‘It's quite hard to grasp the enormity of it’: Perceived needs of people upon diagnosis of rheumatoid arthritis

Abstract

People with RA report not only informational, but also emotional support needs at diagnosis. The potential for delivering emotional support to patients around the time of diagnosis warrants further exploration.

What are the perceived barriers, facilitators and attitudes to exercise for women with rheumatoid arthritis? A qualitative study

“…This disparity and contrast in depth of information is consistent with research by Radford [35] where a sample of people interviewed with RA after initial and follow-up consultation advocated the need for involvement in selection of treatment (choice) and also support above and beyond simple information delivered to them on treatment.…”

‘Your whole life, your whole world, it changes’: partners' experiences of living with rheumatoid arthritis

“…One area that has been largely overlooked is the met and unmet support needs of partners. A recent study (Radford et al, 2008) assessed the needs of patients with RA and found that support by the hospital team for the family was raised by patients as being important, but currently missing. In addition, no previous research has focused solely on the experiences of partners.…”

Physical-activity coaching and health status in rheumatoid arthritis: A person-oriented approach

“…The possibility to communicate with a physical-activity coach at least once a month during a year and for personal meetings every third month might have been a valuable source for clearing up different question related to the disease and body functions. It has been suggested that patients with RA value having health professionals to talk to, and receiving information and emotional support from them [50], as well as sharing and discussing distress and fears for the future [51]. However, support, praise, practical assistance and information from e.g.…”