L’annonce du diagnostic dans les unités d’oncologie pédiatrique africaines

Important Aspects Influencing Delivery of Serious News in Pediatric Oncology: A Scoping Review

“…Aspects related to the initial setting of how serious news is delivered were identified predominantly in studies focused on the parental perspective. Parents stressed privacy [ 30 , 37 , 43 ]. The location of the conversation was less important if privacy was ensured [ 30 ].…”

“…The location of the conversation was less important if privacy was ensured [ 30 ]. In contrast, parents described their experience as disruptive when they felt that their privacy was violated by others [ 30 , 43 ]. Another issue identified by parents was related to who is present when the serious news is delivered, including the patient [ 5 , 33 , 51 , 55 ], other family members [ 30 , 43 , 44 ] and medical staff [ 30 , 44 ].…”

“…In contrast, parents described their experience as disruptive when they felt that their privacy was violated by others [ 30 , 43 ]. Another issue identified by parents was related to who is present when the serious news is delivered, including the patient [ 5 , 33 , 51 , 55 ], other family members [ 30 , 43 , 44 ] and medical staff [ 30 , 44 ]. In some studies, parents preferred the child not to be present during diagnosis disclosure as this is an overwhelming situation and parents did not want to show any weakness in front of their child [ 30 , 44 , 55 ].…”

“…Physicians highlighted the fact that treating patients and families respectfully had a great influence on all serious conversations [ 55 ]. Other aspects frequently mentioned by parents, physicians and patients were empathy [ 7 , 9 , 29 , 31 , 36 , 43 , 45 , 46 , 47 ] and honesty [ 25 , 31 , 33 , 43 , 44 , 53 , 54 ]. Parents valued an empathetic approach of physicians while delivering serious news, which allowed them to express their emotions and receive support from the medical staff [ 7 , 9 , 29 , 45 ].…”

“…Adding to this, patients valued open and honest communication as this made them feel included in the communication process [ 25 , 33 , 45 , 48 ]. An honest and open approach was also highly valued by parents, even if the disclosed information was upsetting or shocking [ 25 , 31 , 33 , 43 , 44 , 45 , 54 ]. Parents valued an honest delivery of information if done with compassion [ 34 , 45 ] and appreciated if physicians honestly acknowledged not being certain about the outcome [ 33 ].…”