The Quality of Life Supports Model as a Vehicle for Implementing Rights

Morán, Lucía; Gómez, Laura E.; Verdugo, Miguel Á.; Schalock, Robert L.

doi:10.3390/bs13050365

Cited by 7 publications

(3 citation statements)

References 32 publications

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“…The #Rights4MeToo Scale ("#YoTambién Tengo Derechos"; G omez et al, 2023) is such an instrument. This validated and standardized instrument operationalizes the CRPD Articles and SDGs through the assessment of QOL-related personal outcomes (G omez et al, 2021a, 2021bMorales et al, 2021;Mor an et al, 2023;Verdugo et al, 2021) and contextual factorsnamely, the 41 QOL indicators listed in Table 1. The purpose of the instrument is to: (a) give a voice to people with IDD regarding their personal values, their lived experience, and everyday situations in their daily lives; (b) act as a tool that professionals and relatives can use to detect any breach, abuse, or denial of rights, thereby helping them enhance the supports and services they provide to this group; and (c) serve as a guide for organizations to identify the strengths and greatest needs of this population in relation to rights and, therefore, in QOL.…”

Section: The #Rights4metoo Scalementioning

confidence: 99%

Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals

Gómez,

Morán,

Navas

et al. 2023

Policy Practice Intel Disabi

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This article describes how rights, the United Nations Sustainable Development Goals (SDGs), and the quality of life (QOL) framework are closely interrelated. Although legislation can be used as a tool for the practical application of QOL principles, QOL assessment information is required to further develop legislation and monitor the fulfillment of laws, policies, and the SDGs. A validated QOL model, which provides a set of concepts that can be one useful way for understanding and assessing QOL, can also function to assess many of the rights and goals promulgated in the Convention on the Rights of Persons with Disabilities (CRPD) and in the SDGs. This article illustrates the overlap between the CRPD, SDGs and QOL using the #Rights4MeToo Scale, a new measurement instrument for people with intellectual and developmental disabilities (IDD). The instrument's value lies in its potential to: (a) raise awareness about the rights enshrined in the CRPD; (b) design, implement, and evaluate the effectiveness of interventions aimed at facilitating the exercise of those rights and the achievement of the SDGs; and (c) ultimately improve the QOL of people with IDD.

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Section: The #Rights4metoo Scalementioning

confidence: 99%

Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals

Gómez,

Morán,

Navas

et al. 2023

Policy Practice Intel Disabi

Self Cite

View full text Add to dashboard Cite

show abstract

“…In reference to the UNCRPD, systems change can be based on the alignment of QOL domains, UNCRPD articles, and systems of supports elements. Significant research has demonstrated that the UNCRPD Convention Articles, QOL domains, and systems of supports elements can be clearly aligned (Gómez et al, 2022; Gómez, Monsalve, et al, 2020; Lombardi et al, 2019; Morán et al, 2023; Verdugo et al, 2012). This alignment is described more fully in Gómez et al and Lombardi et al in this Special Issue.…”

Section: Multiple Uses Of the Qolsmmentioning

confidence: 99%

“…A conceptual model, upon which a paradigm is based, facilitates the description and visualization of a phenomenon, and includes the critical elements of the phenomenon and how those elements can be used to apply the phenomenon (G omez, Schalock, & Verdugo, 2020). The four critical elements of the QOLSM involve core values, individual and family QOL domains, systems of supports, and facilitating conditions (G omez et al, 2021;Mor an et al, 2023;Verdugo et al, 2021).…”

Section: The Qolsmmentioning

confidence: 99%

The Quality of Life Supports Model as a major component in applying the quality of life paradigm

Verdugo

Schalock

Gómez

2023

Policy Practice Intel Disabi

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Social change is built on paradigms and models. A paradigm needs an operational action model to successfully implement the paradigm, and an operational model needs a paradigm to give it credibility and content. This article describes the Quality of Life Supports Model (QOLSM) as a major pathway for applying the quality of life (QOL) paradigm. The QOLSM integrates the concepts of QOL and individualized supports. The article describes and illustrates: (a) the four elements of the QOLSM (core values, individual and family QOL domains, systems of supports, and facilitating conditions); and (b) the use of the QOLSM in the field of intellectual and developmental disabilities (IDDs) as a framework for supports provision. The article also discusses how the QOLSM represents a value‐based and actionable model that should be effective for solving problems regarding services and supports to people with IDD, developing new knowledge, making meaningful change, being evaluated, and contributing both theoretically and operationally to the field.

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Rights Are Necessary but Insufficient for the Achievement of the Full Inclusion of People with Intellectual and Developmental Disabilities

Parmenter

2023

Adv Neurodev Disord

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Objectives Two forces which are in juxtaposition have been impacting upon the achievement of full inclusion and emancipation of people with intellectual and related developmental disabilities into society. The first is the history of the United Nations human rights declarations and conventions. While human rights initiatives have supported grassroots movements such as choice, self-determination, and person-centred supports, the second force, neoliberal philosophy, has commandeered these concepts into a culture of managerialism and individualism. Whether rights are necessary but insufficient for the achievement of the full inclusion of people with intellectual and developmental disabilities needed to be addressed. Methods The history of the human rights movement was explored leading up to the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The impact of countervailing forces of neoliberal policies were explored. The ongoing development of models of disability were examined, as were threats to implementation and the realisation of outcomes. Results The impact of neoliberal policies by member nations and the juridical nature of the CRDP were found to be limiting factors for genuine community acceptance and inclusion of people with disabilities, especially those with intellectual disabilities. Conclusions Member nations conforming to human rights imperatives also need to encourage the building an ethical community in which reciprocal relationships are fostered and celebrated. Individualism and the market-based economies have failed to recognise the important role communality has played in the history of the human species.

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The Quality of Life Supports Model as a Vehicle for Implementing Rights

Cited by 7 publications

References 32 publications

Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals

Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals

The Quality of Life Supports Model as a major component in applying the quality of life paradigm

Rights Are Necessary but Insufficient for the Achievement of the Full Inclusion of People with Intellectual and Developmental Disabilities

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