“It all depends”: Conceptualizing public involvement in the context of health technology assessment agencies

Gauvin, François-Pierre; Abelson, Julia; Giacomini, Mita; Eyles, John; Lavis, John N.

doi:10.1016/j.socscimed.2010.01.036

Cited by 101 publications

(129 citation statements)

References 42 publications

Supporting

Mentioning

119

Contrasting

Unclassified

Order By: Relevance

“…It is a fundamental step in order to better use the existing modalities of participation, and to adapt or develop others if necessary. Indeed, according to the literature, the relevance (even necessity), nature, level and degree of participation depend on contexts, issues, projects and interventions [31,56].…”

Section: Discussionmentioning

confidence: 99%

Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives (Preprint)

Alami¹,

Gagnon²,

Fortin³

2018

Preprint

View full text Add to dashboard Cite

BACKGROUND Decisions regarding telehealth services in Quebec (Canada) have been largely technocratic by nature for the last 15 years, and the involvement of citizen-patients in the development of telehealth services is virtually nonexistent. In view of the societal challenges that telehealth raises, citizen-patient involvement could ensure more balance between evidence from traditional research methodologies and technical experts and the needs and expectations of populations in decisions about telehealth services. OBJECTIVE This study aimed to explore the perception of various stakeholders (decision makers, telehealth program and policy managers, clinicians, researchers, evaluators, and citizen-patients) regarding the involvement of citizen-patients in the development of telehealth services in Quebec. In particular, we explored its potential advantages, added value, obstacles, and challenges it raises for decision making. METHODS We used a qualitative research approach based on semistructured individual interviews, with a total of 29 key actors. Respondents were identified by the contact network method. Interviews were recorded and transcribed verbatim. A pragmatic content thematic analysis was performed. To increase the capacity for interpretation and analysis, we were guided by the principle of data triangulation. RESULTS Citizen-patient involvement in decision making is perceived more as a theoretical idea than as a practical reality in health care organizations or in the health system. There is very little connection between citizen involvement structures or patient and user groups and telehealth leaders. For the respondents, citizen-patient involvement in telehealth could increase the accountability and transparency of decision making and make it more pragmatic within an innovation-driven health system. This involvement could also make citizen-patients ambassadors and promoters of telehealth and improve the quality and organization of health services while ensuring they are more socially relevant. Challenges and constraints that were reported include the ambiguity of the citizen-patient, who should be involved and how, claimant citizen-patient, the risk of professionalization of citizen-patient involvement, and the gap between decision time versus time to involve the citizen-patient. CONCLUSIONS This study provides a basis for future research on the potential of involving citizen-patients in telehealth. There is a great need for research on the issue of citizen-patient involvement as an organizational innovation (in terms of decision-making model). Research on the organizational predisposition and preparation for such a change becomes central. More efforts to synthesize and translate knowledge on public participation in decision making in the health sector, particularly in the field of technology development, are needed.

show abstract

Section: Discussionmentioning

confidence: 99%

Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives (Preprint)

Alami¹,

Gagnon²,

Fortin³

2018

Preprint

View full text Add to dashboard Cite

show abstract

“…These internal factors include the time and resources available to the HTAO and the existent organizational culture, structure and processes of the HTAO -labelled 'transparency and opportunity for public involvement in governance'. These latter factors are rarely made explicit in public engagement frameworks, yet are just as influential in determining when and how engagement in undertaken (Gauvin et al 2010a). …”

Section: Analysis Of Factorsmentioning

confidence: 99%

What factors determine the choice of public engagement undertaken by health technology assessment decision-making organizations?

Wortley

Street

Lipworth

et al. 2016

JHOM

View full text Add to dashboard Cite

Purpose: Public engagement in health technology assessment (HTA) is increasingly considered crucial for good decision-making. Determining the "right" type of engagement activity is key in achieving the appropriate consideration of public values. Little is known about the factors that determine how HTA organizations decide on their method of public engagement, and there are a number of possible factors that might shape these decisions. This paper seeks to understand the potential drivers of public engagement choice from an organizational perspective.Design/Methodology/: The published HTA literature is reviewed alongside existing frameworks of public engagement in order to elucidate key factors influencing the choice of public engagement process undertaken by HTA organizations. A conceptual framework is then developed to illustrate the factors identified from the literature that appear to influence public engagement choice.Findings: Determining the type of public engagement to be undertaken in HTA is based on multiple factors, some of which are not always explicitly acknowledged. These factors include: perceived complexity of the policymaking issue, perceived impact of the decision, transparency and opportunities for public involvement in governance, as well as time and resource constraints. The influence of these factors varies depending on the context, indicating that a one size fits all approach to public engagement may not be effective.Originality/value: Awareness of the various factors that might influence the type of public engagement undertaken would enable decision-makers to reflect on their choices and be more accountable and transparent about their choice of engagement process in eliciting public values and preferences in a HTA organization.2

show abstract

“…With the intention of serving as "a bridge between the world of research and the world of decision--making" 3 (p. 1464), these organizations would be situated at the border between the domains of research and policy formulation to respond to requests that require more informed, transparent and legitimate decisions, and that allow for a stronger participation of society 4,5 .…”

Section: Introductionmentioning

confidence: 99%

Health technology assessment (HTA) organizations: dimensions of the institutional and political framework

Novaes

Soárez

2016

Cad. Saúde Pública

View full text Add to dashboard Cite

Health technology assessment (HTA) is consolidated as a scientific and technological practice. The aim of this study is to identify HTA organizations from different settings and analyze their relevant dimensions in terms of effectiveness/impact, in order to address the challenges they face in Brazil. Narrative literature review based on data and websites of HTA organizations. There are well-established activity development processes in all organizations. These activities have specific features in their profile, in the process of technology assessment, decision and implementation of technologies that influence their potential impact on health systems. Agencies share in common the challenges of ranking the technologies to be assessed, and the implementation of their recommendations. Technical and political strengthening of the institutionalization of HTA in Brazil may foster scientific, technological and innovation policies, effectively impacting health policies.

show abstract

“It all depends”: Conceptualizing public involvement in the context of health technology assessment agencies

Cited by 101 publications

References 42 publications

Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives (Preprint)

Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives (Preprint)

What factors determine the choice of public engagement undertaken by health technology assessment decision-making organizations?

Health technology assessment (HTA) organizations: dimensions of the institutional and political framework

Contact Info

Product

Resources

About