DE USUNDE: Sundhedsantropologens møde med multisyge ældre på Lolland

Abstract

Alexandra Ryborg Jønsson: The Unhealthy. Anthropological Encounters
 with Priorities and Health Perceptions of Older People Living with
 Multimorbidity
 Based on ethnographic research among the chronically ill elderly in Lolland, the
 article demonstrates how “health” as a morally weighted concept is reproduced by
 the fieldworker. Recognition of such positionality emerges gradually throughout
 the author’s fieldwork, and the article shows how increasing critical awareness is
 reflected in the fieldwork itself. It is argued that medical anthropological studies
 require constant reflection on how the fieldworker produces empirical objects.
 Owing to this, the perspective termed “empathic research” is introduced; “empathic”
 refers to the anthropologist’s responsibility to make practices, experiences
 and narratives understood within the specific local context. The analysis
 stresses the need for anthropologists to remain critical towards positioning and
 normative groundings within the research project and seek for knowledge on
 how individuals are embedded within a society sat in a contextual frame of time
 and politics. Following this, a focus towards social inequality in health must
 become a commitment to engage in the world as anthropologists. The discussion
 establishes grounds for an empathetic way of collecting knowledge that entails
 an epistemological focus on situational existence.
 Keywords: research ethics, empathic knowledge production, fieldwork, multimorbidity,
 Denmark
 
 Alexandra Ryborg Jønsson: De usunde. Sundhedsantropologens møde med
 multisyge ældre på Lolland
 Med udgangspunkt i feltarbejde blandt ældre på Lolland med flere samtidige
 kroniske sygdomme vises, hvordan forestillingen om sundhed som noget moralsk
 befæstet ubevidst reproduceres af antropologen. Erkendelsen af denne positionering
 kommer gradvist, og artiklen viser, hvordan en stigende kritisk bevidsthed
 afspejles i feltarbejdet. Der argumenteres for, at medicinsk-antropologiske studier
 kræver en konstant refleksion over skabelsen af det empiriske objekt. Derfor
 introduceres empatisk vidensproduktion som forskningsposition. Med empatisk
 refereres til antropologiens ansvar for at gøre lokale praksisser, erfaringer og udsagn
 forståelige i deres kontekst. Artiklen fremhæver antropologens forpligtelse til
 at forholde sig kritisk over for normative indlejringer i sit projekt og i stedet søge
 at skabe viden om det enkelte menneskes indlejring i og bidrag til fællesskabet
 set i en kontekstuel og subjektiv optik. Der argumenteres for, at et fokus på social
 ulighed, her i sundhed, er en forpligtelse, vi som antropologer bør tage på os og
 dermed bruge vores fag til at engagere os i verden. Det foreslås, at empatisk vidensproduktion
 som forskningsstrategi med fokus på de situationelle eksistenser
 kan modvirke berøringsangst over for politisk og moralsk ladede felter.
 Søgeord: forskningsetik, empatisk vidensproduktion, feltarbejde, multisygdom,
 Lolland

Generating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ)

“…49 Frequently this was manifested as self-perceived experiences of being stigmatised and discriminated against due to low socio-economic status, showing how socio-economic determinants are juxtaposed with negative stereotypes and thus may lead to Self-perceived health inequity. 49 , 59 For the individual, this implies reactions to how you feel you are perceived in health-care encounters, which “may lead to a particular agency, which, ironically, may eventually lead to poorer treatment outcomes.” 49 Stigma is a well-known barrier to health and is a fundamental cause of health inequality, and it is therefore essential to target in interventions. 53 , 60 Stangl et al have proposed The Health Stigma and Discrimination Framework that describes the stigmatisation process as it unfolds regarding health.…”

Informationens ironi: Patienters frie adgang til sundhedsdata

“…Sundhed. dk er et større neoliberalistisk politisk projekt om at få borgere til at tage større ansvar for egen sundhed, hvilket i øvrigt skaber en kategori af borgere som er 'forkerte' fordi de ikke kan eller vil leve op til forestillingen om ansvar for egen sundhed (Jønsson 2018b). Derved bliver etik processuelt og relationelt, men relationen er ikke mellem patient og sundhedsprofessionel, men mellem patient og viden som objekt.…”