Learning to be a family caregiver for severely debilitated stroke survivors during the first year in Taiwan

Wu, Chiung-Man

doi:10.17077/etd.0v2hrfeu

Cited by 14 publications

(47 citation statements)

References 94 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…os enfermeiros só vêm a casa do meu pai para cuidar das feridas e trocar a sonda, não dão mais informação. (EC11) Em um estudo 22 ficou evidente que as respostas em cuidados de saúde estão centradas nas instituições hospitalares e que existem muitos idosos hospitalizados que procuram ajuda face à doença aguda ou agudização de doenças crônicas. Estes fatos são evidentes neste estudo, sendo por isso importante existir articulação entre os centros de saúde, os hospitais e os serviços de segurança social.…”

Section: Resultsunclassified

Avaliação de necessidades informacionais dos cuidadores domiciliares

2015

View full text Add to dashboard Cite

RESUMO: Objetivo: identificar necessidades, dificuldades, informações necessárias e adequabilidade do uso de tecnologias educacionais dos familiares cuidadores na prestação de cuidados informais à pessoa dependente no domicílio. Método: estudo exploratório descritivo com amostra intencional de cuidadores e coleta de dados realizada por entrevista semiestruturada a 12 cuidadores utilizando questionário sociodemográfico e avaliação por Índice de Barthel. Resultados: os participantes eram maioritariamente mulheres, filhas, com atividade profissional, com média etária 57 anos. As pessoas dependentes eram na maioria mulheres, a maior parte da amostra era totalmente dependente, apresentando uma média etária de 78 anos. Foi identificada necessidade de informação para o desenvolvimento de competências nos domínios do conhecimento, instrumental e os apoios sociais relativos aos autocuidados de alimentar-se, virar-se e transferir-se e a utilidade de tecnologia educacional. Conclusão: este estudo contribui para melhor atuação dos enfermeiros na capacitação dos cuidadores na prestação de cuidados à pessoa dependente. Descritores: Saúde da família; Enfermagem em saúde comunitária; Autocuidado.ABSTRACT: Aim: to identify needs, difficulties, essential information and suitability of the use of educational technologies of family caregivers in providing informal care to dependent person in the household Method: descriptive exploratory study with an intentional sample of caregivers and data collection performed by semi-structured interviews to 12 caregivers using sociodemographic questionnaire and assessment by Barthel Index. Results: participants were mostly women, daughters, in professional activity and mostly 57 years-old. Dependent people were mostly women, most of the sample was totally dependent and mostly 78 years-old. It was identified a need for information in order to develop skills in knowledge, instrumental and social support for the self-care on feeding, mobility and locomotion and the usefulness of educational technology. Conclusion: this study contributes to a better performance of nurses in training of caregivers on the care of the dependent person. Descriptors: Family health; Community health nursing; Selfcare. RESUMEN: Objetivo: identificar necesidades, dificultades, la información esencial que necesitan y la adaptación a tecnologías educativas de cuidadores domiciliares en el

show abstract

Section: Resultsunclassified

Avaliação de necessidades informacionais dos cuidadores domiciliares

2015

View full text Add to dashboard Cite

show abstract

“…These conditions lead to disability-associated experience, including anxiety, depression, anger, being hypercritical and emotional disturbance [38,40,44,45] which in turn had an impact on the immediate lives of family members [38] especially the life of the main caregiver. This impact is related to caregiving role responsibilities and challenges [47,51]. Accepting caregiving-related roles by the family has the nature of hardship.…”

Section: Substantive Findingsmentioning

confidence: 99%

“…Behavioral coping strategies consist of having accommodation for the survivor and avoiding institutionalized care [42,45,51] and using experience and knowledge through trial and error [51]. Other behavioral coping strategies are providing hygiene [39], organizing a new pattern of interdependence [40], and arranging actions into patterns and routines [41] by using a regular schedule and timetable [44].…”

Section: Coping Strategies (Bc)mentioning

confidence: 99%

“…Social level coping strategies involved seeking help from other people [51], seeking information, learning stroke care [8,44,51] and being open to healthcare professionals' and friends' possible services [41,45]. Other social level coping strategies included requesting assistance to manage daily task [39], receiving support from stroke caregivers group and friends as well as sharing thoughts and feelings with them [36,40].…”

Section: Coping Strategies (Bc)mentioning

confidence: 99%

“…The family continued to survive despite uncertainty [51] and achieved a balance in everyday life through integrating stroke into the family life [45] so that its intactness was maintained [38] and the survivors could regain their normal functions and roles [40]. Negative outcome (maladaptation) was identified as a family being drained of energy to go on and being an outsider as well as unsuccessful role playing [45].…”

Section: Family Adaptation (Xx Factor)mentioning

confidence: 99%

See 2 more Smart Citations

Family Adaptation to Stroke: A Metasynthesis of Qualitative Research based on Double ABCX Model

Hesamzadeh

Dalvandi

Maddah

et al. 2015

Asian Nursing Research

View full text Add to dashboard Cite

show abstract

Information, Involvement, Self-care and Support - The Needs of Caregivers of People with Stroke: A Grounded Theory Approach

Lobo

Froelich

Abdelrazek

et al. 2021

Preprint

View full text Add to dashboard Cite

Background: Globally, stroke is a leading cause of death and disability, with most care undertaken by caregivers who are generally family and friends without prior experience of care. The lack of experience or unpreparedness results in feelings of uncertainty, burnout, anxiety, burden, etc. Hence, it is necessary to identify the needs of caregivers to support them in their caregiving journey better and improve the quality of care delivered. Methods: The study employed a grounded theory methodology that utilizes information gathered from literature reviews and social media to represent the needs and create a storyline visually. The storyline is further refined and evaluated using an online survey of 72 participants recruited through online stroke caregiving communities. Results: The study identified four core categories of needs, i.e., information, involvement, self-care and support that need to be delivered at appropriate times to ensure the caregivers feel prepared to assume their role of care and are supported throughout the care trajectory. Conclusions: There is a need to create a caregiver-centered approach in stroke recovery to ensure limited obstruction to care and reduced uncertainty in recovery. Moreover, through the inclusion of caregivers in the recovery process, it may be possible to reduce the burden of care to the caregiver and ensure the satisfaction of the healthcare system throughout recovery.

show abstract

Learning to be a family caregiver for severely debilitated stroke survivors during the first year in Taiwan

Cited by 14 publications

References 94 publications

Avaliação de necessidades informacionais dos cuidadores domiciliares

Avaliação de necessidades informacionais dos cuidadores domiciliares

Family Adaptation to Stroke: A Metasynthesis of Qualitative Research based on Double ABCX Model

Information, Involvement, Self-care and Support - The Needs of Caregivers of People with Stroke: A Grounded Theory Approach

Contact Info

Product

Resources

About