Komplekse liv. Patientinddragelse som vej til et bedre hverdagsliv for multisyge?

Ørtenblad, Lisbeth; Jønsson, Alexandra Brandt Ryborg; Meillier, Lucette Kirsten

doi:10.7146/tfss.v0i22.20821

Cited by 2 publications

(6 citation statements)

References 23 publications

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“…Other studies have considered how multimorbidity challenges personal identity, in terms of disrupting daily routines and perceived roles. 10,19 –24 Nevertheless, people with multimorbidity strive to maintain pre-existing identities and valued social roles, e.g. ‘being a worker’, or ‘being a mum’ 19 as well as continuity of self-identity and independence.…”

Section: Discussionmentioning

confidence: 99%

“…36,37 In this study, we use SIT to advance the understanding of the individual experience of complexity when living with multimorbidity. Previous studies have explored chronic illness and multimorbidity in relation to changes in self-identity 21,22,24 and identity crisis, 38 how illness intrude on valued social identities, 39 as well as the significance of maintaining pre-existing identities and social roles 19 following illness onset. To our knowledge, no previous studies have explored the complexity of living with multimorbidity in a SIT framework.…”

Section: Introductionmentioning

confidence: 99%

“…19,20 People with multimorbidity experience disrupted daily routines, 21,22 a lack of authority over their own lives, 20,21,23,24 the impression of ageing prematurely 10 and difficulties with maintaining affiliation to the labour market. 10,22,24,25 This may impose changes in self-identity and self-perception, 24 as well as familial and social roles, 21 which may increase the complexity of living with multimorbidity in addition to the disease and treatment burdens. Several studies highlight the continuous need to explore the complexity of living with multimorbidity from a patient perspective in order to address patients’ individual preferences, needs and goals.…”

Section: Introductionmentioning

confidence: 99%

“…A few studies point to the dilemmas people with multimorbidity experience outside the medical encounter as they balance disease and treatment with everyday life. 19,20 People with multimorbidity experience disrupted daily routines, 21,22 a lack of authority over their own lives, 20,21,23,24 the impression of ageing prematurely 10 and difficulties with maintaining affiliation to the labour market. 10,22,24,25 This may impose changes in self-identity and self-perception, 24 as well as familial and social roles, 21 which may increase the complexity of living with multimorbidity in addition to the disease and treatment burdens.…”

Section: Introductionmentioning

confidence: 99%

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Prioritizing social identities: Patients’ perspective on living with multimorbidity

Sand

Rahbek

Willadsen

et al. 2021

Journal of Multimorbidity and Comorbidity

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Objective: This article explores experiences of people with multimorbidity, and attempts to advance understandings of the complexity of living with multimorbidity outside the medical encounter in a social identity theoretical framework. Method: This is a qualitative study using individual semi-structured interviews among nine persons living with multimorbidity. The interviews are analysed inductively according to thematic content analysis. Results: The emerging themes are: 1) Impact on daily life, 2) Professional life and 3) Capacity for handling multimorbidity. People with multimorbidity experience physical limitations and psychological distress, which limits their ability to maintain social relations and affiliation to the labour market. Accordingly, they are challenged in their ability to retain a sense of normal everyday life, which is mediated by their capacity for handling multimorbidity. Discussion: Multimorbidity may compromise various social identities. The complexity of living with multimorbidity is increased by an aspiration to maintain valued social identities in order to preserve a coherent sense of self and a normal everyday life. This study suggests an increased focus on individual priorities and values outside the medical encounter, and argues in favour of recognizing the conflicts that people experience as they try to balance multimorbidity with other important aspects of their daily lives.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Prioritizing social identities: Patients’ perspective on living with multimorbidity

Sand

Rahbek

Willadsen

et al. 2021

Journal of Multimorbidity and Comorbidity

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“…Har man mere end to kroniske eller langvarige sygdomme på en gang, er man det, der kaldes "multisyg". Mennesker med multisygdom har nedsat livskvalitet (Nöel et al 2005), og hverdagen med flere kroniske sygdomme bliver belastet af smerter, nedsat bevaegelighed og tid, der skal bruges på behandlinger (Ørtenblad, Jønsson & Meillier 2015;Høstrup & Jønsson 2017). Har man først én kronisk sygdom, er risikoen for at udvikle nye forhøjet (van den Akker et al 1998), og multisyge dør tidligere end gennemsnittet (Tinetti et al 2011).…”

Section: Multisygdom Som Forskningsfeltunclassified

DE USUNDE: Sundhedsantropologens møde med multisyge ældre på Lolland

Jønsson¹

2018

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Alexandra Ryborg Jønsson: The Unhealthy. Anthropological Encounters with Priorities and Health Perceptions of Older People Living with Multimorbidity Based on ethnographic research among the chronically ill elderly in Lolland, the article demonstrates how “health” as a morally weighted concept is reproduced by the fieldworker. Recognition of such positionality emerges gradually throughout the author’s fieldwork, and the article shows how increasing critical awareness is reflected in the fieldwork itself. It is argued that medical anthropological studies require constant reflection on how the fieldworker produces empirical objects. Owing to this, the perspective termed “empathic research” is introduced; “empathic” refers to the anthropologist’s responsibility to make practices, experiences and narratives understood within the specific local context. The analysis stresses the need for anthropologists to remain critical towards positioning and normative groundings within the research project and seek for knowledge on how individuals are embedded within a society sat in a contextual frame of time and politics. Following this, a focus towards social inequality in health must become a commitment to engage in the world as anthropologists. The discussion establishes grounds for an empathetic way of collecting knowledge that entails an epistemological focus on situational existence. Keywords: research ethics, empathic knowledge production, fieldwork, multimorbidity, Denmark Alexandra Ryborg Jønsson: De usunde. Sundhedsantropologens møde med multisyge ældre på Lolland Med udgangspunkt i feltarbejde blandt ældre på Lolland med flere samtidige kroniske sygdomme vises, hvordan forestillingen om sundhed som noget moralsk befæstet ubevidst reproduceres af antropologen. Erkendelsen af denne positionering kommer gradvist, og artiklen viser, hvordan en stigende kritisk bevidsthed afspejles i feltarbejdet. Der argumenteres for, at medicinsk-antropologiske studier kræver en konstant refleksion over skabelsen af det empiriske objekt. Derfor introduceres empatisk vidensproduktion som forskningsposition. Med empatisk refereres til antropologiens ansvar for at gøre lokale praksisser, erfaringer og udsagn forståelige i deres kontekst. Artiklen fremhæver antropologens forpligtelse til at forholde sig kritisk over for normative indlejringer i sit projekt og i stedet søge at skabe viden om det enkelte menneskes indlejring i og bidrag til fællesskabet set i en kontekstuel og subjektiv optik. Der argumenteres for, at et fokus på social ulighed, her i sundhed, er en forpligtelse, vi som antropologer bør tage på os og dermed bruge vores fag til at engagere os i verden. Det foreslås, at empatisk vidensproduktion som forskningsstrategi med fokus på de situationelle eksistenser kan modvirke berøringsangst over for politisk og moralsk ladede felter. Søgeord: forskningsetik, empatisk vidensproduktion, feltarbejde, multisygdom, Lolland

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Komplekse liv. Patientinddragelse som vej til et bedre hverdagsliv for multisyge?

Cited by 2 publications

References 23 publications

Prioritizing social identities: Patients’ perspective on living with multimorbidity

Prioritizing social identities: Patients’ perspective on living with multimorbidity

DE USUNDE: Sundhedsantropologens møde med multisyge ældre på Lolland

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