Is nondirectiveness possible within the context of antenatal screening and testing?

Williams, Curtis A.; Alderson, Priscilla; Farsides, Bobbie

doi:10.1016/s0277-9536(01)00032-6

Cited by 126 publications

(101 citation statements)

References 17 publications

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“…These include the offer of a test being perceived as a recommendation to have it, and a lack of time to present choices fully. 125 Although most informants in our study expressed the view that patients were given a choice as to whether to undergo screening, informed choice was perceived as difficult to implement for many reasons, including time constraints, language barriers and patient reliance on GP recommendation. However, the quality of decisions made by women in the three trial groups did not vary, suggesting that the decision quality was not lower if the test was offered by GPs.…”

Section: Discussionmentioning

confidence: 88%

Antenatal screening for haemoglobinopathies in primary care: a cohort study and cluster randomised trial to inform a simulation model. The Screening for Haemoglobinopathies in First Trimester (SHIFT) trial

Dormandy

Bryan

Gulliford

et al. 2010

Health Technol Assess

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How to obtain copies of this and other HTA programme reports An electronic version of this title, in Adobe Acrobat format, is available for downloading free of charge for personal use from the HTA website (www.hta.ac.uk). A fully searchable DVD is also available (see below).Printed copies of HTA journal series issues cost £20 each (post and packing free in the UK) to both public and private sector purchasers from our despatch agents.Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per issue and for the rest of the world £3 per issue. How to order:-fax (with credit card details) -post (with credit card details or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you to either print out your order or download a blank order form. Contact details are as follows:Synergie UK (HTA Department) Digital House, The Loddon Centre Wade Road Basingstoke Hants RG24 8QW Email: orders@hta.ac.uk Tel: 0845 812 4000 -ask for 'HTA Payment Services' (out-of-hours answer-phone service) Fax: 0845 812 4001 -put 'HTA Order' on the fax header Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to University of Southampton and drawn on a bank with a UK address. Paying by credit cardYou can order using your credit card by phone, fax or post. SubscriptionsNHS libraries can subscribe free of charge. Public libraries can subscribe at a reduced cost of £100 for each volume (normally comprising 40-50 titles). The commercial subscription rate is £400 per volume (addresses within the UK) and £600 per volume (addresses outside the UK). Please see our website for details. Subscriptions can be purchased only for the current or forthcoming volume. How do I get a copy of HTA on DVD?Please use the form on the HTA website (www.hta.ac.uk/htacd/index.shtml). HTA on DVD is currently free of charge worldwide.The website also provides information about the HTA programme and lists the membership of the various committees. HTA NIHR Health Technology Assessment programmeT he Health Technology Assessment (HTA) programme, part of the National Institute for Health Research (NIHR), was set up in 1993. It produces high-quality research information on the effectiveness, costs and broader impact of health technologies for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined as all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care.The research findings from the HTA programme directly influence decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC). HTA findings also help to improve the quality of clinical practice in the NHS indirectly in that they form a key component of the 'National Knowledge Service'.The HTA programme is needs led in that it fills gaps in the evidence needed by the NHS. There are three routes to the start of projects....

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Section: Discussionmentioning

confidence: 88%

Antenatal screening for haemoglobinopathies in primary care: a cohort study and cluster randomised trial to inform a simulation model. The Screening for Haemoglobinopathies in First Trimester (SHIFT) trial

Dormandy

Bryan

Gulliford

et al. 2010

Health Technol Assess

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“…Studying it can provide insight into the practices underlying institutionally mandated and -supported informing in a variety of settings, including libraries and information centers. Such practices include the negotiation of conflicts among competing sources and knowledge systems (McKenzie & Oliphant, 2006), the translation of the ideals of governing documents (Spoel, 2007) into practice (Burkell & McKenzie, 2005), and the navigation of mandated client-centeredness (Salmon & Hall, 2003) and neutral informing (Williams, Alderson, & Farsides, 2002;Alcock, n.d.) when these may be neither possible nor desirable.…”

Section: Resultsmentioning

confidence: 99%

Informing choice: The organization of institutional interaction in clinical midwifery care

McKenzie

2009

Library & Information Science Research

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Researchers in LIS have called for the study of the social practices out of which informing is achieved. This article analyzes the informed choice discussion (ICD) between midwives and childbearing women as a form of institutional interaction that accomplishes informing. The ICD institutionally presumes a woman to have information needs that must be met before she can make a decision. Conversation analysis, a method commonly used to study practitioner-client interaction but little used in LIS, is employed to identify the unique "fingerprint" of the ICD. Analysis shows how participants develop a joint sense of the interactional tasks of informing and deciding. As an ideal, informed choice divides the cognitive labor: informing is midwife-led and deciding is client-led. In practice, however, informing and deciding are intertwined to such an extent that their resolution is neither automatic nor straightforward but must be negotiated. To be accepted as adequate, a decision must also be deemed adequately informed. Difficulties in negotiating transitions can result in one speaker treating a decision as resolved while another treats it as still open. Analyzing the fingerprints of institutional informing interactions can provide a starting point for analyzing the interactional accomplishment of informing in other settings.

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“…In that way this group belongs to an expert health advice discourse that exists in written form (Locher & Hoffmann, 2006) and in some offline medical situations, for example e.g. antenatal screening and testing (Williams, Alderson & Farsides, 2002). That is not to say that the content of advice is ambiguous or vague.…”

Section: Discussionmentioning

confidence: 99%

Seeking out very like-minded others: exploring trust and advice issues in an online health support group

Sillence¹

2010

IJWBC

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Is nondirectiveness possible within the context of antenatal screening and testing?

Cited by 126 publications

References 17 publications

Antenatal screening for haemoglobinopathies in primary care: a cohort study and cluster randomised trial to inform a simulation model. The Screening for Haemoglobinopathies in First Trimester (SHIFT) trial

Antenatal screening for haemoglobinopathies in primary care: a cohort study and cluster randomised trial to inform a simulation model. The Screening for Haemoglobinopathies in First Trimester (SHIFT) trial

Informing choice: The organization of institutional interaction in clinical midwifery care

Seeking out very like-minded others: exploring trust and advice issues in an online health support group

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