Late outcomes in patients with surgically treated congenital heart disease

Quality-of-Life Concerns Differ Among Patients, Parents, and Medical Providers in Children and Adolescents With Congenital and Acquired Heart Disease

“…The primary goal of this qualitative technique was to identify, through group consensus, the most important thoughts on a given topic or question according to all members of a common group. [18][19][20][21] A total of 14 different focus groups representing 5 different cohorts (1)(2)(3)(4)(5) were assembled on the basis of age and role: 3 groups each of (1) children with HD, (2) adolescents with HD, (3) parents of children with HD, and (4) parents of adolescents with HD; and 2 groups of (5) health care providers of pediatric patients with HD. Respondents in all focus groups provided their views of how HD affects their or their child's or their patient's QoL.…”

Penilaian Kualitas Hidup pada Anak dengan Penyakit Jantung Bawaan Asianosis dan Sianosis

“…18 Kami mendapatkan kualitas hidup yang lebih baik pada PJB asianosis dibandingkan dengan PJB sianosis.…”

Parental Knowledge Regarding Lifelong Congenital Cardiac Care

“…Patients in all diagnostic categories face potential long-term complications, including fibrosis at intracardiac and intravascular surgical sites, development of valvular disease, arrhythmia, thrombosis, aneurysmal formation, myocardial dysfunction, fluid retention, coronary artery disease, and multi-organ failure. 2,[17][18][19][20][21][22][23][24][25][26][27][28][29][30] Despite these shared potential sequelae, the perception of LLCCC needs differed according to underlying diagnosis. Although reasons remain unknown, parental knowledge might have been influenced by a greater perception of achieved normalcy for children with specific diagnoses, because of less frequent visits, testing, and interventions and less cardiovascular decompensation during childhood.…”