Leading with inclusion during the COVID-19 pandemic

Warrior, Lakshmi; Kim, Christine; Burdick, Daniel; Ackerman, Daniel J.; Bartolini, Luca; Cagniart, Kendra R.; Dangayach, Neha; Dawson, Elliot T.; Orjuela, Karen; Perue, Gillian Gordon; Cutsforth‐Gregory, Jeremy K.; Bahouth, Mona N.; McClean, Jeffrey C.; DeLuca, Gabriele C.

doi:10.1212/wnl.0000000000010641

Cited by 13 publications

(11 citation statements)

References 18 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The COVID-19 health emergency has further highlighted longstanding racism, social inequities, and health disparities in many ways including disproportionate access to care (including telemedicine), morbidity, and mortality. [26][27][28] There is a crucial need for health disparity research in headache medicine. Systemic racism has to be recognized as a cause for racial health disparities.…”

Section: Ta B L E 1-continuedmentioning

confidence: 99%

Ten Eleven things to facilitate participation of underrepresented groups in headache medicine research

et al. 2021

View full text Add to dashboard Cite

Headache is a leading reason for medical consultation and yet remains underdiagnosed. 1 Headache diseases are highly prevalent and disabling. Migraine alone affects 1 billion people and is the second leading cause of disability worldwide. 2 There still remains a dearth of information surrounding how the headache diseases affect underserved populations and most importantly how this can be addressed. Migraine prevalence studies based in the United States indicate that the prevalence is highest in Native Americans, followed by White Americans, Black Americans, Hispanics, and Asian-Americans. 3,4 Black Americans are less likely to be diagnosed with migraine, in part because they are less likely to endorse full criteria for migraine, and are also less likely to access the medical system for treatment. 3,5 Black men receive the least care for headache diseases nationwide and are less likely to present for ambulatory care for migraine compared with Whites. 6,7 Black patients are less likely to be given pain medications than White patients despite similar self-reports of pain. 8-10 To our knowledge, there are no examples of headache researchers addressing the challenges to inclusion of diverse populations in headache clinical trials. The authors are aware of only three research studies published that specifically examined for racial health disparities in headache medicine. [11][12][13] These studies could be classified as first-generation health disparity research. 14,15

show abstract

Section: Ta B L E 1-continuedmentioning

confidence: 99%

Ten Eleven things to facilitate participation of underrepresented groups in headache medicine research

et al. 2021

View full text Add to dashboard Cite

show abstract

“…In addition to the increasing feeling of separation, depression, and stress [29], the further disappointment of not being capable of interacting over the telephone with medical specialists, and loved ones; leave the person with auditory disability disconnected from their support network. At this time, the captioning phone with an unprecedented demand for captioning is an empowering approach for communicating with medical specialists, keep in contact with friends and family [30].…”

Section: Remedial Approachmentioning

confidence: 99%

Pandemic and disability: Challenges faced and role of technology

Parida¹,

Sinha²

2021

TAD

View full text Add to dashboard Cite

The pandemic has affected every facet of human life. Apart from individual’s psychological and mental health issues, the concern regarding mobility, access and communication with high risk infection is a challenging situation. People with disability are more likely vulnerable to infections. The new changes in our social lifestyle (social distancing, limiting touch) can profoundly impact the day today life of people with disability. In this paper, we will briefly discuss the situation faced by individuals with disabilities, some known remedies, and yet to be identified and curated technological remedies; the impact due to transition of special education toward online mode. Tips and tricks for better utilization of work from home concept by people with disabilities. Accessibility must be universal, accommodating all and encouraging inclusivity. As rightly said by Helen Keller, “The only thing worse than being blind is having sight but no vision”; subsequently, going by the demand of the time, we should contribute toward the universal design approach by supporting people with disabilities and commit to the changes required in disability care to reduce the impact of pandemic.

show abstract

“…[1,3] Differences in COVID-19 infection rates and adverse outcomes following infection across different ethnic groups have been described. [2,15,18,19,29,30] In the US, the overall mortality among Afro-Americans with COVID-19 was significantly higher than that of White and Asians. [14] In Canada's most populous province Ontario, South Asians (29.6% of the total population) and Chinese (19.4%) represent the largest visible minorities.…”

Section: Introductionmentioning

confidence: 99%