perspective that respect for persons requires respect for individuals' autonomous decision-making.…”

Section: Ethical Principles Concepts and Theoriesmentioning

confidence: 99%

Nursing and euthanasia: A narrative review of the nursing ethics literature

Pesut¹,

Greig²,

Thorne

et al. 2019

Nurs Ethics

View full text Add to dashboard Cite

Background: Medical Assistance in Dying, also known as euthanasia or assisted suicide, is expanding internationally. Canada is the first country to permit Nurse Practitioners to provide euthanasia. These developments highlight the need for nurses to reflect upon the moral and ethical issues that euthanasia presents for nursing practice. Purpose: The purpose of this article is to provide a narrative review of the ethical arguments surrounding euthanasia in relationship to nursing practice. Methods: Systematic search and narrative review. Nine electronic databases were searched using vocabulary developed from a stage 1 search of Medline and CINAHL. Articles that analysed a focused ethical question related to euthanasia in the context of nursing practice were included. Articles were synthesized to provide an overview of the literature of nursing ethics and euthanasia. Ethical Considerations: This review was conducted as per established scientific guidelines. We have tried to be fair and respectful to the authors discussed. Findings: Forty-three articles were identified and arranged inductively into four themes: arguments from the nature of nursing; arguments from ethical principles, concepts and theories; arguments for moral consistency; and arguments from the nature of the social good. Key considerations included nursing’s moral ontology, the nurse–patient relationship, potential impact on the profession, ethical principles and theories, moral culpability for acts versus omissions, the role of intention and the nature of the society in which euthanasia would be enacted. In many cases, the same assumptions, values, principles and theories were used to argue both for and against euthanasia. Discussion: The review identified a relative paucity of literature in light of the expansion of euthanasia internationally. However, the literature provided a fulsome range of positions for nurses to consider as they reflect on their own participation in euthanasia. Many of the arguments reviewed were not nursing-specific, but rather are relevant across healthcare disciplines. Arguments explicitly grounded within the nature of nursing and nurse–patient relationships warrant further exploration.

show abstract

The full spectrum of ethical issues in the care of patients with ALS: a systematic qualitative review

et al. 2015

View full text Add to dashboard Cite

Dealing systematically with ethical issues in amyotrophic lateral sclerosis (ALS) care requires an unbiased awareness of all the relevant ethical issues. The aim of the study was to determine systematically and transparently the full spectrum of ethical issues in ALS care. We conducted a systematic review in Medline and Google Books (restricted to English and German literature published between 1993 and 2014). We applied qualitative text analysis and normative analysis to categorise the spectrum of ethical issues in ALS care. The literature review retrieved 56 references that together mentioned a spectrum of 103 ethical issues in ALS care. The spectrum was structured into six major categories that consist of first and second-order categories of ethical issues. The systematically derived spectrum of ethical issues in ALS care presented in this paper raises awareness and understanding of the complexity of ethical issues in ALS care. It also offers a basis for the systematic development of informational and training materials for health professionals, patients and their relatives, and society as a whole. Finally, it supports a rational and fair selection of all those ethical issues that should be addressed in health policies, position papers and clinical practice guidelines. Further research is needed to identify ways to systematically select the most relevant ethical issues not only in the clinical environment, but also for the development of clinical practice guidelines.

show abstract

Legal But Not Always Allowed

Cited by 8 publications

References 1 publication

Talking about the end of life: communication patterns in amyotrophic lateral sclerosis – a scoping review

Talking about the end of life: communication patterns in amyotrophic lateral sclerosis – a scoping review

Nursing and euthanasia: A narrative review of the nursing ethics literature

The full spectrum of ethical issues in the care of patients with ALS: a systematic qualitative review

Contact Info

Product

Resources

About