KidsLife Scale

Gómez, Laura E.; Alcedo, Ma Ángeles; Martínez, Benito Arias; Gómez, Yolanda Fontanil; Arias, Víctor; Monsalve, Asunción; Verdugo, M.

doi:10.1037/t78138-000

Cited by 8 publications

(5 citation statements)

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“…It was found that the formulation of the questions did not influence the answers, nor did it induce inaccuracies in relation to the information collected [13]. In addition, the sample bias was taken into account to ultimately obtain reliable information of good quality (The requirements of the respondents to fulfill the objectives of the work were clearly defined [13]. There were two different responses (dichotomy and Likert scale), and these were scored so as to obtain (M = 10) for all of them.…”

Section: Instrumentmentioning

confidence: 99%

“…Questions that were considered more complex were stated in a simpler way or using colloquial language. It was found that the formulation of the questions did not influence the answers, nor did it induce inaccuracies in relation to the information collected [13]. In addition, the sample bias was taken into account to ultimately obtain reliable information of good quality (The requirements of the respondents to fulfill the objectives of the work were clearly defined [13].…”

Section: Instrumentmentioning

confidence: 99%

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Quality of Life: Changes in Self-Perception in People with down Syndrome as a Result of Being Part of a Football/Soccer Team. Self-Reports and External Reports

et al. 2021

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The hypothesis posed was whether being part of a football/soccer team influenced the quality of life (QL) of the people who participated in it since their perception of themselves is enhanced by factors, such as self-determination, social inclusion, emotional well-being, physical well-being, material well-being, rights, personal development, and internal relationships. The objective was to evaluate the QL of people with Down Syndrome (DS) using their self-perception (n = 39) and the perception of the informants (family members, teachers) (n = 39). The KidsLife-Down Scale, with a few modifications, was used. In general, differences of opinion between the subgroups of participants with DS and informants showed that results were higher in terms of perception for participants in the DS subgroup. Scores for all variables were higher for those participants with DS who said they did engage in practicing competitive football/soccer. Although the perception of informants provides a great deal of information regarding the QL of participants with DS, participants with DS should also be involved in the evaluation process and their self-perceptions taken into account. It is not participating in a football team that causes the conclusions of the study, but training (which includes the friendly matches that are played), the cause correlated with the improvements detected in the athlete’s DS.

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Section: Instrumentmentioning

confidence: 99%

Section: Instrumentmentioning

confidence: 99%

Quality of Life: Changes in Self-Perception in People with down Syndrome as a Result of Being Part of a Football/Soccer Team. Self-Reports and External Reports

et al. 2021

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“…The KidsLife Scale evaluates the QoL of children and adolescents with ID [ 22 ]. It evaluates personal outcomes related to QoL in children/adolescents with ID aged between 4 and 21 years.…”

Section: Methodsmentioning

confidence: 99%

Evaluating quality of life in families with Williams Syndrome patients

Sepúlveda

Resa

2021

Health Qual Life Outcomes

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Background Williams Syndrome is a developmental disorder characterized by a variable intellectual disability. People with Williams Syndrome need the intervention of several clinical and educational specialists throughout their life. However, little is known about the impact produced by this disability in their immediate environment, especially in families. The purpose was to know the level of quality of life described by families with Williams Syndrome. Methods The sample was made up of 33 families belong to Spanish Williams Syndrome Association who were evaluated using the Kidslife Scale. Their children and adolescents were between 4 and 20 years old. Eight main quality of life domains were evaluated: emotional well-being, physical well-being, material well-being, personal development, interpersonal relations, social inclusion, self-determination and rights Results The obtained data indicated that the degree and presence of intellectual disability did not homogeneously influence people’s quality of life, but many variables could alter their quality of life to a greater or lesser extent. There are no significant differences between quality of life areas but significant differences appeared for level of dependence in the self-determination subarea (p < .05). Conclusions These results led us to analyse the social and emotional implications for families and their environment.

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“…For this reason, there is a need for QOLSM-based measurement instruments that demonstrate adequate evidence of reliability and validity. One such instrument is the #Rights4MeToo scale [4,12,39], a tool for assessing the rights promulgated in the CRPD for people with IDD, based on the QOLSM and capturing many aspects of the SDGs.…”

Section: The #Rights4metoo Scalementioning

confidence: 99%

The Quality of Life Supports Model as a Vehicle for Implementing Rights

Morán

Gómez

Verdugo

et al. 2023

Behavioral Sciences

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The Quality of Life Supports Model (QOLSM) is emerging as a new framework that is applicable to people with disabilities in general, but specially to people with intellectual and developmental disabilities (IDD). The aim of this conceptual paper is twofold. Firstly, it aims to show the overlap between the QOLSM and the Convention on the Rights of People with Disabilities (CRPD), highlighting how the former can be used to address many of the goals and rights embedded in the latter. Secondly, the article seeks to illustrate the connection between these two frameworks and highlight the importance of acknowledging and measuring the rights of people with IDD. Therefore, we posit that the new #Rights4MeToo scale is ideal for: (a) providing accessible means and opportunities for people with IDD to identify and communicate their needs regarding their rights; (b) enhancing the supports and services that families and professionals provide to them; and (c) guiding organizations and policies to identify strengths and needs in relation to rights and quality of life. We also discuss future research needs and summarize the main findings of this article, highlighting its implications for practice and research.

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KidsLife Scale

Cited by 8 publications

References 0 publications

Quality of Life: Changes in Self-Perception in People with down Syndrome as a Result of Being Part of a Football/Soccer Team. Self-Reports and External Reports

Quality of Life: Changes in Self-Perception in People with down Syndrome as a Result of Being Part of a Football/Soccer Team. Self-Reports and External Reports

Evaluating quality of life in families with Williams Syndrome patients

The Quality of Life Supports Model as a Vehicle for Implementing Rights

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